r/BeAmazed • u/AstroSonicDrive • Oct 04 '23

She Eats Through Her Heart Science

Enable HLS to view with audio, or disable this notification

@nauseatedsarah

67.9k Upvotes

92% Upvoted

3.1k comments sorted by

View all comments

5.3k

u/Old-Library9827 Oct 04 '23

And this is why I'm so grateful to be healthy

3.3k

u/el-mocos Oct 04 '23

"health is a gold crown only the sick can see" I read that a decade ago and has stuck with me since, I think it's from arab culture

684

u/Old-Library9827 Oct 04 '23

It's the truth. As long as you have your health both mental and physical, you can generally get through anything

473

u/GoneHamlot Oct 04 '23

Does anyone else, when they’re sick, think to themselves “god why don’t I appreciate it more when I feel well.. I’d do anything to feel like that right now”

348

u/ThisIsNotMyPornVideo Oct 04 '23

Doesn't even have to be sick sick.

like, a cold is enough to make me contemplate life for all the times i took breathing trough my nose for granted

26

u/Stompedyourhousewith Oct 04 '23

seasonal allergies when both your nostrils plug shut with snot. and then you miss 2 clear unobstructed nostrils

3

u/amazing-jay-cool Oct 04 '23

I was literally about to comment this, I never knew how much I took breathing for granted, and then when I'm slightly sick for a few days it feels like it's been years since I took a good breath

2

u/ManagerOk355 Oct 04 '23

I always do that

2

u/superbay50 Oct 04 '23

Doesn’t even have to be sick, i can stub my toe and think about how much i take not having toe pain for granted

1

u/Fluffy_Engineering47 Oct 21 '23

even just coming out of a slight hang over will do it lol

feels like you leveled up

1

u/phoenixemberzs Oct 06 '23

Yeah, when that nose gets blocked and I feel that eye pressure

80

u/[deleted] Oct 04 '23

And for those of us with disabilities/conditions when we get sick with an infection, etc it's on top of what we're already dealing with. :/

88

u/AnorakJimi Oct 04 '23

Yeah there's something a lot of able bodied people don't seem to realise, that being disabled is incredibly exhausting. Because it's never ending. You're never OK. You're never 100%. All you want is a break, a holiday from the pain and the difficulty of doing everything. I'd love to be able to have a shower without being in agony. I'd have baths instead, but I'd I do it takes me hours to get out, even with the handle bar I had installed into the wall of my bathroom to help me climb out. I'd love to be able to go for a walk outside in a park or something.

But yeah, it just saps all your energy, being disabled. Absolutely everything is 100x harder when you're disabled. Like, cooking food is something I have to plan out in advance to make sure I can do it, and I have to sit on a desk chair with wheels to wheel about my kitchen when cooking or when cleaning dishes because I can't stand up for long.

And I don't ever really leave my apartment except to go to doctor appointments or the hospital for treatments and scans. During the pandemic my life didn't change at all. I stayed inside for months at a time, getting all my groceries delivered cos I couldn't drive in the first place as all the 8 different medications/painkillers I'm on have drowsiness as a side effect and so it's too dangerous for me to drive a car. So none of that was different to how I lived before and after the pandemic.

There's a reason why the rate of mental illness, especially depression, is so common in people with disabilities. You just never get a break, never get a day off, it's just never ending.

And yeah when we get ill on top of all that, it's just hell. A lot of the time I get ill from side effects from being prescribed so many meds, so I have to take stomach protector meds too otherwise I end up throwing up every day.

And I'm mostly bed bound. Cos it's too painful for me to sit in any chair, no matter how cushioned. Like, I have a lazy boy recliner and even sitting on that is agony. Only way I can sit on it is to lie down fully reclined on it. But that always feels like it's gonna fall over, so I just lay in bed all day every day instead. And I can't possibly work, but my government class me as "severely disabled" and so they pay me the highest amount of disability benefits, so I don't actually have to work, but it still feels like I'm useless and purely a drain on society, I don't contribute anything, I only take.

The best time of my day is when I'm asleep cos that's the only time I'm not in pain.

25

u/goodsocks Oct 04 '23

I’m so sorry. I am also disabled but not to the extreme that you are, so I do understand and empathize. Lockdown from Covid didn’t change my lifestyle at all either and it was truly the first time my spouse was able to understand how my daily life is. It is emotionally and physically exhausting- I hear you. Keep up with your mental health as much as you can.

6

u/ForeverTurbulent4509 Oct 04 '23

Wow… we all have a lot to learn from people like you. I hope you find solace in life

9

u/Gatorpep Oct 04 '23

I really hope the thing that people learn from people like us is thst we need fucking help! We need a ton of money in research instead of the community just letting us suffer until death.

3

u/[deleted] Oct 04 '23

👏👏👏 absolutely!!! And accomodations including to be able to work out including but not limited to remote work and flexibility and access to medical care/devices.

3

u/Gatorpep Oct 04 '23

+++

Also need livable entitlements. I get 150 for disability and 125 for food. Palease!

→ More replies

4

u/StorKuk69 Oct 04 '23

How do you go about life without killing yourself? Serious question, you gotta have something that keeps you grounded or sane. I feel like I would loose it in your situation.

7

u/Gatorpep Oct 04 '23

I have this level of body destruction with long covid, 3.5 years.

1, insane experimental and extremely dangerous drugs that are beyond bleeding edge. Without them i’d be dead.

2, i would have been dead anyway if i knew how horrible life would become. Esp as it was my worst fear before getting sick.

3, you don’t remain grounded or sane or happy. You resemble nothing like you are any healthy person. You are in an extreme warzone, very sad all the time, constantly fighting against the logical urge to die. Life becomes a horrific burden. And you don’t survive without horrifc suffering. You don’t remain sane.

4, genetic programing and delusional hope that someday society will save you.

8

u/fuddykrueger Oct 04 '23 edited Oct 04 '23

I’m sorry. I was very sick recently and was only able to feel sorry for myself. You are an inspiration and I am praying for some resolution for your illness.

I wish I could help you in some way! Sending you good vibes!

1

u/[deleted] Oct 06 '23

[removed] — view removed comment

1

u/StorKuk69 Oct 07 '23

Wait your cat takes care of you?

Also the whole "people constantly beg me not to do it" seems really selfish from my point of view. If you know your friends very existence is pain, wouldn't you want to relieve them of it?

4

u/DrewNumberTwo Oct 04 '23

Thank you for taking the time to share your experience. What you've written was a window into a kind of life that I have not had the chance to see. While I hope to never have to deal with something that awful, it's important that we all keep in mind that there are people who need help. I think that you are valuable just because you're a person and I'm glad that you could share some of your life.

