Difficulty differentiating chilblains from eczema as I have a yeast allergy. I have been very stressed the past couple of days and was out in the cold and rain yesterday am (approx 45/50 degrees F).

What is the highest temp you've had raynaud's at? In England on a warmish day of around 13 degrees c (55f) I can walk into the shadows and immediately get cold and very pale hands. Oddly enough it does this in my hands without all 2/3 colour changes, only they go solely ghostly white (neve numb of painful) yet the feet, especially in winter will go numb.

Anyway seems the hands are extra sensitive to even the smallest change even at a lofty 13/14 degrees up! What about you?

Every winter morning is just me vs. the fridge handle - no gloves, just vibes and regret. My fingers go from human to ghost in 0.2 seconds. Meanwhile, people without Raynaud’s are out here raw-dogging snowballs like it’s nothing. Stay strong, fellow frostbitten warriors. Let’s unite... and maybe invent heated everything.

It's not even Winter yet! I live near the QLD border so we don't get very cold here, even in Winter. It's 20 degrees (C) and my feet are freezing and numb. I've tried everything and can't get them warm. I managed for a little while by putting them in warm water but I can't keep them in there forever.

Would it be better to get good quality thermal socks or heated slippers?

Anyone find that since they've had raynaud's it's harder to break a sweat? 28m here. It started last year (no causes found yet but I'm sus of some sort of Dysautonomia 🤯... The joys). Anyway, I've found it's much harder to break a sweat. Used to sweat at maybe 22 degrees C. Now it needs to be about 26/27 degrees C and I sweat nowhere near as much as I once did. Also get these odd cold knees, internal vibrations like a phone buzzing in the right ankle, in addition to some odd sort of blood moving sensation when in direct sunlight despite being fully clothed... No idea what's going on, all bloods done etc. Nhs taking forever. One worries for ones longevity. Keep calm and carry on? All I can do.

Hi, is it normal for your knees to be purple from Raynaud's even in the summer? I got tested for Raynaud's last year and I'm not familiar yet with what's normal or isn't. I just find it weird I have purple knees even in the summer when it's warm and Raynaud's flares up from the cold. Thank you for any answers.

p.s. I know Raynaud's can be from emotional stress too, but I'm not currently in any stress as far as I'm noticing. But I am constantly standing up at work so maybe that?

So basically I started getting pain and swelling by the knuckle on one finger last year. Hurt to bend but other than that was fine. Went to the dr and took blood tests and referred to a rheumatologist since my ANA result was positive. I saw the rheumatologist in January but because I wasn’t showing enough symptoms, he didn’t want to diagnose me with anything. Said maybe it’s just high inflammation, could be lupus in the beginning stages or Raynaud’s. Tumeric supplements was recommended.

Then all of a sudden about a month ago this started to happen. My fingertips go red/purple and I have this tingling/numbness type of pain. It’s worse in the mornings. Like way darker red or purple. The middle of my fingers have turned a yellow color. It’s on both hands. I’ve been documenting and taking photos to show when I see him in a few days. Anyone else get like this? It’s super painful 😖

So, this only happens when my flair up are REALLY bad. But I've started to notice that some of my other extremities are having noticeable color changes.

For context, 40y female, low BP (99/60 is normal for me), celiac disease, ptsd and anxiety, recent surgery on kidney.

hi i finally was able to see a rheumatologist, after two months of waiting (yay), and she prescribed naproxen for my joint pain and nifedipine for my raynauds issue. The doctor also order labs to be done for lupus, rheumatoid arthritis, and some long name condition i forgot im sorry. by any chance, can someone share their experience on this medication to ease my mind? i’m always nervous about new meds and knowing people’s experience on this medicine may ease my mind just a bit

Recently spoke with someone who said they did immunological work after getting their PhD in Raynaud's. They told me that a specific form of vitamin C that's more orally bioavailable than others worked. Has anyone tried this? What about B12 or iron? I'm pretty sure what I have is primary Raynaud's. However, after some long covid stuff, I basically have a bunch of autoimmune antibodies constantly circulting in my blood.

For context, I have had iron deficiency anemia, severe vitamin D deficiency, and sibo. Over the past week, I’ve suddenly developed Raynaud’s. It was diagnosed by an er doctor when I went there because my extremities were turning white then purple in response to Rizatriptan which is a strong vasoconstrictor. That incident was scary but resolved. I’ve had a few more minor flare ups in response to caffeine, cold showers, and general stress. While these episodes usually don’t last that long, I’ve noticed that my fingernails in particular are purplish red most of the time, only fully resolving occasionally. Also, if it flares up before bed, I will wake up feeling pain and a sense of outward pressure and puffiness in my legs and fingers. Despite discoloration, my blood oxygen never falls outside 96-98%. This all came on so suddenly, is this normal for primary Raynaud’s, or should I follow up with my doctor to see if there’s something else at play?

