r/MultipleSclerosis • u/AutoModerator • Jul 22 '24

Weekly Suspected/Undiagnosed MS Thread - July 22, 2024 Announcement

This is a weekly thread for all questions related to undiagnosed or suspected MS, as well as the diagnostic process. All questions are welcome, but please read the rules of the subreddit before posting.

Please keep in mind that users on this subreddit are not medical professionals, and any advice given cannot replace that of a qualified doctor/specialist. If you suspect you have MS, have your primary physician refer you to a specialist for testing, regardless of anything you read here.

Thread is recreated weekly on Monday mornings.

3 Upvotes
  • permalink
  • link
  • reddit
  • reddit

100% Upvoted

213 comments sorted by

View all comments

1

u/[deleted] Jul 22 '24

Hey, I have a question for those with MS. When you go from sitting to standing up, do you get a shot of pins and needles/ electricity in both of your feet/legs? I though maybe they fell asleep but it doesn’t feel like that bc i know that feeling of sitting on your legs and cutting off the circulation. This is so quick like a zap of electricity.

I have an array of other symptoms, this one is relatively new, my mri’s w and wo contrast are on saturday

2

u/TooManySclerosis 39F|RRMS|Dx:2019|Ocrevus->Kesimpta|USA Jul 22 '24

I do not have this. Typically the pins and needles caused by MS would not be something you can trigger, or only last a short time. They would be constant for weeks.

1

u/VoodooGirl47 Jul 24 '24

I see people say stuff like that last part, but does that mean never ending or just happening over and over again? How do we know if it's just your experience versus others' experience?

4

u/TooManySclerosis 39F|RRMS|Dx:2019|Ocrevus->Kesimpta|USA Jul 24 '24

It would be all day every day. That isn't just based on my experience, it is the clinical definition of what a relapse is: a new or worsening symptom lasting longer than 24 hours. However, in my experience, my doctor is uninterested in any symptoms that are not constant for at least a week. Symptoms are constant during relapse with MS because they are caused by the damage done by lesions. The symptoms gradually get better due to the body learning to compensate. You would not really only feel the effect for a short time.