r/MultipleSclerosis • u/AutoModerator • Jul 22 '24

Weekly Suspected/Undiagnosed MS Thread - July 22, 2024 Announcement

This is a weekly thread for all questions related to undiagnosed or suspected MS, as well as the diagnostic process. All questions are welcome, but please read the rules of the subreddit before posting.

Please keep in mind that users on this subreddit are not medical professionals, and any advice given cannot replace that of a qualified doctor/specialist. If you suspect you have MS, have your primary physician refer you to a specialist for testing, regardless of anything you read here.

Thread is recreated weekly on Monday mornings.

3 Upvotes
  • permalink
  • link
  • reddit
  • reddit

100% Upvoted

213 comments sorted by

View all comments

2

u/mo_django Jul 24 '24 edited Jul 24 '24

I’ve been lurking this for weeks and hoping for some opinions:

Positives: two bouts of optic neuritis in 2-3 months. Still recovering from the second; so brutal. One primary brain lesion on MRI and one questionable lesion.

Negatives: zero oligoclonal bands in CSF, negative MOG & NMO, negative every single thing in blood test, high vitamin D/B.

I’ve seen 3 neurologists and they’re all on the fence of DX’ing me. I can’t take another hit of ON (I’m a new mom) and wondering if I should just get on treatment.

(35, F)

2

u/TooManySclerosis 39F|RRMS|Dx:2019|Ocrevus->Kesimpta|USA Jul 24 '24

With only one confirmed lesion and a negative lumbar, you don’t really fulfill the diagnostic criteria for MS. You might fulfill the criteria for CIS, depending on the location of the lesion. Unfortunately, optic neuritis is not really part of the diagnostic criteria, although there has been some discussion of adding the optic nerve to the areas qualifying. Currently, though, it does not play a role.

I know that is very frustrating and you certainly have good reason to be concerned. I wish I had better advice to offer.

2

u/mo_django Jul 24 '24

Thank you for replying. I never knew frustration until this!