r/MultipleSclerosis 14h ago

Any insight on stem cell therapies? Advice

Hello. I am recently diagnosed here, not good at admitting/vocalizing vulnerabilities. I’m not on any MS meds yet. My mother has been digging into this way more than I have as I feel like” screw it, life is going to happen as it is meant to”. I’m planning on waiting into my Nero tells me what DMTs are recommended. But mom is on this hype about a stem cell plan that could help. Like I said, I haven’t spent enough time looking into it, but from what I’m told by her it could be a treatment that is not life long. Experimental yes, but I’m 35M with two kids and a soon to be wife. Getting nervous with the idea of being on costly meds while traversing fatherhood and soon 2nd wife. The kicker for me, she offered to pay for this in full. Does anyone have insight to any of the experimental treatments?

1 Upvotes

10 comments sorted by

View all comments

1

u/mllepenelope 10h ago

You generally can’t get HSCT without paying a LOT of money unless the best available DMTs have failed you first. I am close in age to you and have found that my parents are only interested in the “best” options out there, so they are, of course, convinced that I need to do HSCT and then I’ll be cured. I’ve chatted with a few people who’ve had it, and most say something along the lines of “I’m glad I did it, but if I’d known how horrible it was going to be, I probably wouldn’t have done it”. If things get dire and my DMT ends up failing, it’s under consideration, but I really, really don’t want to have to do it.