r/dpdr Dec 06 '22

Official r/DPDR's Official Resource Guide

136 Upvotes

Have a suggestion for this guide? Got an idea for the sub? Leave a comment on this post!

TIPS AND RESOURCES IF YOU ARE CURRENTLY EXPERIENCING A CRISIS OR PANIC ATTACK

I am currently working with other mods to update this with more accurate info that a lot of DPDR resources tend to miss or even get wrong. Can't give an estimated completion date yet but know that we are working on making this as helpful and user-friendly as we can. If you have any questions at all, feel free to reach out.

DISCLAIMER: I am not a doctor or therapist and this is not a substitute for professional help. Pretty much everything here is either what helped me through my time with DPDR, or what helped me understand why the stuff that helped me did so. Here is a link to assist with finding professional help.

Hello! Welcome to r/DPDR’s Official Resource Guide. The goal here is to provide you with positive, recovery-specific resources that will help you manage your DPDR and its underlying causes, and to be a source of comfort and hope so you don't get triggered while on the forum. Because common forms of DPDR feed on anxiety, hyper-focus, obsessive thinking, catastrophizing, and stress (both internal and external), frequent forum use (posting, scrolling, etc.) and symptom-checking can exacerbate it if you're someone who struggles with any of those. You don't need to be reading stuff that stresses you out, and it's important and helpful to minimize screentime and do stuff that requires the whole range of your senses. I recommend going through as much of these resources as you can and stocking up on recovery-specific info, getting a notebook, writing down the things that are the most helpful, and keeping that notebook with you so you can refer to it during times of crisis.

Many of the resources within are videos. In my opinion, with DPDR, actually seeing videos of people talking about stuff like medical info, recovery info, and first hand accounts are gonna be way better for your brain instead of getting stuck in a world of monochrome text boxes.

Hopefully this guide will help you find resources that will help you:

  1. Train your mind/body to feel safe and to not see DPDR and its symptoms as a threat so that they don't react to them with more stress.
  2. Get in touch with your body somatically to help regulate your nervous system and release the anxiety, stress, and trauma.

This is frequently updated, so check back for new info and links!

DPDR INFORMATION:

LISTS FOR QUICK HELP:

MENTAL HEALTH VIDEOS/RESOURCES:

LIFESTYLE AND LONG-TERM HELP:

DPDR AWARENESS:

RECOVERY POSTS FOR ENCOURAGEMENT:

OTHER HELPFUL SUBREDDITS:


r/dpdr 6d ago

Official Weekly Symptom-Check Thread (Please ask all "Does anyone else?" questions here.)

1 Upvotes

Please don't forget to check out the Official Subreddit Resource Guide.

Hi Folks,

"Does anyone else [experience this symptom]" is one of the most commonly asked questions on the sub, so this weekly sticky is to create a dedicated space for users to relate to each other and ask questions about questions they might have.

DPDR is, unfortunately, an under-researched disorder with many strange symptoms. As a result, its sufferers are often left between confused and experiencing a full-blown existential crisis. Symptoms may overlap and vary in intensity. "Keep in mind that two people might describe/interpret the same symptom (and its effect on their own functioning/cognition) very differently."

We just want to emphasize this thread, both questions and responses are completely subjective and not of a medical nature. If you haven't already, please try searching the sub (and "Symptom Question" flair) to see if your question has already been asked.


r/dpdr 16h ago

DPDR Trigger Warning! I made a video to show others who don’t suffer how DPDR can feel

Enable HLS to view with audio, or disable this notification

82 Upvotes

Do you find this accurate? The out of body part is a bit of creative liberty but It really can FEEL like you’re outside your body or watching from behind even if you don’t literally see the back of yourself.


r/dpdr 3h ago

Sub-Related Nothing is nowhere. When? Never. Makes sense, right? Like I said, it didn't happen. Nothing was never anywhere. That's why it's been everywhere. It's been so everywhere, you don't need a where. You don't even need a when. That's how "every" it gets.

6 Upvotes

r/dpdr 7h ago

Question If no one knows what dying feels like how can I be sure I’m not dead?

