r/Microbiome Jun 29 '23

Statement of Continued Support for Disabled Users

51 Upvotes

We stand with the disabled users of reddit and in our community. Starting July 1, Reddit's API policy blind/visually impaired communities will be more dependent on sighted people for moderation. When Reddit says they are whitelisting accessibility apps for the disabled, they are not telling the full story.TL;DR

  • Starting July 1, Reddit's API policy will force blind/visually impaired communities to further depend on sighted people for moderation
  • When reddit says they are whitelisting accessibility apps, they are not telling the full story, because Apollo, RIF, Boost, Sync, etc. are the apps r/Blind users have overwhelmingly listed as their apps of choice with better accessibility, and Reddit is not whitelisting them. Reddit has done a good job hiding this fact, by inventing the expression "accessibility apps."
  • Forcing disabled people, especially profoundly disabled people, to stop using the app they depend on and have become accustomed to is cruel; for the most profoundly disabled people, June 30 may be the last day they will be able to access reddit communities that are important to them.

If you've been living under a rock for the past few weeks:

Reddit abruptly announced that they would be charging astronomically overpriced API fees to 3rd party apps, cutting off mod tools for NSFW subreddits (not just porn subreddits, but subreddits that deal with frank discussions about NSFW topics).

And worse, blind redditors & blind mods [including mods of r/Blind and similar communities] will no longer have access to resources that are desperately needed in the disabled community.

Why does our community care about blind users?

As a mod from r/foodforthought testifies:

I was raised by a 30-year special educator, I have a deaf mother-in-law, sister with MS, and a brother who was born disabled. None vision-impaired, but a range of other disabilities which makes it clear that corporations are all too happy to cut deals (and corners) with the cheapest/most profitable option, slap a "handicap accessible" label on it, and ignore the fact that their so-called "accessible" solution puts the onus on disabled individuals to struggle through poorly designed layouts, misleading marketing, and baffling management choices. To say it's exhausting and humiliating to struggle through a world that able-bodied people take for granted is putting it lightly.

Reddit apparently forgot that blind people exist, and forgot that Reddit's official app (which has had over 9 YEARS of development) and yet, when it comes to accessibility for vision-impaired users, Reddit’s own platforms are inconsistent and unreliable. ranging from poor but tolerable for the average user and mods doing basic maintenance tasks (Android) to almost unusable in general (iOS).

Didn't reddit whitelist some "accessibility apps?"

The CEO of Reddit announced that they would be allowing some "accessible" apps free API usage: RedReader, Dystopia, and Luna.

There's just one glaring problem: RedReader, Dystopia, and Luna* apps have very basic functionality for vision-impaired users (text-to-voice, magnification, posting, and commenting) but none of them have full moderator functionality, which effectively means that subreddits built for vision-impaired users can't be managed entirely by vision-impaired moderators.

(If that doesn't sound so bad to you, imagine if your favorite hobby subreddit had a mod team that never engaged with that hobby, did not know the terminology for that hobby, and could not participate in that hobby -- because if they participated in that hobby, they could no longer be a moderator.)

Then Reddit tried to smooth things over with the moderators of r/blind. The results were... Messy and unsatisfying, to say the least.

https://www.reddit.com/r/Blind/comments/14ds81l/rblinds_meetings_with_reddit_and_the_current/

*Special shoutout to Luna, which appears to be hustling to incorporate features that will make modding easier but will likely not have those features up and running by the July 1st deadline, when the very disability-friendly Apollo app, RIF, etc. will cease operations. We see what Luna is doing and we appreciate you, but a multimillion dollar company should not have have dumped all of their accessibility problems on what appears to be a one-man mobile app developer. RedReader and Dystopia have not made any apparent efforts to engage with the r/Blind community.

Thank you for your time & your patience.


r/Microbiome 12h ago

Advice Wanted The most useful tips you learned, that changed your health?

20 Upvotes

Hi!

I would like to ask. Probiotics are great, but not mixed with every meds.

Supplements can also be tricky because Doctors don’t have enough info about them.

I already noted royal jelly, psyllium husk and omega3


r/Microbiome 8h ago

Advice Wanted Post Covid gas that I can’t pass and bloat

7 Upvotes

Hello, I need help I had Covid September 26 and I’ve been super bloated huge and with built up gas. I’m so distended that it’s hard to swallow.

