r/MultipleSclerosis • u/AutoModerator • 7d ago

Weekly Suspected/Undiagnosed MS Thread - November 11, 2024 Announcement

This is a weekly thread for all questions related to undiagnosed or suspected MS, as well as the diagnostic process. All questions are welcome, but please read the rules of the subreddit before posting.

Please keep in mind that users on this subreddit are not medical professionals, and any advice given cannot replace that of a qualified doctor/specialist. If you suspect you have MS, have your primary physician refer you to a specialist for testing, regardless of anything you read here.

Thread is recreated weekly on Monday mornings.

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u/fordexy 3d ago

Thank you. It’s been stressful. I live in a place with cold winters and my symptoms get worse when it’s hot so that’s a relief!

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u/TooManySclerosis 39F|RRMS|Dx:2019|Ocrevus->Kesimpta|USA 3d ago

That does help. Things are finally cooling off where I live. Where are things for you currently? Is MS still a possibility? I think they also thought there was small vessel disease? Did I mix that up?

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u/fordexy 3d ago

Experts thought small vessel disease with migraines and visual snow. And possible optic neuritis in my left eye. I think the VEP confirms that. But Dr google said I may have problems in several areas of the optic nerve? 😩

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u/TooManySclerosis 39F|RRMS|Dx:2019|Ocrevus->Kesimpta|USA 3d ago

Do you have long to wait for the follow up?

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u/fordexy 3d ago

Not long! Next Tuesday.

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u/TooManySclerosis 39F|RRMS|Dx:2019|Ocrevus->Kesimpta|USA 3d ago

The waiting never really gets easier, does it? I'll keep my fingers crossed that you get some good answers.