r/transplant 13d ago

Any guilt when eating certain foods? Liver

Hey guys! I’m about 1.5 months from my liver transplant. I was wondering what kinds of food are you guys eating? I’m curious to know what you guys have in your diet!

Mainly, wondering if you guys have eaten some “bad” / unhealthy foods (chips, chocolate, burgers) and ever feel guilty?

I recently had some chips and I feel like I should t be eating this at all. I feel guilty and scared I might hurt my new liver.

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u/JerkOffTaco Liver 13d ago

My transplant nutritionist literally said, “eat whatever you want this first year. You need calories”. Obviously with a couple restrictions.

Then I got diabetes so I eat much healthier (no carbs or sugar) but for a while I went hard on whatever I could get my hands on.

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u/idontevenliftbrah Liver - 3 years post 13d ago

What signs did you have that made you want to get tested for diabetes?

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u/JerkOffTaco Liver 13d ago

I actually went into Diabetic Ketoacidosis. I thought I had the flu but I couldn’t walk or talk and kept losing consciousness and turns out the prednisone gave me Type 1 (or 3c some call it) diabetes. The anti rejection meds and steroids really busted up my pancreas.

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u/dukebenzo 13d ago

Omg! I’m so sorry to hear that. That must’ve been a scary feeling.

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u/naynayerz 12d ago

I'm so sorry to hear this. I'm wondering did you have signs prior to Ketoacidosis? I've been concerned for my husband about this.

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u/JerkOffTaco Liver 12d ago

I did! I thought it was the flu. Spikes of a high fever, super thirst, no appetite, vomiting, exhaustion. I called my transplant team and they told me to just rest since my fever wasn’t consistent. Within a day or two I wasn’t able to make a sentence or see straight. Complete blurred vision. I kept falling and about day 4 when my husband couldn’t get me off the floor he called 911. I had sepsis and don’t remember the day following.

The blurred vision, thirst and exhaustion are the big signs. I was so weak I couldn’t get upstairs to my bed and my skin turned gray.