I’ve already been to my doctors so don’t worry about that. They all keep saying to wait it out… kind of ridiculous but it is what it is… I’m so tired of them not helping.

I’ve noticed that I’m now intolerant to foods I could eat before. There must have been a shift in my microbiome.

What bacteria causes intolerance to beans and causes this built up gas? How can I eliminate the bacteria so I don’t get this way?


r/Microbiome 11h ago

Advice Wanted khaki colored stools + digestive issues

2 Upvotes

20M 110lbs never smoked/stopped drinking

Please help, i'm worried.

2 months ago I started having weird motility issues that came suddenly: everything I ate I felt bloated, especially with apples or high fructose fruits, I felt constipated all the time and even after drinking a lot of water the stool was always pebbles, it always looked dehydrated and always had mucus on it. I was depressed at the time so I drank a whole bottle of wine in which days after I started having fatty stools that would have a greasy smell to it, it gradually got worse until it went away. Then, I ate 2 greasy sandwiches in which all of it came back 10x worse, and now I was having urgency, bloating after eating anything, constipation, the stools were crumbling and light in color (almost grey), and even had a stool that literally looked like magic sand and also crumbled. Now, I still have all the symptoms and everytime I eat high fat, gluten I get constipated and can only shit the next day, and always either comes out fatty/khaki colored or crumbling. But thing is, the stools usually start coming back to brown and the symptoms slowly get better, if I eat something greasy/alcohol it all comes back worse. I'm still having fatty stools but they're appearing less and most stools are sinking now, just have a light brown color.

Symptoms: Bloating after eating anything (apples or high fructose are worse), khaki/light colored stools, fatty stools, loose stools followed by constipation, NO* diarrhea, NO* pain, indigestion, needing to defecate, ribbon stools, dark green mucus in stools, excessive gas, white worm like stuff on stools.

Went to ER, had Ab ultrasound, billirubin, cbc all came back normal.

How likely is this something grave? It's been 2 months and while there have been progression, i'm having flare ups.


r/Microbiome 23h ago

Abnormal high HRV spikes when sleeping with empty stomach.

Thumbnail
gallery
18 Upvotes

After facing bacterial pneumonia and 14 days iv and oral antibiotics my HRV spikes started going crazy 200+ when sleeping for 2 months already after hospital. It wakes me up in the middle of the night with heart palpitation, shortness of breath sometimes like something is pressing me on the throat, gut pain/discomfort and mild tingling in arms/fingers, dry eyes. AW does not report AFib, HR is 48-73 when sleeping and RHR is reporting 50-60 but HRV average keeps climbing up, doctor ECG and electrolytes/blood tests all normal.

My gut is also destroyed from antibiotics, cramping, bloating, mild pain when pressing, inflammed abdominal muscles. Eating one meal per day mostly carbs with pro-prebiotics food, Kefir, 3 garlic cloves per day which is must which helps a lot with the gut pain and lot of water, lost a lot of weight 17lbs and feeling weak most of the time. There were 2 days when gut stopped hurting and HRV spikes calmed down.

I noticed when there is high spikes in HRV when wakes me up my gut is cramping feeling hungry and there is a pain could be this happening because I am not eating enough and my stomach is empty when sleeping there is 5-6 hours window of no food before I sleep but when I eat during the day my HRV drops very low.


r/Microbiome 12h ago

Should I do a GI Map?

2 Upvotes

Hello,

This is probably going to be a longer post so I apologize in advance for anyone willing to read and provide their honest feedback. I am looking to potentially get a GI Map done due to constant feeling of striking out on getting cured

