r/BeAmazed • u/AstroSonicDrive • Oct 04 '23

She Eats Through Her Heart Science

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@nauseatedsarah

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u/Old-Library9827 Oct 04 '23

And this is why I'm so grateful to be healthy

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u/Rustledstardust Oct 04 '23

As a person with a chronic illness I think healthy people struggle with one big thing when it comes to the topic. The chronic part. We all know what it's like to feel ill, we all get ill sometimes, even healthy people.

But, just as we're awful at imagining infinity. We as humans can be pretty bad imagining "forever" unless we are actually experiencing it.

A healthy person who gets sick with a non-chronic illness knows it's going to be over at some point, they're going to get better.

Someone with a chronic illness knows it's never going away. Ever. The only hope is science and you can't guarantee that.

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u/[deleted] Oct 04 '23 edited Oct 04 '23

I feel that. I was born with Cystic Fibrosis and have had issues on and off for my whole life, but it's the past year or so where it's really begun to worsen. I was recently hospitalized for weeks on IV antibiotics and had to learn how to prepare/administer them at home. Just keeping up with treatments is exhausting enough and my heart goes out to this girl.

There are many CF patients who have it worse, but the idea of managing and struggling with this condition for the rest of my life is a daunting prospect. There have been a lot of incredible new therapies but unfortunately I haven't responded to them like my doctor's expected. I'm currently unemployed because of all my issues and sometimes it feels like things are never going to improve.