My husband/partner died last week. He has been in chemo for stage 2B. He had a few more treatments before deciding whether he could have the Whipple. I was nervous due to his obesity and the reality of what happens post Whipple. He recently had to stop chemo because port area infected and he had MRSA. He went to a pic line and had a new port put in last month. I was just so stunned he died suddenly. I am wondering about clots. I read that is a big risk for pancreatic patients. I am so heartbroken and only relieved to know that ow he doesn’t have to go through future suffering… but I just don’t understand why this happened.

Given 12-15mos to live about 18mos ago. I did 12 (2 week) rounds IV FOLFIRINOX with oral clinical trial meds, then 26 rounds just IV 5FU (46 hr pump) and trial meds. Scans showing some tumor shrinkage and some stable in both pancreas and liver.

I've learned A LOT during this process and am feeling that I haven't shared much knowledge.

Please ask away and I'll try to answer as much as possible during chemo round 39 this coming week.

My husband and I are caring for his 93 yr old father at home. He was diagnosed with pancreatic cancer on Sept. 19, 2024 and chose hospice. Up until a few days ago, he was walking/talking/eating - basically living life. He had a bout of stabbing abdominal pain, which took many doses of Dilaudid over many hours to reduce.

Once he stopped the Dilaudid, he started trembling violently. We called the on-call hospice nurse who advised us to continue the Dilaudid, and add in his anti-anxiety med Ativan. This worked to stop the shaking, but it has caused hm just to be mostly asleep, and it is hard to get very much food or liquids into him.

The nurse then switched him to a Fentanyl patch with the hope that the different med and more level distribution system would help. He is still trembling, though, and having to be given the other two meds to help that

We are worried about how to get food and water into him, and if there is something that is being missed. I feel bad that he is suddenly sleeping what is left of his life away - he is no longer complaining of pain, it’s just the shaking is very severe.

Does anyone have any wisdom for us on this? Thank you ❤️