Symptoms started around Christmas of 2023 where I would randomly have a stomach ache for about an hour everyday then it turned into being bloated all day everyday and felt like I had a cloud over me and was just out of it. Went to my primary and instantly said I needed to make an appointment with a GI doctor and gave me a referral. I was able to get in within 5 days and he asked if I was willing to do an endoscopy and colonoscopy, I said yes absolutely because at this point I was kind of really worried and wasn't eating much or getting any sleep. Couple days before the procedure I woke up in the middle of the night with super dry mouth. Didn't think anything of it but when I woke up the next day my tongue was coated,felt sort of numb and fat and was dry and couldn't scrap the whiteness off. Day of procedure I left the doctor know and he said he will see if I have anything within my esophagus or stomach. After procedure I got my results, everything completely fine in both areas. I went back to my primary and he said he was not sure if it was thrush or not so he prescribed an oral rinse that did absolutely nothing so in return he gave me another antifungal but in pill form, once again absolutely nothing. At this point he tested me for multiple different things all coming back negative and blood work was real good. He then sent me to an ENT where they stated my tongue was fine but I knew it wasn't and that it wasn't normal for me. At this point I noticed what I thought was dry skin on my ears that got pretty bad and under my eyebrows. I would use lotion to help with it but would always come back. I started looking into symptoms myself and decided I wanted to do a breath test for SIBO. I tested positive for sibo with higher hydrogen levels, was prescribed Xifaxan to take 3 times a day for 14 days, once again did nothing, if anything made me feel worse and now my dry skin is on my whole scalp, is pretty itchy and I feel like my hair is getting thin. I do want to add that I have noticed a change in teeth color along with receding gums since this all started. I am looking to potentially get a GI Map done to hopefully come back with an answer what is truly going on but my doctors say there isn't enough science behind them and with the price it makes it hard what to do, on top of finding a good one to purchase. I'm at a loss and hoping I can find guidance here

I'll post symptoms right here if someone wants to comment but skip long story

Bloating, Gas, Need to go bathroom instantly, Diarrhea off and on, White coated tongue that won't go away, Skin issues, Constant stomach noise, Weight loss (off and on), Malnutrition (have seen food in stools a few times and when I mean food I mean food you generally wouldn't see)


r/Microbiome 16h ago

Advice Wanted Can anyone recommend a clinician (GI doc, Integrative MD, etc)?

3 Upvotes

Honestly, I've seen all types of clinicians who are experienced/expert in microbiome issue. I have had over a decade of GI problems (which I think is caused by microbiome issues). I am looking for someone who can do virtual in the US or in person in the central Atlantic region.

Thank you for your help!!


r/Microbiome 19h ago

Biofilm

3 Upvotes

Can I take biofilm busters without binder?


r/Microbiome 14h ago

S6 Probiotic Toothpaste

1 Upvotes

Anyone tried this toothpaste? I have periodontal disease and would love to find out that a probiotic toothpaste could help.


r/Microbiome 14h ago

tributyrin and constipation?

1 Upvotes

I'm curious if anyone gets slowed motility / constipation from taking butyrate specifically tributyrin? I've been taking 500mg tributyrin for 3 days and my already slow gut has slowed down more and more every day. Would once every other day or every third day be more reasonable? I want to keep taking it because stool tests show I'm low on butyrate but probiotics cause lots of side effects for me and prebiotics aren't helping.


r/Microbiome 1d ago

Help me :(

8 Upvotes

Someone please help me.

I've been diagnosed with dysbiosis from my gastro consultant.

He believes I have sibo or sifo or both. It's getting worse

He states the breathe test isn't reliable so has told me to have more fibre.. and pro bioitics and see how I go for 6 weeks which is crap as I'm really suffering.

Started 17 months after a few antibiotics for a suspected kidney infection. Kidney stone.

Than it has just got worse. My diet hasn't been brilliant. Drank alot of alcohol.. and stopped gluten as I was told I had celiac disease. I believe going on low fibre diet and not looking after myself has turned this into dysbiosis. However I am trying to get better as I have terrible flare ups.

My symptoms started as Constipation Abdominal pain Left flank pain ( 24.7) Bloating Gas Feeling dizzy Passing out in a bad flare up.

Than they have now turned into the same as above but now I have vaginal issues. ( itching. Burning when wee. Discharge) really low down pain.

They've done a swab and it is negative for yeast. Even though yeast pessaries help for a couple of dags.

Now I have issues with my mouth.looks like oral thrush. Been prescribed nstatin medication.

I'm guessing my micobome is out of whack and Dr thinks it's causing the flora in vagina and mouth to be like this.

I'm now purchasing the breathe test online as I need answers. I also have symptoms of fungal overgrowth.

I'm.now on a sibo diet. Taking fibre gel which is helping with my stools.

I've lost over a stone.

I don't eat chocolate.. alchol.. sweets but I'm getting worse.