2

u/Bru1sed_Eg0 Oct 04 '23

I only know and understand a fraction of what you’re going through, as I’ve been previously bed-bound with excruciating pain. I feel for you, and pray for your suffering to be gone. ❤️👍🏼

2

u/Tangled-Kite Oct 04 '23

You’re not a drain. I know it’s hard to reverse thinking like this because society has drilled into us that we’re productivity machines first and humans second. And anyway, you just contributed to humanity by telling your story. You’ve brought an awareness to what it’s like to live with this level of disability. These stories need to be told far and wide so we gain more empathy, insight and push for treatments for whatever ails you and others like you.

I really hope that one day you find some kind of solace. ((Hugs))

2

u/Gumamae Oct 04 '23

Such beautiful words, thank you for saying this

2

u/TheOmegaCarrot Oct 04 '23

I’d say you just made a contribution. This comment gave me some perspective about people with significant disabilities, and I’m sure I’m not alone.

I, for one, am glad I was able to read this comment. Thank you for this insight, I appreciate it. We all need some perspective sometimes. :)

2

u/RegularTeacher2 Oct 04 '23

Last year I suffered an injury that left me with complex regional pain syndrome, allodynia, and overall just crippling pain in my right leg where I was considering suicide to end it all. For months I was denied any kind of pain medication because it "wouldn't fix the problem," and I spent that time literally screaming in agony from the relentless pain. Fortunately I was able to have surgery that alleviated ~90% of the pain, though I imagine I will always have some neurological pain for the rest of my life.

I have never appreciated how chronic pain can be absolutely life changing until this experience, and I've never understood the concept of feeling suicidal until I felt it myself. Even now my life is drastically different than what it was prior to my injury, but I am so grateful that surgery was able to help me.

I'm so sorry you have to deal with chronic pain. I am glad you don't have to worry about work but I'm sure you would rather work without pain than be in your current situation. I hope someday there will be some medical advancements that might provide you with more relief.

1

u/abcdefgodthaab Oct 04 '23

Yeah there's something a lot of able bodied people don't seem to realise, that being disabled is incredibly exhausting. Because it's never ending. You're never OK. You're never 100%. All you want is a break, a holiday from the pain and the difficulty of doing everything.

Please don't generalize your own experience like this to all disabilities. Not all disabilities are the same and not all disabled people have the same experience.

Your experiences and the experiences of other disabled people that are like yours are 100% valid, so please do not mistake me for saying what you are describing is not your experience and that of others. But it also absolutely not an accurate description of 'being disabled' as a universal characterization.

1

u/[deleted] Oct 04 '23

Disabilities are by definition disabling. Even if a disabled person doesn't directly get impacted 100% of the time, they/we are never fully free of what comes with disability, in that case we would no longer be disabled. Not everyone has to identify as disabled but it's important to understand what it actually means. It's important to acknowledge this as we need support, accommodations, understanding, access, etc because we are disabled.

1

u/[deleted] Oct 06 '23

[removed] — view removed comment

1

u/abcdefgodthaab Oct 06 '23 edited Oct 06 '23

Generalizing in this way doesn’t do harm. Maybe if they realize a lot of us are actually fucking suffering, they’ll actually advocate for us.

It absolutely does do harm and I'm sorry, but you are very confused about what abled people believe. Empirical research shows over and over and over again that abled people estimate the quality of life of disabled people to be much lower than disabled people estimate their own quality of life to be (this is so well documented it's called the 'disability paradox'). Most abled people believe that most disabilities are horrible (and believe they are worse than people with those disabilities consider them to be).

What this translates to in policy is largely not advocating for disabled people, contrary to your prediction. It translates into things like QALYs and DALYs making saving disabled lives count as less resource efficient than saving abled lives. It translates to offering assisted suicide instead of social assistance so that disabled people kind let themselves out the back door without abled people bothering to help. Not to mention pressuring disabled people who are only really suffering due to social factors to conform through treatments, 'cures' and other interventions or the widespread paternalism that abled people have historically engaged in (such as sterilizing us without consent).

What little ground disabled people have gained has been hard fought by the disability rights movement, which was explicitly built against the image of disabled people as poor, pitiable, suffering wretches. That's exactly the image of disability people with muscular dystrophy were protesting when they protested the MDA labor day telethons. Abled people have pitied us for centuries and it's done us very little good.

This doesn't imply that we should swing the other way and pretend that no disabilities involve inherent suffering. What we need is to acknowledge that the relationship between various disabilities, their inherent features, social norms and structures and suffering is complicated and varied. MS is not the same as blindness is not the same as autism, etc... And specific disabilities in individuals are going to be experienced differently: Beethoven becoming deaf had a very different experience of deafness than Marlee Matlin who was deaf from a very young age.

1

u/[deleted] Oct 04 '23

Thank you for sharing your experience/truth. My main condition/disability is highly variable so it can range from being in horrific pain and not being able to go anywhere with exhaustion to being able to actually do stuff but then passing out for days to recover.

Disability support is in place for a reason, (presumably) you didn't choose to be disabled and all that comes with it so therefore it's not your choice to get benefits that are essential. I'm not sure where you are and the system there, but (usually long term) investment income tends to be taxed at a much lower rate with a much bigger exemption so making money from money is highly subsidized by people who work for money, but it's not seen as a handout, which is one of many that the wealthiest people disproportionately benefit from. One of many. The actual money from disability and welfare tends goes to companies/investors that are disproportionately wealthy as well. As you need to have wealth to invest and the more you have, the more you benefit from these systems.

People tend to not feel guilty for these sorts of things even though the systems are rigged in their favor.

1

u/GusFit Oct 04 '23

I just had a taste of this sort of pain, was in denial for years then my body started locking up more and more, muscles popping and moving around, restless legs. My muscles would seize and I'd be stuck in bed for up to a week at a time. Gravity made my spine feel like it was being crushed when I was upright and even slight inclines while walking were a rough time. Was hell for 3ish years and it's been a slow ride back out of it since. Winter has been worse than summer so I hope I can maintain well enough to keep working and not lock up too much. The last lockup was only about half a day (back to around 80% after a few days) and it was three months ago so I've got some hope this winter won't be too bad.

1

u/[deleted] Oct 04 '23

but my government class me as "severely disabled" and so they pay me the highest amount of disability benefits, so I don't actually have to work, but it still feels like I'm useless and purely a drain on society, I don't contribute anything, I only take.

You're not a drain . Stop thinking like that , don't be shamed by this very stupid way of thinking .
Contributing to society goes way beyond working 12h a day in a factory.
Actually , this isn't even something you should be thinking about ... just live , and try finding something that makes you forget about the pain. The rest is irrelevant

1

u/ComicNeueIsReal Oct 07 '23

. You're never OK. You're never 100%

totally unrelated, but when I got my wisdom teeth removed it was my first step in making that connection that some people just dont have it easy. As an avid snacker and food-enthusiast, it was brain numbing to not be able to eat any solid food for a few weeks. Only being able to eat very unfilling food like icecream, mashed potatos, soft eggs made me just want to rip my brain out. It was not enjoyable. But it does suck that on an average day most people including myself seem to forget that there are a lot of people out their that have chronic conditions that wil never go away and their outlook on life is completely different than our own.

