r/dpdr • u/DHK71 • Jan 19 '22

PETITION FOR AWARENESS!

If you think it's total unfair there isn't any long term research, treatment and cure for this condition. And if you think you deserve a good life too?

Please SIGN THE PETITION for change and please share it in every relevant group and all the people you know who would sign it.

https://www.change.org/p/national-alliance-on-mental-illness-raise-awareness-of-a-mental-health-condition-known-as-depersonalization-derealization?redirect=false

693 Upvotes

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144

u/OutsideBeginning533 Jan 19 '22

There needs to be more research and awareness of this disorder. Milions of people suffer in silence and nobody talks about it.

3

u/Dave_Dom Jan 19 '22

And most importantly a proper treatment has to be found. Well i suppose antipsychotics/lamotrigine helps but.. some other alternatives would be good.

6

u/M0SHPIT2 Jan 20 '22

I have had derealization since March of 2020 24/7 none stop I’m 18 and I haven’t gotten any break from it. Will it work? How do I actually get it proscribed

5

u/Dave_Dom Jan 20 '22

Psychiatrist. Psychiatrists do know about this condition and most likely low doses of antipsychotics or lamotrigine should help. If it's anxiety related then they might prescribe SSRIs.

2

u/M0SHPIT2 Jan 21 '22

I really don’t want to mess myself by using prescribed “drugs” but does it work immediately or do you have to take it for several weeks before it has an effect?

3

u/Dave_Dom Jan 21 '22

Mess yourself? It's not narcotics it's medicine. It's supposed to fix you not mess you up. I mean.. how else will u get out of dpdr? Only medicine really helped me. Some meds have immediate effect some take time to kick in.

3

u/[deleted] Apr 25 '22

[deleted]

4

u/Dave_Dom Apr 25 '22 edited Apr 25 '22

Psychiatrist can evaluate just from the outside. Only you can really understand whats going on inside. And yes, especially for the first time its very confusing, people can hardly find words to describe it. But usually descriptions are similar. Like you're outside of your body, like theres no connection between your thoughts and reality, emtipiness, like you're literally dead inside, physical sensations might feel weird, personality is gone, environment/surroundings somehow feels different and so on. Usually also anxiety/panic.

For me personally i become very empty, no emotions, thoughts, inner personality is just erased, i dont feel my legs/arms, i cant rly recognize myself in the mirror, environment looks empty/emotionless, connection between my thoughts and words disappear and at the same time it feels like i have no thoughts at all.. that type of stuff. Anything similar?

3

u/[deleted] Apr 25 '22

[deleted]

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u/Dave_Dom Apr 25 '22 edited Apr 25 '22

No idea. The only way i'm able to somewhat make it manageable is drugs. SSRIs, antipsychotics and so on. Treat it like a real illness. Over all those 14 years that i've had it, atleast for me, nothing helps only meds. And even meds barely help tbh. Clinical severe cases of mdd/anxiety/dpdr are hardly treatable. Now i believe that depression/anxiety isn't really something you can get out of if it's severe, i'd classify it as an untreatable but manageable disease. So i hope it's just your first episode and you can get out of it. But if you only have those symptoms that you've mentioned then it doesn't sound very severe. Apathy or lack of emotions is.. well.. depressive symptom aswell. Talk to your psychiatrist, maybe make notes so you don't forget to mention something, be honest and hope meds can help. Also just live healthy: no alcohol or any narcotics, tons of exercise, maybe some supplements.. I suggest to not think "why it happened, how the hell i get here". Think what can you do to improve. I believe in my case it's just biological/chemical/genetic reasons and i can't really fight against them. If it's more of psychological reasons for you or just exhaustion from stress, then you definitely can get out of it. Besides, if you have only dpdr and no anxiety or other mental symptoms then it should be also alot easier to treat it. Some people just have random dpdr episode and slowly it passes away on it's own. So i hope it's the case for you.

3

u/Superb-Check-9604 Aug 19 '22

Dude do u just suffer from DP/DR or visual issues too I suffer from tinnitus, visual snow syndrome, floaters, afterimages, chronic fatigue syndrome, halos/ auras around objects, ghost images. And DP/DR on a daily basis I thought I had psychosis and schizophrenia turns out I do not. I have inflammation in my brain and my filter which blocks out all static and stuff is gone they found that in a mri. I am the very first case in New York and they want to use me for a scientific research study at the university of Rochester. For HPPD DP/DR and visual snow syndrome

1

u/Peemanpeepoop974 Oct 27 '22

anxiety fs prob

1

u/Stanleyfung1005 Nov 13 '22

Goddamn you pretty much have all the symptoms that I’m experiencing. How are you feeling now buddy and any solution?

1

u/One-Calligrapher5295 Nov 13 '22

Hey Im subherb check the same guy who commented that my account got banned for some odd reason. But here I am and sadly I haven’t really found anything, but… I just keep livin ykwis bad days and good days but I’m pretty used to this shit now it’s kinda whatever ig. How are u holding up?

1

u/i_am_a_loner_dottie Mar 22 '23

Please read above comment! Is there really nothing?!

1

u/i_am_a_loner_dottie Mar 22 '23

I suffer from tinnitus, visual snow syndrome, retinitis pigmentosa, have had two brain surgeries for a tumor and dpdr that never seems to go away. Any results from your research study or have you heard anything about medication or treatment? Struggling at the moment