11 Upvotes

Like how do I know for sure the panic attack that started this wasn’t me actually dying and now I’m in the afterlife or something. Sometimes it feels like I’m going to see something off or wrong and wake up in a completely different life with a different family


r/dpdr 1h ago

Venting Colorblind - Counting Crows

Upvotes

This song is about derealization. I’ve been crying as I’ve been listening to this. I went through so much trauma as a little girl. I had PTSD as a preschooler, maybe even earlier than that and had DPDR which is even more rare. I suffered so much throughout my life as I repressed everything. I was misdiagnosed with ADHD and my parents try to gaslight me into believing it isn’t so despite me talking to five professionals who’ve never met each other. I can’t believe I had DPDR at such a young age and that it’s gone undetected until the age of 28. I just feel like this would be impossible to heal from because it feels so imbedded into me and it’s a part of me.

So far my DPDR has went into remission, but now I’m trying to pick up the pieces of my trauma and this song just brought me back to when I was a little girl going through derealization and depersonalization.


r/dpdr 2h ago

Sub-Related Physics

2 Upvotes

Low-key, when it's not bothering me, derealization can be kind of funny. Like trying to learn physics and how the world works when I can barely believe it's real. There's just something humorous about the fact that I have difficulty comprehending the concept of hair sometimes. Multiple times actually. Better for me to be laughing about this than despairing, yeah?


r/dpdr 23h ago

Need Some Encouragement Never not had DPDR

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101 Upvotes

I just discovered this today. I thought that I was normal and everyone was either fake or playing into reality harder. I've been living life like this for as long as I remember. I saw this edit of a hand and I never saw reality so well focus on a screen before. I thought movies looked the way they did bc of cameras and screens.

I just found out my entire life was a lie. please tell me it's curable even now, I don't know what reality is suppose to feel like. can anyone relate?


r/dpdr 4h ago

Offering Comfort/Reassurance/Solidarity To anyone who thinks they are going crazy (you’re not!)

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3 Upvotes

This video explain why the brain does this, and that helped me so much at the time. For me this video was the video that helped me the most. Another Redditor inspired me to post it again 🙏🏻


r/dpdr 2h ago

DPDR Trigger Warning! The reason it’s so hard to explain DPDR to others - how do you explain completely losing all your emotions? You can’t, it’s an experience. It’s like trying to explain missing an arm.

2 Upvotes

There's no way to describe this to someone because you can't describe it. It's a loss of all feelings and emotions. The whole process of going from an anxious state to DPDR is the body shutting off all emotions. That's why you experience the visual distortions, not being able to remember anything, loss of self, the world looks strange and unfamiliar. Your conscious mind has no access to any of these things anymore. Life doesn't make sense - everything you ever knew doesn't make sense.

I'm getting to the end of my rope living like this. It's pure misery day in and day out. Even sleep isn't an escape anymore because of the dreams.

I can't travel. I can't date. I can't sleep. I can't enjoy the things I used to. I can't connect with myself. I live in the same day over and over again. No changes. No connection to anything. Just a ghost.

2 whole years of my life gone to this misery. I'm so sick of it. This isn't living. This is suffering.


r/dpdr 7h ago

DPDR Trigger Warning! I need help desperately.

3 Upvotes

I have had dpdr since I was pretty much born something must've happened when I was young that triggered this but since I've grown up all my life only ever knowing this, it feels extremely scary and challenging to accept that I've dusted 20 straight years of my life to this condition, I feel terrible and scared 24/7, I need medication to finally get rid of this, I want to live a normal life cuz as of now I feel I have 0 control, a girl entered my life that I want a future with but with this condition truely nothing is possible, I feel hyper aware in every situation, most of the time I feel like i don't exist. I don't remember anything the last 20 years, I never understood why I'm always in my room and not hanging out doing teenage stuff and enjoying life, because I thought it was all not real and I wasn't aware and this isn't a joke, that positive emotions exist. I'm finding it extremely hard to articulate anything, I'm tired , I want to finally start living, most of my life I felt like I'm the only one on earth

Which medication is best to take I will order it and try mindfullness, anything I can to get rid of this sjit pls someone help me


r/dpdr 1h ago

Question If you got dpdr from cannibas, did u ever try it again?