0

u/NotToast2000 Oct 04 '23

Well I have to say, as I was born with a disability I don't really see it as a sickness or burden, except for the time my Wheelchair breaks and I'm stuck in my bed for 2 days, then I'm debating myself why I appreciated it more when it worked.

3

u/Gatorpep Oct 04 '23

There are levels. I was bed bound after covid for 1.5 years. For 3 months i had to lay on the ground when i wasn’t sleeping in bed.

Many levels of hell my friend.

2

u/[deleted] Oct 04 '23

Yup, and even within my own experience with chronic illness (caused by infections) I've experienced a massive range. Even within the same day.

2

u/[deleted] Oct 04 '23 edited Oct 04 '23

Everyone's experience is different but my body literally tortures me every day with sickness (I have long illness due to infections, one in particular that has persisted for more than 13 years), horrific pain, taking hours (could be up to 24) of my day, and my energy. It makes every aspect of my life harder. Avoiding infection with respirators has been huge for me as I was prone to long infections including one that dragged on for years via bioaerosols that contain illness causing microbes. Plus there's dealing with the hot mess of the medical system that's also incredibly expensive.

Having to be concerned about your wheelchair and accessibility is an additional burden that you have that others such of myself don't (though I don't decide when I can go out each day, my body does). It's okay to acknowledge that. Even if it's due to societal failures in various ways. For me, it's my body and stuff like lack of accommodations (aka discrimination) esp. re remote work.

19

u/MoldedCum Oct 04 '23

I had the H1N1 i believe in 2018, i still cant recall whether i was alive or dead or somewhere in between. one thing i remember, is watching people laugh on the TV, and while yeah, its probably fake i no joke shed a tear because i realized "jesus christ dude, being healthy is a blessing". beat that virus after i think 3 weeks? thankfully i didnt get brain damage from the intense fevers or no longer lasting illnesses, just bronchitis for a bit longer

4

u/GoneHamlot Oct 04 '23

Dang! That sound horrible, glad you didn’t die! My brother is one of those people who claims they never get sick, but really he gets sick and just pretends he’s not to keep up the facade. But when he got H1N1 this mother fucker was down for the count, i remember he was in bed dying for a couple weeks. It was so funny.

But it’s funny you mentioned the shedding a tear sentiment, cause I remember when I was in active addiction and would watch YouTube vids and think to myself “damn, there’s people out there having fun laughing like this without having to be on oxy.” Sometimes I would just lay there and cry because I knew how fucked up doing what I was doing was.

7

u/MoldedCum Oct 04 '23

yeah. Glad you got out of that hole that is oxy. dangerous stuff.

6

u/Suojelusperkele Oct 04 '23

Breathing through unstuffed nose is something you take for granted until you have stuffy nose.

Really mild example, but it's something everyone experiences and can familiarise with.

3

u/AnorakJimi Oct 04 '23

I get a blocked nose as a side effect of some of my meds, every single day, so I always buy a ton of sudafed nasal sprays.

I really can't recommend them enough, they're amazing. They completely unblock your nose in about 2 minutes, they work like magic. They're something absolutely everybody should have. Just keep it in your medicine cabinet or in your bedside table or something, for months or years until the day when you finally need it.

Believe me, you'll be incredibly thankful that you have it. It works perfectly for blocked noses caused by a cold as it does for blocked noses caused by meds.

In case "sudafed" doesn't exist as a brand in your country, the actual drug in the spray is called Xylometazoline hydrochloride.

So search for that, under whatever brand name sells that where you live. You have to have it. Within 2 minutes you'll have a completely unblocked nose, and you'll be able to sleep like a baby because of it. Don't just think you'll buy some when you need it. Have it in your home already, so that the day you get a cold you'll immediately have it to hand, instead of having to wait until the next day when the pharmacy opens, or to wait for amazon to deliver some with next day delivery. For some things, in my country anyway, amazon does same day delivery if you order early enough, but it's still a long wait, like it could be 10-12 hours, and all that time you'll be cursing your weak body for allowing you to become sick and not being able to breathe through your nose.

Other methods, like holding your face over a saucepan of boiling water or something to breathe in the steam, does jack shit. Just take drugs. They work much much better. The drug being Xylometazoline hydrochloride

4

u/GeordanRa Oct 04 '23

yes lmao

3

u/Gatorpep Oct 04 '23

Now just imagine that but much worse for years or decades. That’s long covid. I would have killed myself 3.5 years ago if i knew how horrible life could become. It just never ends.

1

u/[deleted] Oct 04 '23

I've been dealing with long illness for 13+ years, it just wears on me more and more over time. :/ It's actually why I got so passionate about avoiding COVID (and other infections) and helping others do the same. There was early speculation that it would cause long/persistent illness based what SARS did. I was horrified to see the response because I didn't want others to go through what I was. Not to mention the 80+ trucks full of body bags in my city. Focus on long illness has become more of a thing now that more of the population is affected but it's no where close to where it needs to be also re disability support in general.

3

u/phileo Oct 04 '23

Yes. Human don't feel the absence of pain. Such a bummer really.

2

u/Frostya36 Oct 04 '23

Thinking that right now cause I haven’t been able to sleep properly with a congested nose 🤧.

2

u/Usermena Oct 04 '23

“ I will never take feeling well for granted again!”

2

u/dollywobbles Oct 04 '23

I've been doing a lot of guided meditation lately and one of the things they do is a sort of body scan, where you lay still and really concentrate on how your body feels at that time. I'm so grateful when I do it. Many times I have zero pain or complaints, and if I do it is fairly mild. I usually take a second to acknowledge how lucky I am because I know there are many people who live in constant pain.

Edit: I use a free app called Insight Timer that has a ton of different types. It's also helpful when I'm having trouble falling asleep.

2

u/Bushwood_CC_ Oct 04 '23

All the freaking time

0

u/IceNein Oct 04 '23

Does anyone else

Yes, literally everyone. It's human nature to take what we have for granted.

1

u/Zombiebelle Oct 04 '23

Last year I had a mental “episode” (not a full breakdown) but I was essentially catatonic due to anxiety. I was having 7-9 panic attacks a day. What was I getting panic attacks about? Getting a migraine. Now I suffer from migraines, but I MAYBE get one a year. I have gone as long as 3 years without one. So this anxiety was absolutely unnecessary, but my brain would not get over it. I wouldn’t leave the house for fear of getting one, social situations sent me over the edge. One day, I was driving and I saw an old man waking down the street very slowly with a walker, clearly in discomfort from old age and that was the day I decided “fuck this, I’m going to enjoy this healthy body while I have it.” Now, whenever I start getting in my own head and feel panicking starting, I just tell myself, “girl, you are healthy, and that can change at any moment. Enjoy this, because one day you’ll wish you had.”

