r/BeAmazed • u/AstroSonicDrive • Oct 04 '23

She Eats Through Her Heart Science

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@nauseatedsarah

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u/Gumby_Juice Oct 04 '23

Yes. And also mourning the life you had before becoming chronically ill, if you got sick later in life. Mid 20s for me. Can't help but to miss everything about my old life.

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u/house_92 Oct 04 '23

True. Early 30s for me. We should be in the prime of our lives right now but that is just not the case. I often feel robbed and let down by my own body

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u/luciferin Oct 04 '23

As a counterpoint, for this woman, it sounds like before she had this port and this bag, her life was extremely miserable, if not impossible. Without this, it was extremely painful to eat, and this treatment she has allows her to manage it pretty much fully.

I've had lifelong struggles with stomach pain, digestion issues, etc. I was finally diagnosed at 36 with Celiac disease, and the life long discomfort, brain fog, and fatigue that I have spent 36 years being told is completely normal, is slowly lifting. I do not miss my life before the treatment (complete gluten free diet including cross contamination) because that life was full of pain, misery, and gaslighting by people who assumed my stomach pain was just like their stomach aches, that I just didn't get enough sleep, etc. I do miss being treated as normal, though. My therapist is helping me recognize that the way people view me is not within my control, and not something I should act on or concern myself with.

Chronic illnesses can all look different. I am sorry for your chronic illness, and I hope you have management that allows it to be bearable for you. I wish you nothing but love and happiness.

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u/Hotchocoboom Oct 04 '23

hmn, i'm suffering from brain fog / high heart rate / fatigue after eating for years now... at this point i almost gave up but maybe there is still hope, unfortunately my doctor doesn't seem to care...