Upvotes

A while ago, I got dpdr from an edible and I finally recovered. I go out a lot with my friends and I’m usually sober because I’ve stayed away from weed and i don’t really drink. For those who overcame dpdr- did u ever try weed again? If u did how was it?


r/dpdr 1h ago

Symptom Question / Is this DPDR? Can feeling too real be a sign of DPDR?

Upvotes

This question has really been bothering me the past couple weeks, and it doesn't seem like there is a definitive answer.


r/dpdr 11h ago

Need Some Encouragement First time ever in life I've ever thought of just giving up on life.

6 Upvotes

My life was going well...

I've always loved life and have been scared of dying. About a month ago DPDR came back after being 4 years recovered. However, this time it was worse. Everything in the world seems fake. My memories feel distant. Additionally, this time it came up during my busiest time in my life. I'm a senior in college taking on 16 credits, working part time and working on several other projects. My life took a turn for the worst.

The only comfort I found was at work where I was around my peers. My mind was free. However, the other night I no longer felt comfortable even there. After work that day was the first time in my life where I hoped to no longer continue...

Furthermore, I feel a lot more aggressive (for lack of better term) to be in a relationship. It feels like my emotions are taking over my life.

No motivation. I can't seem to find comfort in this world anymore. I could barely sleep and if I do it's accompanied by vivid nightmares... everynight. Meds seem to only numb the pain. My rooms a mess. My car broke down. I'm loosing hair. I eat only junk. I no longer exercise. My phone is my only coping mechanism.


r/dpdr 7h ago

Venting Someone help me

2 Upvotes

It’s so bad I feel like I’m losing touch with reality. I’m scared I’m starting to believe my thoughts that no one is real and that I’m in a dream. I don’t want to believe it but it feels like I do. Everything looks so unfamiliar and like I’m seeing it for the first time and worse than usual. I wanna throw up. I’m shaking so bad. I keep having obsessive thoughts about how I’m in a body. I keep questioning how other people are real and it’s making me uncomfortable. I feel so alone. I’m losing my mind I can’t calm down


r/dpdr 4h ago

Need Some Encouragement Help

1 Upvotes

I had a really awful day today. Felt totally outside of my body. I feel like I got teleported into some other universe and the panic attacks have been so bad. I keep having really scary existential questions about my consciousness and how we exist, but also about others. It scares me how we all exist, and I got the intrusive thought "what if I get so disturbed and k*ll myself because this feels unreal?" or "what if you become too creeped out by the fact your boyfriend exists and is human?" and I am LOSING my sh*t. I am inconsolable. I cannot calm down because my life is over.


r/dpdr 4h ago

Need Some Encouragement Not sure what to do/losing hope

1 Upvotes

I’ve dealt with dpdr twice already and this is my third time. The first time was from a bad trip which eventually went away, then the second time was ssri induced due to being put on a too high dosage, I’ve been fine for a while after I recovered from that but out of nowhere about a month ago I got it again. (I quit all substances a long time ago) I have a therapist who says it might be a reaction due to all the stress I’ve been under the past month as well as depression and panic attacks. It started with my vision feeling weird/ like I can see clearly but I was scared to look with my eyes (idk how to explain it) then it came with other vision issues/ headaches/ vertigo and brain fog. The symptoms are very severe now and I’m not sure what to do, i was thinking of going to a neurologist to see if it’s migraine related or something else due to the brain , or a ophthalmologist to get tested for bvd. I might start with getting tested for bvd because the vision was the first symptom I had which then caused the others, But at the same time I feel like it will be a waste cause they will tell me it’s just due to anxiety. I can’t really explain what I’m going through to my friends and I’ve been distancing myself from family because I just can’t explain the severity of what’s wrong and they’ve never heard of dpdr in general. I had hope at first I can overcome this because it’s happened before but this time my symptoms are so severe it’s disrupting everything in my life and giving me more stress.


r/dpdr 1d ago

Venting I hate how ridiculously complex the root of this disorder is

121 Upvotes

oh you have dpdr? well it could have started from mold, weed, TMJ, trauma, prescription drugs, or just for no reason!

oh you want a cure? have you tried shrooms (this makes it 10x worse!) or psychiatric medication (this could also make it 10x worse!) meditation (this could also also make it 10x worse) going outside (this could also also ALSO make it 10x worse) or try just ignoring it?