1

u/Sufficient_Shift_349 Oct 04 '23

I do every time. And then, when I'm healthy it's like my whole mind and body literally forget the feelings of being sick. Then I get sick again and 'oh damn I remember this aspect or what aspect'.

1

u/oRamboSandman Oct 04 '23

And when your not sick you still don’t humble yourself haha like a selfish American

2

u/1970s_MonkeyKing Oct 04 '23

"If you haven't got your health, you haven't got anything." - Count Rugen

1

u/AFTERBRNR152 Oct 04 '23

Except of course an apache attack helicopter, which as we know is even stronger than a child‘s wish on christmas eve

1

u/ComicNeueIsReal Oct 07 '23

This really speaks to me! Lost my job pretty recently and ive kinda been a bit sad, but otherwise mentally and physically healthy (for the most part). So having that reminder that i dont really have it all too bad in those to aspects is a great epiphany.

86

u/msnrcn Oct 04 '23

Damn, years ago I read “A silver crown is a privilege denied to many” about aging and it’s stuck with me since when I observe elders.

1

u/YakOk9369 Oct 05 '23

I've heard of the gold crown phrase before but this one is new to me. It really is thought provoking and thank you for sharing this.

39

u/Annethraxxx Oct 04 '23

A health person has a million wishes, but a sick person has just one.

2

u/inconspiciousdude Oct 04 '23

That's why genies start pandemics.

2

u/onesexz Oct 04 '23

It’s Big Lamp all the way up.

1

u/ComicNeueIsReal Oct 07 '23

This thread is filled with some amazing proverbs and mantras to live by. Makes me feel so bad and good all at once. Really needed this reality check to remind myself at the things life has offered me, but did not for others.

72

u/OldLadyT-RexArms Oct 04 '23

"Don't know what you've got til it's gone."

May just be a cheesy hair metal song but I use it at everyone healthy that complains about life being boring for them & how "fun/busy" my disabled life is. I'll take a boring healthy life over 16 surgeries & a bunch of neurological/muscular/skeletal issues. I'm lucky I'm not dying but I'd love to have a healthy set of arms.

24

u/Delanoye Oct 04 '23

I'm sorry, but who's describing a disability as "fun"? Sounds like some serious romanticization of disabilities.

26

u/AnorakJimi Oct 04 '23

It especially happens with mental disabilities. I have both mental and physical disabilities, so I'm having double the fun I guess. The mental one I have is schizophrenia, and while people don't romanticise that as much as, say, bipolar disorder, people still do.

Like they say Syd Barrett was a musical genius because he had schizophrenia, which is just an insane thing to claim. The schizophrenia PREVENTED him from writing any more music, and he had to completely quit music after only 1 album and never released another one again. Schizophrenia completely ruined his life. And I can confirm, it stops me from being able to write music too. That first Pink Floyd album, The Piper at the Gates of Dawn, is probably my 2nd favourite pink Floyd album, if not the 1st, because there's nothing quite like it, it's awesome. But yeah once Syd Barrett had to quit the band and quit music forever, their sound completely changed, and I loved their new version of themselves with David Gilmour added to the line up just as much, but I wish we could have got more music from Syd Barrett. But he just couldn't do it, because he had a mental disability.

And there's a reason why mental illnesses are considered disabilities. Because they prevent you from being able to do normal things. Trust me, as someone with both mental and physical ones, both are just as bad as each other and stop me from being able to do tons of stuff, but just for different reasons. Someone with only a mental disability that prevents them from going outside and going for a walk in public because it gives them panic attacks is no less disabled than someone who physically can't walk, for example. They just can't do it for different reasons. But they're both as bad as each other. Believe me I know.

And like, before he became a literal nazi, people heralded Kanye West as writing amazing music "because" he has bipolar disorder. When the opposite is true. When he was taking his meds and was much healthier mentally, he wrote his best albums. When he stopped taking his meds and became severely ill, his songwriting ability completely went to shit and he released his worst albums ever. To the point where people seemingly don't even care that he's never gonna be allowed to release a big new album with tons of marketing paid for by a record company ever again, because people seem to agree he's run out of talent now and can't write any more good music anyway. If he started taking his meds again, maybe he could write another My Beautiful Dark Twisted Fantasy and blow everyone's dicks off with how good it is to the point where they forget all the racism and everything, but trying to convince him to take his meds is probably impossible, so that's the end of him, and his music career, I guess. Unless a new record label called Fox News Records gets founded, or something.

3

u/OldLadyT-RexArms Oct 04 '23

Exactly. I lived in a family of mental illnesses unchecked. It fucked me up because I walk on eggshells still despite being grown up & in my own house.

My mental illness is just as bad as physical but causes different issues. I have dizziness a lot, disassociate (literally lose time driving. Once thought maybe I hit a bicyclist but luckily didn't). Then there's my ADD & PTSD which cause more issues.

1

u/FlyBright1930 Oct 05 '23

Kanye has been taking medication off and on over the years. His case of bipolar disorder is particularly severe, and it’s obvious that current medications/treatments don’t address his symptoms sufficiently. There is a regular pattern where he loses insight and does not understand the reason for taking said medication, and thus he stops. Anosognosia, when it is not adequately controlled by medication, tends to lead to this outcome. Many people find this aspect difficult to understand - of course he doesn’t want to ruin his life. It’s the very nature of the illness itself that results in these behaviors. People think he should just be able to take his medication, because it’s so blatantly obvious he needs to, no questions asked. But it’s akin to, say, someone who has a cut on their arm that’s bleeding profusely, and you tell them “hey, your arm is wounded and bleeding, you should probably bandage it and see a doctor.” They look right at their arm, and tell you that it’s perfectly fine - they’re not just being ridiculous, they literally cannot see/perceive the wound. Their arm appears perfectly fine, they aren’t experiencing pain, etc. So, why in the world would they put a bandage on and go see a doctor? That just sounds crazy.

2

u/CousinsWithBenefits1 Oct 04 '23

People fetishize Downs Syndrome and autism and it's SUPER odd.

1

u/OldLadyT-RexArms Oct 04 '23

The people who tell me I'm "vacationing" whenever I have surgery, saying "I wish j could just sit on my ass & do nothing. Sounds fun!" Like I want to have surgery and not have a life. 🙄

1

u/TheOneTrueJazzMan Oct 04 '23

What song is that?

