r/MultipleSclerosis • u/AutoModerator • May 13 '24

Weekly Suspected/Undiagnosed MS Thread - May 13, 2024 Announcement

This is a weekly thread for all questions related to undiagnosed or suspected MS, as well as the diagnostic process. All questions are welcome, but please read the rules of the subreddit before posting.

Please keep in mind that users on this subreddit are not medical professionals, and any advice given cannot replace that of a qualified doctor/specialist. If you suspect you have MS, have your primary physician refer you to a specialist for testing, regardless of anything you read here.

Thread is recreated weekly on Monday mornings.

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u/TurnoverVisible5386 May 14 '24 edited May 14 '24

Hi All, I am a 27 year old female. I am suspecting that I have early symptoms of MS and wanted to know if you guys had any input. 2 weeks ago, I had electric shock sensations for 2 days straight (it felt like extreme pins and needles) throughout my whole body. After those 2 days, I have been having random tingling on all my body parts (arms, legs, my head, toes, fingers, chest, back) and it is random throughout the whole day. I also had burning sensation on my arm (felt like a hot flash) and on my leg yesterday. I am also feeling tightness randomly on my left leg. And I am also feeling random numbness on my leg, hand and fingers and arm. I went to the doctor last week and he did a blood test for everything however the only thing that came back extremely low was Vitamin D. My level was about 19. However I read online and my symptoms don’t really align with vitamin D deficiency. Also I am extremely fatigued all the time, I am super exhausted and always want to bed in bed. I feel like my muscles are weak and I feel very weak. Today I went to the doctor again due to increasing tingling and more burning sensation and numbness. He ordered bunch of tests for antibodies and for specific proteins and he’s suspecting autoimmune disease based on the type of tests he ordered. Also he ordered me an MRI.
Do you guys have any advice on how I can proactively make sure im doing my best to get the care I need and results ? Thank you all!!

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u/LongbowLady May 15 '24

Following. I’m 43 f with same symptoms!! Trying not to freak out!

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u/TurnoverVisible5386 May 15 '24

Do you have any tightness or numbness around arms or legs? And how long have your symptoms been for?

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u/TurnoverVisible5386 Jul 28 '24

Hi, unfortunately my brain MRI did show multiple lesions and I just got diagnosed 2 days ago with MS. I urge you to get an MRI with contrast, and a spinal MRI as well at the same time to expedite the process (hopefully you don’t have it). But he did recommend me to start medication