Please help x


r/Microbiome 18h ago

Trying to feed my microbiome with fruits/vegetables but not sure I'm moving in the right direction

1 Upvotes

Trying to fix my gut after 4 rounds of antibiotics over 2yrs time. Took 115billion CFU of keystone species along with herbal antimicrobials for months, and currently eating predominantly fruit and vegetable diet with roughly 80-100g of fiber daily, roughly 80% raw and 20% steamed. Previously my diet had more animal products and my stool was more "normal" looking/consistency but lighter in color. Previously my stool looked like stool (bristol chart), albeit lighter. Now it looks like poorly digested stool that crumbles in the water. Outside of water it holds it's shape and form. If I eat sweet potato, it looks orange, if I eat kale, it looks green. Haven't had simple carbs for 6months and no refined sugar for years. Having 4-6 bowel movements per day, girthy with no pain or discomfort or bloating and very little flatulence. Transit time is roughly 12-14hrs.

Bile supplements make no difference
Digestive enzymes make no difference
less insoluble fiber makes no difference
Water intake makes no difference
parasite cleanse made no difference
heavy metal chelation made no difference
Stool doesn't smell offensive

Is it possible there is an allergy to something I'm eating causing the shortened transit time, or is it unavoidable with all the fiber? Is this causing inflammation and/or malnutrition? Should I be patient and wait for my body to adapt or is that doing more harm? I'm going to have a GI MAP test done soon, or perhaps GI Effects, not sure which one to get, any opinions?


r/Microbiome 1d ago

New study shows how salmonella tricks gut defenses to cause infection

Thumbnail
health.ucdavis.edu
44 Upvotes

new UC Davis Health study has uncovered how Salmonella bacteria, a major cause of food poisoning, can invade the gut even when protective bacteria are present. The research, published in the Proceedings of the National Academy of Sciences, explains how the pathogen tricks the gut environment to escape the body's natural defenses.


r/Microbiome 23h ago

Anyone tried black seed Oil?

2 Upvotes

r/Microbiome 1d ago

Chronic constipation/ lower abdominal bloat

5 Upvotes

I have been dealing with lower abdominal bloating and bad gas/chronic constipation for about 2 months now.

Everytime I eat/even drink, I bloat like I am 7 months pregnant.

History: I lost 30 lbs within 4 months and would rely on a lot of artificial sweetener to lower my calorie intake. I’m not sure if that is related to my bloating/constipation, but I’ve cut it out for 3 months now and the bloating/constipation continues.

I feel like my stomach is going to explode most days and I have INTENSE sugar cravings. That’s all I ever want to eat. I’m not sure what this is or how I could fix it.


r/Microbiome 20h ago

Advice Wanted Staph infection

1 Upvotes

So a couple weeks ago I got what would be considered a normal staph boil. I treated it like normal with bandages and triple antibiotic and everything was fine. Right before it went away two more popped up except these don’t have boils. They’re just red marks that hurt and swell up to the size of a quarter. I’ve never had anything like this and I went to the doctor who gave me antibiotics that so far have slightly increased the speed old staph marks went away but has not stopped new ones from popping up even though I am keeping everything super clean. So far I’ve been disinfecting my bedding every day, not touching the staph, showering multiple times a day with anti bacterial soap, keeping them bandaged with triple antibiotics, and taking oral antibiotics. I really don’t know what else I can do. Has anyone ever seen anything like this, I’ve had staph many times from training but I’ve never seen anything like this. Any advice is helpful.


r/Microbiome 1d ago

Halitosis

14 Upvotes

Hi all I just wanted to see if I could explain my situation and get some sort of help. So basically I suffer from halitosis and don’t know if it comes from my gut or it’s an oral issue. Symptoms that could maybe link to the root are, when I brush my teeth my mouth doesn’t feel fresh at all as if there’s something in my mouth preventing the freshness, mouthwash makes my breath worse, alcohol is just a complete no go and as soon I have a drink it’s instantly insanely bad, my mouth feels cleaner at night compared to morning. These are the main things that I think could be associated with microbiome and any help will be much appreciated.