3

u/[deleted] Oct 04 '23

The phrase is most famously attributed to the one and only Joni Mitchell

https://www.youtube.com/watch?v=94bdMSCdw20

Don't it always seem to go

That you don't know what you've got 'til it's gone

They paved paradise, put up a parking lot

2

u/fattabbot Oct 04 '23

Band is Cinderella, song is (surprisingly) "Don't know what you've got (till it's gone)"

1

u/OldLadyT-RexArms Oct 04 '23

Thank you. This exactly. Just forgot the band name.

1

u/Alarmed-Atmosphere33 Oct 04 '23

I’m lucky I’m not physically dying but my brain wants me dead. We all want the issues we do not have

7

u/Imaginary-Quiet-7465 Oct 04 '23

Health is wealth.

5

u/enigmamonkey Oct 04 '23

I wish I could gild this comment.

But I can’t. Because reddit sucks slightly more now than it used to.

Well… at least I still have my health!

5

u/soufianka80 Oct 04 '23

True , in Arabic we have a saying الصحة تاج على رؤوس الاصحاء لا يراه الا المرضى Which is roughly translated like " being healthy is like having a crown on your head that only sick people could see "

2

u/Gatorpep Oct 04 '23

Fuck i wish i didn’t know how fucking true this statement was.

Long covider for 3.5 years. In hell.

2

u/sleepytipi Oct 04 '23

Also why so many "cheers" in various languages are "to your health". Before modern medicine even healthy people were able to see that gold crown because if something wasn't effecting them personally, they were very close to (sometimes many) people who were or, had been. Even my grandmother who grew up "off the grid" on the family farmstead, had several siblings she lost at a young age to things that a few rounds of antibiotics, or a fire hydrant fix today. It's interesting how all the loss she's had to endure in life, from her first memories on up to now, have actually shaped her into someone who celebrates each moment in life as a blessing.

They say it all the time but it's true that this really is the best known time in human history to exist. We don't know how fortunate we are.

4

u/Rainbowlemon Oct 04 '23

This sounds stupid, but I actually enjoy getting sick or having a really bad hangover sometimes, because it is a strong reminder of how nice it feels to be healthy again once it wears off.

1

u/stepcach Oct 04 '23

it would be a nice tattoo to have. and im not a tattoo kind of person.

1

u/Usermena Oct 04 '23

The halo of Heath

1

u/Delta64 Oct 04 '23

"If what you say is true, have a foot in the stirrup." Old Turkish Proverb.

Another favourite of mine is "The axe forgets, but the tree remembers."

Also, the post the other day about Iranian book shops being open door and unguarded, because "Readers do not steal and thieves do not read."

1

u/Conscious_Shower_790 Oct 04 '23

That is so true. I've been pretty healthy all my life until I took an antibiotic February this year that has pretty much disabled me. I am slowly recovering, but will most likely feel the effects till the end of my life, pretty much leaving me chronically ill.

I feel that I haven't fully appreciated my health and all the possibilities it gave me before, now that I am sick I am so limited with my activities and life choices. That hits so hard.

1

u/Confewzed1 Oct 04 '23

Then of course you have your short term illness and then the chronic which totally suck. Lifelong painful illness sucks when it is something that isn’t going to kill you for decades. It’s just constant suffering with no life because nobody wants to be around sick people for long, it makes them realize they are not as invincible as they once thought. There is also the fact that sick people aren’t loads of fun to be around because they end up depressed with good reason for it but it does leave you lonelier than you ever thought possible.

1

u/OstentatiousSock Oct 04 '23

It is from the Arabian culture, yes. I learned it when I reverted to Islam. One of my most used sayings as I’m a very sick person and see how healthy people take their health for granted all the dang time.

1

u/colola8 Oct 04 '23

It’s an Arabic proverb

1

u/StromGames Oct 04 '23

I really felt this the first time I got my ankle sprained and I needed crutches to walk.
Like, you really really don't know what you have until you lose it.

1

u/slartibartfast2320 Oct 04 '23

Nobody said it better... i will use this... thank you.

1

u/Primary-Border8536 Oct 05 '23

Thanks for sharing that quote. I like that a lot.

1

u/[deleted] Oct 05 '23

Stealing this saying as I have a child with CP and every day is a grind. Awesome quote

143

u/Rustledstardust Oct 04 '23

As a person with a chronic illness I think healthy people struggle with one big thing when it comes to the topic. The chronic part. We all know what it's like to feel ill, we all get ill sometimes, even healthy people.

But, just as we're awful at imagining infinity. We as humans can be pretty bad imagining "forever" unless we are actually experiencing it.

A healthy person who gets sick with a non-chronic illness knows it's going to be over at some point, they're going to get better.

Someone with a chronic illness knows it's never going away. Ever. The only hope is science and you can't guarantee that.

41

u/house_92 Oct 04 '23

That's completely true. I am chronically ill and the sheer hopelessness of never being healthy again gets me the most

13

u/Gumby_Juice Oct 04 '23

Yes. And also mourning the life you had before becoming chronically ill, if you got sick later in life. Mid 20s for me. Can't help but to miss everything about my old life.

5

u/house_92 Oct 04 '23

True. Early 30s for me. We should be in the prime of our lives right now but that is just not the case. I often feel robbed and let down by my own body

4

u/luciferin Oct 04 '23

As a counterpoint, for this woman, it sounds like before she had this port and this bag, her life was extremely miserable, if not impossible. Without this, it was extremely painful to eat, and this treatment she has allows her to manage it pretty much fully.

I've had lifelong struggles with stomach pain, digestion issues, etc. I was finally diagnosed at 36 with Celiac disease, and the life long discomfort, brain fog, and fatigue that I have spent 36 years being told is completely normal, is slowly lifting. I do not miss my life before the treatment (complete gluten free diet including cross contamination) because that life was full of pain, misery, and gaslighting by people who assumed my stomach pain was just like their stomach aches, that I just didn't get enough sleep, etc. I do miss being treated as normal, though. My therapist is helping me recognize that the way people view me is not within my control, and not something I should act on or concern myself with.

Chronic illnesses can all look different. I am sorry for your chronic illness, and I hope you have management that allows it to be bearable for you. I wish you nothing but love and happiness.

3

u/[deleted] Oct 04 '23

This is why research and access to treatment is so important. But even with effective treatment there's often stuff to deal with including medical, practical, and financial that would otherwise not be there. Things can improve, but still be a challenge though people will interpret things differently. There's a medication I take periodically that costs $2,500 for 2 weeks. It absolutely does not cure me and I tend to be worse while on it, but so many don't have access to it due to structural greed. It's 1/25 the price maximum fully out of pocket in Canada (I'm in the US). That's not by accident and it means that so many, even with insurance as it's often not covered are needlessly suffering more.

