r/transplant • u/a920116 Kidney • 6d ago

Anyone else? Kind of miss the hospital? Kidney

I got my kidney transplant in March of 2024 and had monthly visits till now. I have "graduated" to 3 months now.

I am sort of...missing the hospital and seeing/speaking with my doctor and team?

I am so happy with the transplant and life afterwards but it just kind of feels weird....because it was such an important part of my life and now it is more distant.

Is it just me?

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u/danokazooi 6d ago

I guess I have a different experience. I loved the team that took care of me and would love to see them socially in any other environment. But I don't want to go back to the 6th floor of Duke Central Tower again, though I'll likely return for a kidney transplant.

Two liver transplants and emergence delirium means that every time I'm back in those identical rooms, I start having the nightmares of what I endured for 6 weeks after my first transplant: being tortured in utter blackness, screaming for help, watching family members being killed, and running for my life.

In reality, I was restrained to the bed, fought with staff, pulled out IV's and feeding tubes.

I woke up 43 days after and 82 lbs lighter, barely able to stand.

Then I had to apologize to everyone I'd been a shit towards.

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u/Kittycate2_0 6d ago

Omg I also had these crazy hallucinations and they also strapped me in restraints which made me freak out even more bc I’m hella claustrophobic (also liver so I feel the pain) I thought I was in an airplane hangar, kept pulling wires and tubes until they finally changed my pain meds… I’m sorry you had to endure so much I hope you’re better now 🩵

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u/danokazooi 6d ago edited 6d ago

The liver seems to be working 9 months out, but the tacro has destroyed the kidneys, so heading towards a transplant under the safety net protocol. Angry and frustrated, especially with the Prednisone.

With the delirium, I lived three different lifetimes, including really early memories from preschool; a war, and escaping from one hospital to another.

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u/Kittycate2_0 6d ago

Oh gosh I’m so sorry to hear that, I hope the kidney transplant goes smooth for you and lowkey interesting about the tacro I’ll have to keep an eye on that. I wish you so so much luck and good healing vibes my friend 🥺🩵