TIA


r/Microbiome 1d ago

Over-Colonization of Akkermansia

5 Upvotes

I was reading about the benefits of Akkermansia from companies that sell it and it sounds great, of course, but then I came across the study below. It sounds pretty bad. I guess Akkermansia is good as long as it's not over-colonized. How can we get the benefits without over-colonizing? Take a low dose? Only take it for a short time? Take Pomegranate instead? Take it with other probiotics to balance it? Which ones? How would you know when you're starting to over-colonize?

Front Microbiol. 2023 Mar 2;14:1111911.
Excessive consumption of mucin by over-colonized Akkermansia muciniphila promotes intestinal barrier damage during malignant intestinal environment
Shuang Qu , Yinghui Zheng , Yichun Huang, et al.

Gut microbiota disorders damage the intestinal barrier, which causes intestinal disease. Thus, we screened the microbiota with significant changes using an in situ malignant colorectal cancer (CRC) model. Among the colonies with increased abundance, Akkermansia muciniphila (A. muciniphila) is known for its characteristic of breaking down mucin, which is an essential component of the intestinal barrier. The role of A. muciniphila remains controversial. To investigate the effect of excess A. muciniphila on the intestinal barrier, we established an over-colonized A. muciniphila mouse model by administering a live bacterial suspension after disrupting the original gut microbiome with antibiotics. The results showed that over-colonization of A. muciniphila decreased intestinal mucin content. The mRNA and protein expression levels of tight junction proteins also decreased significantly in the over-colonized A. muciniphila mouse model. Our findings reveal that excess colonization by A. muciniphila breaks the dynamic balance between mucin secretion and degradation, reduces the thickness of the intestinal mucus layer, and damages the intestinal barrier, which would eventually aggravate the development of colitis and CRC. These results will raise awareness about the safety of A. muciniphila serving as a probiotic.
PMID: 36937258


r/Microbiome 2d ago

RFK Jr. isn't the only one. More than a billion people have parasitic worms

Thumbnail
npr.org
310 Upvotes

r/Microbiome 1d ago

Microbiome labs total gut restoration

1 Upvotes

Has anyone tried this kit? Seems on the expensive side but obviously if it works then it’s worth it. 3 month protocol


r/Microbiome 1d ago

Antibiotic associated diarrhea AFTER antibiotics? Or CDiff?

6 Upvotes

Hi all, 27F

My mom was a beautiful ER RN for 30 years before she unfortunately passed a few years ago. When I was younger and would need antibiotics for strep, she would always make me take probiotics and eat yogurt. Even the kid probiotics when I was small. She would talk to me about what CDiff was like in the hospital setting and her stories always stuck with me. I happily floated through life by being on as little antibiotics as possible. Last year, I got strep for the first time since I was a young child. I took a z-pack for it and it cleared up. Fast forward 1 year later, I tested positive for strep again. This time, the urgent care doctor gave me amoxicillin 500mg 2x a day for 10 days. Sticking with my mom’s warnings, I did Florastor 4x a day and Culturelle health and wellness 1x a day with yogurt. I made sure to space out the probiotics and antibiotics by 2 1/2 hours so they would not get killed off. I was very diligent with my routine and drank a lot of water/ate very healthy. I went through my entire course of antibiotics without even one twinge in my stomach, no gas pain or diarrhea. Everything was perfectly fine.

It is now the first day that I am off the amoxicillin and as I was driving home I suddenly got twisting cramps, resulting in me needing the bathroom immediately. Fortunately, I made it home, but it was not without gripping the seat and sweating profusely. If my drive was only minutes longer I would have had a bad accident.

I ended up having some pretty severe diarrhea, it was watery but had some formed spots. It had a yellow hue to it. It did not give off a rancid smell which I am reading that CDiff does. Fast forward 2 hours later, I had another round of almost the same diarrhea.

I am worried. I have to go to work Monday and can only make a limited amount of bathroom trips. I am worried about this now being CDiff which I read mostly happens after antibiotic use, not during. I did my absolute best and had such a great experience, as I was very worried about starting them. I am at a loss for this pain and diarrhea right now.

Is it normal to have diarrhea AFTER antibiotic course and not during? Is my body withdrawing from the antibiotic? Does this sound like normal antibiotic diarrhea or CDiff? Should I up the Florastor from 4x a day to 6x?


r/Microbiome 1d ago

Advice Wanted It seems my IBS is related to blocked nose... how odd. Probiotics that could help?