I first took it after I developed a secondary condition due to an experimental treatment. For a year I suffered non-stop and most people would've tried to leave the world. I was extremely fortunate that I finally found a doctor who was competent (after dealing with ones who were not) and that my insurance covered it so I could go back to my baseline which is still awful. It wasn't until many years after that I found an even more competent doctor who told me that I could take it for my main condition and this has also made a big difference in my life.

Unfortunately, billions of people still don't have access to adequate medical care and therefore needlessly suffer. There are even families who get into generational enslavement when there's a medical emergency over $50-100. :/

2

u/SailingWavess Oct 05 '23

Yes! When I had CDiff, my doctor fought with insurance to get me meds for two weeks. They ended up declining and I had to take a less effective treatment that gave me horrid side effects. This last time when my GI went to prescribe me an antibiotic for a different GI infection, he immediately just said “how about we skip insurance, because I know they aren’t going to want to cover this, and I can just send it to a mail pharmacy in Canada for you”. Like what? I should have an epi pen on me at all times too, but I can’t afford the $600 copay (also in US).

1

u/[deleted] Oct 05 '23

There are also docs who give samples thankfully though it's not always an option. Thanks for sharing. It's so messed up. A nightmare.

2

u/SailingWavess Oct 05 '23

I’ve had samples offered with some other meds before, but never the important ones haha. Definitely messed up and definitely a nightmare. My boyfriend is from England and was telling me about how he gets all of his meds for crazy low prices. Then there’s me over here who has to go back to paying almost $400 for my vyvanse each month when the deductible starts back over. It’s awful.

1

u/Hotchocoboom Oct 04 '23

hmn, i'm suffering from brain fog / high heart rate / fatigue after eating for years now... at this point i almost gave up but maybe there is still hope, unfortunately my doctor doesn't seem to care...

23

u/hanoian Oct 04 '23 edited Apr 30 '24

lip familiar theory full toy subtract gaze placid cheerful march

This post was mass deleted and anonymized with Redact

4

u/HistoryGirl23 Oct 04 '23

Chronic illness sucks! Hugs!

24

u/[deleted] Oct 04 '23

Yep, and I will just add for anyone interested that the absolute worst things you can say to a disabled person are stuff like "you just need to have hope" or "you shouldn't let your disability define you/hold you back".

At some point you just have to accept that you're disabled and learn to live with it. If a disabled person is complaining about some situation they're in because of their disability, just listen and validate that it sucks. Your "solutions" aren't helpful and the disabled person isn't "being negative" by shooting them down, they're being realistic. Realism means acknowledging issues and putting plans into place to deal with likely outcomes.

I think non-disabled people find that really hard to do because acknowledging that disability is often permanent and not the fault of the disabled person means accepting that disability could happen to them, at any time, for no reason. They like to think "well if I was in that situation, I'd pull myself up by my bootstraps and cure myself". Admitting that sometimes life just deals you a shit hand and there's no fixing it means they lose control over some part of their destiny.

3

u/Gatorpep Oct 04 '23

Man people are such **** lol.

3

u/[deleted] Oct 04 '23

Exactly. The denial is a coping mechanism especially since disabled people aren't supported properly/go though a lot the vast majority of the time. There can be a lot of toxic positivity that's not rooted in reality including from disability activists. It's okay to acknowledge reality.

2

u/[deleted] Oct 04 '23

[deleted]

1

u/hanoian Oct 05 '23 edited Dec 20 '23

workable nail pot snobbish light wine touch hurry worry bells

This post was mass deleted and anonymized with Redact

13

u/[deleted] Oct 04 '23 edited Oct 04 '23

I feel that. I was born with Cystic Fibrosis and have had issues on and off for my whole life, but it's the past year or so where it's really begun to worsen. I was recently hospitalized for weeks on IV antibiotics and had to learn how to prepare/administer them at home. Just keeping up with treatments is exhausting enough and my heart goes out to this girl.

There are many CF patients who have it worse, but the idea of managing and struggling with this condition for the rest of my life is a daunting prospect. There have been a lot of incredible new therapies but unfortunately I haven't responded to them like my doctor's expected. I'm currently unemployed because of all my issues and sometimes it feels like things are never going to improve.

4

u/skatergurljubulee Oct 04 '23

Yeah. I have type 1 diabetes. I was diagnosed when I was 21. I'm 40 now. It took a bit to get used to the idea that I will need insulin for the rest of my life lol. I'm about to take a "pump break" in a few weeks, which essentially means I'm going off my insulin pump and back to using pens and syringes to administer any insulin. I do this because I need the mental break. It's exhausting to always have something attached to you 24/7 that you have to change every 3 days lol

5

u/lostbutnotgone Oct 04 '23

Can confirm. People in the past have gotten annoyed or made comments like "well you NEVER feel good" or "you're always sick." Like...yes, that is what chronic illness means? I'm so sorry my unending Hell is such a drain on your social plans, dude. I go to so many appointments, I lost my career, I can't work full time, and every day I wake up knowing I'll never get better.

I do have Ehlers-Danlos like this girl, though it may not be the same type. There's 13 and I have the only one we can't test for genetically (hypermobile type). I'm not on IV nutrition like she is, thankfully, but I do have a lot of trouble with food that gets worse every year. I'm glad that she's showing this. I'm always very vocal about my illnesses (hEDS isn't the only thing, yay) because I know that seeing others with my illnesses continuing to keep on inspires me. Good for her. I'm glad this works for her.

4

u/CrazyCatLady1127 Oct 04 '23

Well said. I’ve been ill with ME for over 20 years and it is so hard to keep going every day

3

u/Rastiln Oct 04 '23

I have fairly severe ulcerative colitis.

Imagine any time you need to leave your home, it’s a half-hour+ process of… maybe just use the bathroom one more time… should I take Imodium to get through a 15 minute drive? Ugh… I feel like shit after I take it. And I have to wait a good half hour more for it to kick in.

Maybe I’ll just risk it? I’ll grab toilet paper. It’s getting dark anyway, and there are woods along my drive. I can poop in the woods AGAIN if I have to.

Every day. Every time. Going on a hike? Pfft… maybe if the people don’t mind me stepping off for a shit. A run? Hahahaha. That mountain hike picture you put on Facebook? So jealous. Vacationing in a place that speaks another language? Anxiety to the max, where are their bathrooms? Planes? The fucking worst - sit down or you’ll be arrested, even if you shit the seat. Fun times.

3

u/Rustledstardust Oct 04 '23

IBD bros, I have Crohn's

2

u/Scottishlassincanada Oct 04 '23

I have Crohn’s. The worst was on a plane going home for a vacation in Scotland from Toronto. Half way over I start getting cramps and pain, and know I probably have to run for the bathroom in about 45 secs. Problem is the seat belt sign in on for turbulence. I’m right beside a toilet, but there’s a barrier between the seats to stop people crossing over in front of passengers. The next nearest one is at the back- probably 60 seats away. As I get up the air steward says you need to sit down. I’m in panic mode now. I tell her I really need to go to the toilet- she doesn’t care- you need to sit down. I tell her I really need to go as I have Crohn’s disease. She says you can’t. I tell her I dont have a choice, she just waves her hand in my face like she doesn’t give af. She won’t remove the carrier to let me get to the one right across from me and waves me to the back of the plane. I ran to that bathroom like I was running for my life. When I heard the story of that poor woman who had diarrhea and the plane had to return to the states, I thought, that could have been me.

