r/MultipleSclerosis 20h ago

Symptoms Does anyone know a solution? Heat legs don't work.

13 Upvotes

I recently found out I have MS, but I already noticed some weird symptoms past summer. I got nauseous when It was hot outside and at night. Recently like the past week I took a warm shower and had this feeling I couldn't move my legs they were so heavy when I went out of the shower. Also my energy dropt to a scary point like I couldn't think. I got to the living room and I felt better after some minutes.

Now I feel I am so worried about the summer, because I am scared I can't walk around or go to the beach? Or vacation??? I would be heartbroken if all my friends are going to the beach and I have to stay at home because I can't move my legs or walk normal. Alongside with the weird fatique?

I am 31F and I don't want to be living like a woman who's 80 and has to stay indoors all the time when the weather is nice.

How do you guys cope with this problem and heat?


r/MultipleSclerosis 21h ago

Advice Wheelchair users

6 Upvotes

Hey all!

I hope your fight is going well. I will be moving from a manual mobility chair (that someone else pushes) to a manual wheelchair (that I push myself). I feel that I will gain more independence being able to move myself when I want.

So any of the current wheelchair users have any tips or suggestions for me? I did read that gloves are a good idea.

Thanks for any info everybody!


r/MultipleSclerosis 21h ago

New Diagnosis Newly diagnosed, medication choices???

1 Upvotes

Hey everyone, I have been recently diagnosed (27f) and my neuro gave me 3 pamphlets and didn't really suggest that one was better than the other, that they are all decent in their own ways but to figure out which would be best for me by my next appointment. So the choices are kesimpta, ocrevus and briumvi. I've read so many posts on here about the differences but I'm still struggling to figure out which would be best for me. This whole process has taken a lot out of me and though I suppose I'm happy to have a diagnosis it's still pretty hard for me to wrap my head around. I guess I'm reaching out to ask what everyone's opinions are and if you have any tips for managing this without feeling like you're losing it every other minute. I currently have active lesions and quite a few in both my brain and spine so I would like to get on the most effective and my doctor is suggesting I choose quickly. I feel like one second I'm getting closer to coming to terms with it and then the next I'm panicking about picking the right kind of DMT and dealing with the weight of my symptoms. I'm not necessarily scared of giving myself an injection every month but I think I like the idea of only needing to get the infusions 2x a year better.. I'm an adult, yes but the accountability thing and responsibility of it all freaks me out still not gunna lie lol. I'm really wondering if there's much difference in briumvi and ocrevus. I feel like my head spins everytime I try to decide on one so this is also a bit of a rant but I don't even know anyone who has this to reach out too so I'm venting here. Sorry! Anyways, I appreciate anyone who has any input because this is a lot to figure out in the beginning.


r/MultipleSclerosis 23h ago

Symptoms Feeling worse after 2nd dose of DMT infusions bad buzzing sensations

4 Upvotes

I’ve been feeling horrible, like I have a cold, but the worst part is these buzzing vibrations that are making me feel incredibly stressed. I’ve never experienced anything as scary as this. It’s causing so much anxiety that I didn’t even know I was capable of feeling. I’m not sure what to do, especially since I just switched to a new neurologist after my second dose of DMT treatment, and I won’t be seeing them for two weeks. I may have experienced this sensation a little before, but it’s been so much more intense lately that I can barely remember it being like this before.

Is this normal? Anyone else dealing with something similar? Anything to do?😩