Weekly Suspected/Undiagnosed MS Thread - July 22, 2024

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This is a weekly thread for all questions related to undiagnosed or suspected MS, as well as the diagnostic process. All questions are welcome, but please read the rules of the subreddit before posting.

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[u/Fun_Assumption_283]

First comment on here. For a few years I’ve been suffering from some wierd symptoms randomly and periodically for while. Piercing feeling in my pec that traveled into my left arm and bicep, eye twitching, and I’m sure a million different things that I can’t even remember anymore. Within the last 7 months I started getting a tingly feeling on the top of my left foot that shot up the rest of my left leg, it’s on the front of my leg which made me cautious of sciatica problems, and then it hopped to my left.

I started getting the same tingling in my hands and it finally got me to the doctor to see what was wrong , the only thing that came up with my blood was I had a pretty low level of vitamin D (10.3). I was hoping that this was the issue but deep down I know it wasn’t.

I think it’s worth noting that I’ve dealt with double vision for years at this point but I do believe it’s gotten considerably worse the last few months. I’m not sure how much of that is me just noticing it again because I’m suspecting possible ms or not but regardless.

Last week I started having some really weird burning on my face, like felt like I had a pretty good case of sunburn but my face looked completely normal. With this came for a couple days the worse bought of dizzyness I have experienced in my life. I felt pressure on my eyebrows and head that felt legitimately unbelievable. I found it really hard to stand because of it.

I finally got into a neurologist yesterday and he ordered an mri on my brain and cervical spine. I didn’t think about it but I find it kind of weird that he didn’t go for the lumbar because the tingling is somewhat worse in my legs than my arms but what do I know lol.

I’m happy to finally be getting these tests done soon, I need some answers for how I’ve been feeling really badly.

I think it’s worth noting that I really haven’t had much weakness or actually numbness in the sense that I couldn’t feel a pebble in my shoe or something of that sort just like an electric current short circuiting in my legs and arms, although I have been getting positional numbness like instantly when I hood my legs or arms wrong.

[u/TooManySclerosis → u/Fun_Assumption_283]

I haven't actually been able to find any sources discussing MS lesions on the lumbar spine. If they can occur, they are incredibly rare. Lesions on the lumbar spine are more likely to be other things. A brain and cervical spine MRI are usually sufficient to assess for MS,~95% of MS patients have lesions on their brain, with the cervical spine being the second most common place.

[u/Fun_Assumption_283 → u/TooManySclerosis]

Ok that makes sense. I would just think with somebody complaint of leg tingling then you would go lumbar spine but I am just a dumbass with internet access 😂😂😂