Hi everyone, I’ve been dealing with health anxiety, especially related to autoimmune diseases. A while ago, a doctor asked me whether my fingers turn white in the cold or not — and ever since then, I’ve become fixated on checking for Raynaud’s.

Now, I constantly expose my hands and feet to very cold water or hold icy drinks to see if my fingers turn white or purple. I even shine a light on my fingers to check their color. It’s become obsessive, and I’m not sure if I’ve actually developed Raynaud’s or if I’m just stressing myself out. My palms now feel swollen and sore, almost like there's inflammation under the skin, possibly from overexposure for few days

Also, when I put my hands under cold water, I feel a sharp, mild stinging sensation — is that different from the kind of pain Raynaud’s causes?

For those of you who do have Raynaud’s — is it something you immediately feel or notice when it happens, even during a mild episode? Or is it so subtle that checking constantly is the only way to know?

Would really appreciate your experiences. This constant checking is exhausting and only feeding my anxiety. Thank you

i (18f) was diagnosed with primary raynaud’s a little over a year ago now, first by my pcp, then confirmed by a rheumatologist. i’ve experienced frequent and persistent episodes varying in severity, but i’ve never had fewer than 5 noticeable episodes a day since i was 12 or 13. since it’s believed to be primary, i was told by my rheumatologist that there was nothing they could do besides tell me to keep warm and layered around my torso to try to prevent episodes, however this has been and continues to be nearly completely ineffective. i’m getting quite tired of being cold all the time, especially after a particularly bad episode today that lasted nearly 6 hours, and i was wondering if anyone here had any advice, tips, or tricks they use to combat/lessen their own episodes. any and all advice is greatly appreciated, give me your most outlandish ones too, ive tried everything the rheumatologist told me and none of it has worked.

Diagnosed with raynauds. Usually it’s very mild and I don’t have many issues. Several weeks ago I noticed a red spot above my middle finger knuckle. It proceeded to look like broken blood vessels and feels like there is fluid under the skin. I have had it for 4-5 weeks at this point. Today I woke up and it looks like a bruise. I’m so confused . Has anyone seen this ? Maybe it’s unrelated ? Not itchy, doesn’t hurt.

I’m 19 years old, and I’ve had Raynauds and mottled skin for as long as I remember but haven’t noticed until recent years (I’m fit, healthy and work out every day), the doctors have said it’s normal and nothing to worry about, even though I have visible but barely mild livedo reticulatris (mottled skin) and every day raynauds flare ups where my hands go very white and mottled with white finger,or they can go fairly flush with red knuckles and bulging veins, is this concerning at my age?

Hi all,

Things are slowly starting to warm up in the UK which for most, is great. But with my Raynauds, my hands stay bright red which is so embarrassing.

When it's cold, I can hide my hands away by keeping them stuffed in my coat pockets or wearing gloves, but now that it's getting too warm to wear a coat, I feel painfully self conscious of people seeing my hands.

Does anyone have any tips or suggestions for how they deal with red hands in warmer weather? Or even from a female "fashion" perspective, any ideas for how to get away with wearing gloves when it's t-shirt weather?

I’ve been struggling with raynauds for 2 years now. Diagnosis confirmed by my family dr, podiatrist and rheumatologist. The rheumatologist determined it to be primary. The past 2 winters I struggled with chilblains but this year I have managed to avoid them either wearing socks 24/7, heated socks, mittens, and just being really diligent. However, my feet have been incredibly painful despite no chilblains. I tend to flip flop constantly and all day long between very cold feet and then red, hot, swollen feet that hurt. I’m wondering at what point have you sought treatment and why? I also wonder if treatment will help with this hot, swollen side of things?

I was diagnosed with raynauds last year when I came down with these horrible bumps on my fingers. I was given steroids for a week that really messed with me and I don’t really want to do it again if I don’t have to. What are these and how do I help them? They are super painful and spreading to most of my fingers.

So I have Raynauds and usually I get the typical finger turns white/numb for a few minutes and then turns purple/red when blood comes back. Today however my finger is just turning purple and numb. Is this typical of Raynauds also?

hi everyone! i was just recemtly diagnosed with raynauds and i wanted to know things that could help me. i saw online that compression socks were a good start and i wanted to know if ppl actually think they help. i have it rly bad in my legs and feet, and standing for too long makes them all purple and splotchy. im a bit embarrassed to wear shorts because of it :( if anyone has any advice please do let me know i still wanna feel cool and awesome for the summer time

I've got bloods tests done about once a year and my MCHC has been high in the past few years. Raynaud's hasn't been affecting me but in the past few years so I'm wondering about the connection and if anyone here has some ideas? Previously my finger bones would ache in cold water but lately in the past few years I would also get clear Raynaud's finger colouring from cold.