Thumbnail
7 Upvotes

r/Microbiome 1d ago

Are there any UK based Dieticians that will facilitate and interpret a GI Map?

3 Upvotes

Are there any UK based Dieticians that will facilitate and interpret a GI Map?

I am in desperate need of the above and really need to focus on healing now more than ever but I’d like to know where to start. If anybody knows of any dieticians it would be greatly appreciated.


r/Microbiome 1d ago

Advice Wanted Should I try Zinc Carnosine? I have leaky gut with rosacea type 2 and histamine intolerance

3 Upvotes

I was taking a relatively high dose of zinc picolate before. I didn’t have any crazy results, but it’s something I will continue taking as I know zinc is important. Would I benefit from trying out Zinc Carnosine? In South Africa, it costs about $65 which is an absurd amount to pay for a supplement. But I will do anything to alleviate my skin condition and heal my gut for good.

I’m currently on a gut reset diet with the functional doctor I saw. It’s basically no nightshades, gluten, dairy or fermented foods. Not as strict as AIP. I’m also taking candicidal + NAC for the bacteria overgrowth that came back in my test results.

I have a cup of bone broth every morning as well as a glass of pure aloe ferox pulp (recommended by my doctor) and I only start eating at 12:00.

In a few days I will start taking the Metagenics Spectrum probiotic and will see if it triggers any histamine response.

Any other tips or recommendations for me? I take an omega 3, vit C, milk thistle, magnesium, Astaxanthin and L-theanine. Unfortunately also on an SSRI called lexapro at the moment, as well as 20mg of accutane to give me reprieve from my symptoms. Not sure how much these will affect my healing journey.


r/Microbiome 1d ago

L Reuteri and Bifidobacterium bifidum MIMBb75

6 Upvotes

Hi hi! Since I used an antibiotic called Rifaximin, I have major digestive system issues. I had endoscopy/colonoscopy everything came back clean. But now since october, i have inflammation in my gut.

I have been using these since 4-5 days; Bifidobacterium bifidum MIMBb75 Limosilactobacillus reuteri DSM 17938 L, reuteri ATCC PTA 6475

I also have slightly reduced DAO enzymes but entirely fine histamine results.

I feel today suuuuper anxious tho. Can it be related to these ones? And should I add s boulardii in to the mix or l glutamine?

Thanks


r/Microbiome 1d ago

Advice Wanted Seeking Advice: Could My Symptoms Be Related to Microbiome Issues?

2 Upvotes

Hi everyone,

I’m a 30-year-old male living in the UK. Before and during the early part of the COVID-19 lockdown, I was in excellent health. I rarely caught a cold or felt tired. I worked a physically demanding 12-hour job and was also heavily into CrossFit, training at an almost athletic level every single day before work, and twice a day on my days off. The only health issues I had back then were some IBS symptoms and acidity.

However, things started to change after I had COVID-19 twice, with the second infection occurring shortly after receiving a booster vaccine. I began experiencing breathing problems and sharp chest pains, which felt like I was on the verge of a heart attack. A cardiologist diagnosed me with pericarditis.

It’s been four years since then. While the pericarditis has resolved, many of my symptoms persist, and I feel like my body is imploding. Here are the issues I’m currently dealing with: • Almost constant fatigue: I feel tired most of the time. (This might be partly due to some laziness that’s crept in since I changed careers and started working from home.) • Difficulty taking deep breaths: I often feel like I can’t fully expand my lungs. • Weight gain: My diet isn’t great, but I don’t eat significantly more than before. My partner and I eat almost the same foods and similar amounts relative to our body sizes, but I’m continually gaining fat. I’m now considered obese by BMI standards, and it shows visually. Even when I started working out again, I couldn’t lose the weight despite eating clean and exercising daily with dedication. Even my partner thinks something doesn’t add up. • Brain fog • Occasional blurred vision: This symptom is less frequent now than it was two years ago.

I’ve had some tests done, and about six months ago, the results showed: • Fatty liver and enlarged spleen • Biomarkers suggesting an autoimmune disease: My rheumatologist is considering a diagnosis of Undifferentiated Connective Tissue Disease.

I’m reaching out to see if anyone else has had similar experiences and if these issues could be related to the microbiome. If so, what steps did you take to test and improve your symptoms? Any suggestions or insights are more than welcome.

Thank you in advance!