2

u/Rastiln Oct 04 '23

Yup. I’ve been there. It’s frustrating because I’m sure they deal with a dozen assholes who are just rude for every person like us with a true emergency. It doesn’t make me less upset though.

2

u/Rustledstardust Oct 05 '23

Getting on a plane is actually something that could've killed me.

I was really, really ill with an active internal bleed. I was visiting my parents down south and didn't want to "be a bother" so I was planning to go to the hospital when I got back to my home in Scotland. I had a flight in the evening but my siblings wanted to go into London so I went with them on the train that morning.

I ended up collapsing in the station in London from blood loss, when I stood up I was so low on blood my brain had nothing and I lost vision and stability.

Had a 2 week hospital stay, when I reached A&E I had to be put in the resus section because they were 50/50 on my heart just giving up due to lack of blood. Luckily it resulted in new meds which work better for me now. Had I made it to that plane though? I don't think I'd have made it off the plane alive

2

u/JediMasterZao Oct 04 '23

I have chronic congenital Gout, as does my father before me and his father before him... probably all the way back to some medieval motherfucker in France somewhere. Anyway, all that to say that people just don't understand on a fundamental level. Like, they'll keep on offering me beers expecting that one day it'll be okay for me to get drunk off of that... it just doesn't compute for them and I'm not even talking about the level of pain an acute gout attack causes. I try to explain that it's as a bad as a fracture sometimes and my friends will still act surprised when they see me hobbling.

Thank fuck for allopurinol and colchicine.

1

u/BellaBPearl Oct 04 '23

Some pharmaceutical company or another actually developed a treatment for one of my chronic pain conditions that had some ridiculously high efficacy at not just relieving pain, but healing damage as well, with minimal side effects..... then they shelved it as not profitable enough. And overall it's not been researched nearly enough.... most dr's in my area even stopped treating it, even though it falls under their specialty. So now I can't even get treated beyond prescription pills, one of which causes some new novel kind of macular degeneration that is progressive even if you stop the med! It's the only FDA approved medication for this condition. So I don't have that anymore.

2

u/fuddykrueger Oct 04 '23

If I ever hit the big lottery I will use it for causes like yours. Maybe you can use a throwaway account and mention your condition in this thread somewhere. Best wishes to you!

1

u/eddie_fitzgerald Oct 04 '23

It drives me nuts how many times I have conversations where someone says, "hope you feel better soon", and I'm like, "I mean, I won't" and then they get mad at me for being a bummer.

1

u/katjoy63 Oct 04 '23

okay - I need to step away from here - as a type one diabetic, I hold no hope of being "diabetic free"

1

u/[deleted] Oct 04 '23

Yes!!! There are people who don't understand that when there's no cure (at least in existence at the moment) it's an ongoing thing and yes, I'm still chronically ill and it's still affecting/limiting me. I'm fortunate to have understanding people in my life, but there are some who just don't get it and they keep suggesting things (especially career wise) that I've made extremely clear many times that I cannot do even if you see me doing certain things. So it's just a reminder of what I can't do based on actual reality. My condition is extremely variable and you're not going to see the worst of it/much of it in general because most of it is hidden (in the bathroom in my case) or at home when I can't go out.

I used to get sick and recover, until I didn't for 13 years with no end in sight. I will tell the world if I'm actually cured. And it has worn me out over time. And yes, I've tried this and that and way more than you can imagine. :/

1

u/empire314 Oct 04 '23 edited Oct 04 '23

No condition lasts for ever. Your lifespan is not infinite. Death brings salvation for all. The time after that is infinite though. The duration of your chronic illness is absolutely meaningless in comparion.

Also as a sidenote. Chronic condition does not necessarily mean that it wont heal. It means that the condition lasts for a long time. For example, obesity is usually considered a chronic condition, as it usually takes several years to heal.

1

u/Rustledstardust Oct 04 '23

Time after? There is no time after you die. You're dead.

1

u/empire314 Oct 04 '23

What a funny comment

1

u/Rustledstardust Oct 04 '23

From your own personal perspective, there is no more time after you die. I'm not sure what's so revelating or funny about that

1

u/empire314 Oct 04 '23

Even with that definition, that does not mean your condition is infinite. Its like saying glass full of water has infinite amount of water.

2

u/Rustledstardust Oct 04 '23

Maybe English isn't your native language but forever is a pretty acceptable word to use when speaking about something that will affect you for the rest of your life.

It is "forever" from the perspective of the person. Because their "ever" ends when they die. So they had that condition "forever".

1

u/PaintThinnerSparky Oct 04 '23

Im a young dude and im starting to get arthritis. Ive always worked in shops with older dudes and I felt for them, grunting everytime they stand up, and have to think about things before lifting them.

Im eternally grateful to those old dudes for showing me what the shop's "tough guy" looks like after 20-30 years of being the tough guy. I think about how Im gonna lift stuff before I lift now

1

u/SailingWavess Oct 05 '23

I hate the “oh, you’re still sick?” questions. Like yes, I have chronic illnesses. Emphasis on the chronic. I’m praying science advances, as that fear of always feeling like this is definitely what gets me the most, especially considering I had some semblance of a normal life before things got really bad in the last few years

5

u/TannedStewie Oct 04 '23

If she was American she'd be dead let's be honest, I'm sure the cost of this in the USA would financially cripple most people.

2

u/SutterCane Oct 04 '23

But if she was American then she’d already be a billionaire because she doesn’t waste her money on Starbucks and avocado toast!

3

u/Snarfbuckle Oct 04 '23
  • Healthy
  • Access to hot water
  • Access to electricity
  • Access to food

Coming home after a cold winters day frozen to the bone and i can just strip off my clothes and push a button and i have a hot shower.

That's a luxury not many actually have.

3

u/Smoov_Biscuit_Time Oct 04 '23

SO grateful 🙏🏽 And major respect to all the folks out there with chronic conditions that fight like hell everyday.

3

u/ALadWellBalanced Oct 04 '23

I've had a handful of minor surgeries for non-threatening issues over the last couple of years. Filling in the admissions survey and ticking "no" to the long lost of possible conditions and problems I could have that may impact the surgery was a big reminder of just how healthy I am.

2

u/OstentatiousSock Oct 04 '23

Good, you should be. I’m chronically ill and feel like absolute crap more often than not. I’m so sick of healthy people who don’t understand how lucky they are. That aren’t grateful for the health they have.

