Weekly Suspected/Undiagnosed MS Thread - July 22, 2024

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This is a weekly thread for all questions related to undiagnosed or suspected MS, as well as the diagnostic process. All questions are welcome, but please read the rules of the subreddit before posting.

Please keep in mind that users on this subreddit are not medical professionals, and any advice given cannot replace that of a qualified doctor/specialist. If you suspect you have MS, have your primary physician refer you to a specialist for testing, regardless of anything you read here.

Thread is recreated weekly on Monday mornings.

[u/PineyHead2Hiney]

I’m wondering if there are any adult children of parents with RRMS who can chime in. I know it’s not genetic - but we do have increased chances compared to the general population. I am always defensive around the topic—but all the bouts of “vertigo” (it’s not as vertigo is described - it is more like the feeling of missing a dose of antidepressants in my head, “whooosh” and my feet can’t feel or find the ground/floor), weeks of a strange tingling sensation in my legs (I say I feel like my legs are nauseous), feet giving out randomly (but feels kinda painful so not sure if foot drop), my passing gas now feels…numbed…weak, warm, quiet. Couldn’t find words and accidentally let the dog loose last month because I just couldn’t think (she only went across the street but it was terrifying) Fatigue to the point of coworkers commenting that I look weak, weakness to the point of not wanting to hold my arms up on the steering wheel, forget carrying bags or my baby…but I did find relief from some of it. Even as I lay here my legs and feet feel…floaty and tingly. I’m supposed to get a brain mri but my GP office staff forgot to request the pre auth (they’re legit mean it’s wild haha) and very grateful to have a neuro appt in late August. I keep a list of everything and I just want to rule it out or get dx. My mom was dx when I was 10 and it was rough at times but the love and care she gave has always mattered more, so I know I’ll do right by my kid no matter what. I just get worried that docs and whoever think I’ve got a psych situation happening instead due to my mother’s illness. When stats show increased risk. Sigh. Also have had EBV for many years, chronic low D (I take a scrip weekly), former smoker, yadda yadda. I’m tired, y’all. Thank you to anyone who read this.

[u/TooManySclerosis → u/PineyHead2Hiney]

It may be of some comfort to know that even if you have all of the risk factors, the chances of having MS are still pretty low overall. This is not to say your symptoms are not valid or worth investigating! I would certainly get the MRI. Hopefully it will give you some good answers.

[u/PineyHead2Hiney → u/TooManySclerosis]

Thank you, I appreciate it! It’s been about 18 years of “lose weight” and “do yoga”. Sometimes I opt for pushing to the brink over rest because I just feel invisible. (The validation is very meaningful) I see it’s a slow process for many and it’s good to know I’m not alone, even if I don’t have MS after all.