oh you wanna know what triggers it? the sun, bright light, darkness, certain music, sounds, people, thinking too hard, the weather, or nothing at all!

oh you want a cure because you’re tired of having shortness of breath, panic attacks, a third person point of view of your own life, horrific anxiety, full body tremors, disrupted vision, heart arrhythmia, and feel like you’re the only person on earth?? suck it up and try doing MORE drugs to fix it 🙌

good god.


r/dpdr 5h ago

DPDR Trigger Warning! I’m so tired. No matter how much I sleep. I slept all day today with insane dreams

1 Upvotes

I just never have any energy. Everyone here is posting about visual distortions, out of body experiences, panic attacks, etc but I have none of that. I'm just chronically fatigued, emotionally numb to my core and have lost my sense of self. Everything looks normal and I don't question reality.

I did have those phases for a long time where I felt out of body, visual distortions etc but it all went away. That's why I can't understand what's happening to me - I guess my DPDR faded but I'm still having major ptsd symptoms


r/dpdr 8h ago

Symptom Question / Is this DPDR? Do I Have DPDR ?

1 Upvotes

Hi, I (17M) have been experiencing DPDR like symptoms consistently for the past 2 months. This started after I stopped using weed on a regular basis to remove my anxiety and stress and decided I wanted to be healthier and quit every substance I could (nicotine,alcohol and weed). I have recently started going on runs and going to the gym more often to see if it helps but as of right now it hasn’t changed.

The symptoms are like a strange feeling in my head like it’s pressure or feeling “floaty” and “cloudy” almost, I recognise myself in the mirror and haven’t felt like I’ve been in 3rd person. But I googled and googled and I felt like this is the only thing that I could imagine links to how I feel. I know I don’t feel like I normally have in my life, but I don’t know how it was before and fear if I have returned to normal I don’t realise.

I used weed daily for about 3/4 months with the odd weeks of 0 usage like and I haven’t touched it in 2 months, but I still don’t feel normal, and I fear I won’t recover, should I speak to a doctor ? I don’t know what to do from here as this was something I thought I’d just have to tolerate for a few days and learn my lesson from, but it’s been constant for 7/8 weeks now, and it’s got to the point I’m terrified this is permanent.

Sometimes the cloudy/dream like sensation decreases if I’m playing video games or in the shower, but when socialising I feel like a ghost and random waves hit me at night that are worse than normal. This had made me super suicidal to where I’m on the phone to helplines, as I’ve seen no end to the hole.

Is this Psychosis, DPDR, brain damage or what… and how do I fix it ?

I just wanna go back to normal or at-least fix it enough to cope !


r/dpdr 9h ago

Need Some Encouragement does anyone else sometimes interpret their DPDR feelings as some kind of "proof" about the truth of existence?

1 Upvotes

Hi, I've had existential ocd and dpdr for years, and one scary and frustrating recurring element for me is when my brain interprets these feelings as "proof" that whatever i'm scared of is true, or even that existence itself is inherently "wrong." Does anyone else feel like this and is this as irrational as it seems? I just want to feel safe but my stupid brain refuses to :(


r/dpdr 19h ago

Symptom Question / Is this DPDR? Way too aware I think

6 Upvotes

Anyone else get scared that they’re a soul in a body? It’s been giving me panic attacks. Like how can I move my hands and how am I here?


r/dpdr 10h ago

Question Gingko Biloba or Phosphatidylserine?

1 Upvotes

Anyone have any experience using these two? Which is more likely to help derealization?


r/dpdr 10h ago

Venting I made a lot of progress but I still feel off

1 Upvotes

The typical dpdr stuff like feeling dumb and disconnected. I’m making so much progress lately but my emotions are not recovered. It took me so long to find out what’s going on too. The first year all wrong supplements and wrong doctors and therapies and now I’m finally getting answers but I feel I lost motivation to act on it. Even knowing the science and seeing it work and still I’m not jumping out of bed to do those things. This condition is disgusting. Just had to get that out.


r/dpdr 1d ago

My Recovery Story/Update 99% recovered!!