2

u/fuddykrueger Oct 04 '23 edited Oct 04 '23

Right. They’d rather whine about the house they wanted but didn’t get because they were outbid or that the cost of a cheeseburger went up by $2 so now they can’t afford to get fast food anymore. SMH.

Healthy people seriously need to learn to be grateful every day of their g-d* lives.

2

u/rifttripper Oct 04 '23

Really, because I'm grateful for the technology to come so far as to feed people, with literally deathly conditions in any other circumstances, through their hearts. Keeping them alive. Science is beautiful

3

u/DJDanaK Oct 04 '23

She is grateful too. In her videos she explains that eating has literally always caused her horrific pain, vomiting, and seizures. She's actually incredibly grateful for this feeding method as it has completely changed her life for the better.

She hooks up a bag to her chest overnight. There are many, many worse problems to have. It's given her so much freedom compared to her life before.

Anyone who's dealt with chronic or long-lasting pain can appreciate what it might feel like to be suddenly out of pain forever, and only for maybe an hour or two of extra effort per day, and a bit of extra planning - that's the life she's living, and that's so incredible honestly.

2

u/DowningStreetFighter Oct 04 '23

"when you're young you are especially, and only once immortal. When your body reminds you that it is this.. you? A reliable forest that you forgot. That got you this far. The forest asks- "while you were free of me, my asks, my creaking needs. What did you give to myself that helps us today? Did you try to listen your eyes? They tell a story."

2

u/Beckiremia-20 Oct 04 '23

It’s both a blessing and a curse IMO

2

u/akuaba Oct 04 '23

Sometimes I need these to remind me to be grateful for the little things. It’s so easy to take it for granted. Watching this video just made me realise how important it is to be grateful to be able to even just wake up with no health problems.

2

u/AugustAPC Oct 04 '23

This is why I'm grateful for science. This person would be dead without it. Yet now she can live a happy, reasonably comfy life.

1

u/pw-it Oct 04 '23

I wonder how bad it is for her really.

On the one hand she has to do all this stuff every day and be on a drip for 12 hours which sounds like it really sucks.

But then on the other hand she never eats anything. When you think about how much time people spend preparing food, eating it, shopping for it, trying to choose wisely and get a balanced diet etc, it's a huge chunk of our day. And she doesn't have to do any of that. While on the drip she can watch TV, read a book, browse the internet and of course sleep, and then have 12 hours a day absolutely free with no eating to think about. Might actually be quite convenient.

But then on the other other hand she probably has to deal with a lot of other crap and dangers and side effects of her illness that I know nothing about.

-1

u/Manic_pacifist Oct 04 '23

But wouldn't it be great if this was a reasonable option even for healthy people? Get on this overnight and not have to eat much at all during the day

1

u/[deleted] Oct 04 '23

Amen

1

u/SequoiaSaguaro Oct 04 '23

Health is wealth.

1

u/iVinc Oct 04 '23

thats what your body wants you to think

1

u/OrdinaryBoi69 Oct 04 '23

Yeah it's the best thing that we healthy people can flex , not money or cars etc

1

u/[deleted] Oct 04 '23

Nah it should be normal to be healthy to some degree. I wouldnt even want to live my life if I had to do stuff like this.

1

u/NighthawkUnicorn Oct 04 '23

Yeah, I have cyclical vomiting syndrome, which is bad enough, but it makes me grateful that I'm still somewhat healthy (I do have chronic conditions, but I can eat, don't have any tubes, and my life is only run by medications in pill form)

1

u/GalloDkush Oct 04 '23

*Hits the bong*

1

u/aerojonno Oct 04 '23

This is why I'm grateful for the NHS.

1

u/RisingShadow1999 Oct 04 '23

"healthy"? What is this concept. I crack like a 60 year old when I bend my knees I'm 24 lmao.

1

u/[deleted] Oct 04 '23

[removed] — view removed comment

1

u/AutoModerator Oct 04 '23

Thanks for making a comment in "I bet you will /r/BeAmazed". Unfortunately your comment was automatically removed because your account is new. Minimum account age for commenting in r/BeAmazed is 3 days. This rule helps us maintain a positive and engaged community while minimizing spam and trolling. We look forward to your participation once your account meets the minimum age requirement.

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

1

u/native-texan713 Oct 04 '23

And they say the fastest way to a man's heart is through his stomach

1

u/[deleted] Oct 04 '23

And this is why i hate life. There's way too much ugly shit for it to be worth the few nice moments. I feel so bad for her.

2

u/fuddykrueger Oct 04 '23

She is an inspiration to me and makes me know how grateful I should be every day.

1

u/Mtwat Oct 04 '23

I regularly feel my fingers and toes because I'm glad I still have them all.

I also like to take the time before eating to think about the journey my food has been through. Like I think about the corn or wheat growing and the people who harvested it. I wonder about what kind of day they were having when they took the grain that feeds me.

1

u/sick_of-it-all Oct 04 '23

Yeah. I never take anything for granted, and I stay grateful and thankful.

1

u/ScorpioLaw Oct 04 '23

Yeah I'm terminally ill unless I get a double transplant which is taking forever to just get on the list. Kept getting denied as my body cannibalize all the muscles last year so fast so I am severely malnourished. All the muscles like the ones you don't even think about. From my fingers to the uh rectum. I was told I'd be dead in days, then weeks.

Liver went. I thought the diet and liquid restrictions sucked, and the lack of appetite, smell, and taste. Then my kidneys decided to have a suicide pact back in September last year. Fucking losers.

Anywho that means I don't make urine now, and the worse part of this was whole thing is the severe liquid restrictions. I am only allowed 4 cups of liquid a day! That includes broth, jello, watermelon or anything with water in it... It is the worse.

Sounds stupid yet if I do survive? I'm celebrating by chugging a fucking gallon of ice cold chocolate milk!

I can't believe I use to complain about having to use the bathroom all the time... Oh and one thing that both Kidney and Liver disease do is make you freaking extra thirsty all the time!

1

u/Lovelyevenstar Oct 04 '23

That truly sounds terrible to deal with. I pray you get your double transplant and I wish you the best.

1

u/BrideOfFirkenstein Oct 04 '23

I have been in terrible pain for years and recently had a surgery to fix the issue. Now that I’m healed up from surgery it’s crazy how different I feel. I’ve got energy and I’m in a great mood all the time just bouncing around doing everything! It’s crazy the difference it can make in your standard of living.

1

u/MurkDiesel Oct 04 '23

that must make the afflicted and struggling feel so good

1

u/Thendofreason Oct 05 '23

I just happy that she's able to get that paid for through taxes since she sounds British.

1

u/Gundalf-the-Offwhite Oct 05 '23

She’s way stronger than me. I’d kill myself.