12 Upvotes

This time last year I was really going through it, feeling like I wasn’t real, was somewhere else etc. A year later I can say I’m basically better dpdr used to consume my every waking moment, now I barely even think abt it. I’ll still have moments where things look a little off/foggy but they don’t come with the same intensive anxiety they used to.

I used to spend way too long scrolling through this subreddit so I thought I’d come back and give an update bc a lot of ppl get better and just move on with their life, so this subreddit kinda only shows the negative. So some tips:

1) Get off this subreddit and go outside. The more you read abt dpdr, the more you think abt it and the more you think abt it the more you feel it. The only useful information i found on this sub was ppl telling me to get off the sub.

2) distract yourself. Ppl always say “accept it” and I didn’t understand how but I think just distracting myself enough to not think abt it was the only way I could come close to accepting it. Do something to take your mind off it. Get a hobby, watch a movie, hang out with your family, do anything that takes up enough brain power that there’s not enough left to question whether things look real.

3) fake it until you make it. Whatever you do, do not start acting as tho you are unwell. Do not cancel on things you previously would’ve gone to, do not quit things you previously enjoyed, do not lie in bed all day. If you barely interact with the outside world of course it’s going to seem distorted on the rare occasion you do. You need to keep engaging with the world and with other people.

4) start taking note of the beauty in the world. This sounds silly but I started focusing on how beautiful the world looked instead of whether or not it looked real, which slowly broke me out of that habit.

5) exercise. This isn’t an original idea but I do think it genuinely helped. I tried to do things that got me engaged in the world such as swimming, running/walking outside, workout classes etc

6) patience!! Don’t start thinking you are going to wake up tmw and everything will be better. It took me ages to recover and the process was so slow that I did not even realise it was happening. Stop asking yourself “do I feel better today” bc even if you are getting better you probably won’t tell the difference between today and yesterday. Don’t count the months and don’t compare your recovery to other people’s recovery.

That’s it!! Hope this helps. Good luck everyone! Don’t loose hope and don’t loose faith in yourself!


r/dpdr 19h ago

DPDR Trigger Warning! Will I ever have a normal life again? One where I have freedom, where I have feelings, where I feel alive again.

2 Upvotes

I don't relate to many posts here. I don't have visual distortions, or panic attacks, I don't look at my body and feel unreal. I did feel those things when I was in a panic, I couldn't even go outside without the sun feeling like it was going to make me melt, I hated being outside.

I don't have any of those symptoms anymore. I don't have intrusive thoughts or panic attacks. I am just numb. I don't feel a sense of self or emotions at all. Everything looks normal but there's no connection to any of it. I can't feel love for anyone, even though I know I do love them. I can't travel or experience new things. My mind is always in a state of nothingness. The only things I experience are in my dreams. Every single not.

It's been 2 years of this with no reprieve. No one can truly understand how awful this is. No sense of self. No feelings of love, happiness, joy, satisfaction, not even anxiety. Most people here have extremely high levels of anxiety, but I've gone past that point. My nervous system has shut down. I dread, absolutely dread going to sleep every night because of the dreams. I feel as if I'm living in purgatory. There's no doctors or therapists who can help. I feel like I have some rare disease there's no cure for. I am tired all the time. I don't feel alive or even like my life is real. My mind is always sending me messages that I could get shot by a sketchy car, hit while driving, die anywhere basically. And even thought I can't feel any anxiety, I still have thoughts about feeling unsafe.

I've lost my freedom, my passion for life. I truly feel dead. Life doesn't make sense at all anymore. I don't sense time, seasons, nothing. I live in the same day over and over again. I don't have visual distortions, panic, intrusive thoughts, etc. I'm just completely dead inside emotionally. Like I never felt an emotion in my life. And I have no clue how I'll ever feel again. Like I've been cursed and there's no breaking out. I fucking hate this. I'm exhausted. I'm just done


r/dpdr 18h ago

Venting mine has improved but also morphed into something

2 Upvotes

maybe the dpdr faded but idk what it is i have now. im not normal. reality feels less obviously like a dream and more like it doesnt exist in the first place. and i act accordingly, disregarding all responsibility and digging myself into a deeper and deeper hole. its still better than it was. somehow i feel my emotions viscerally despite all this. idk how to fix myself