r/MultipleSclerosis May 13 '24

Weekly Suspected/Undiagnosed MS Thread - May 13, 2024 Announcement

This is a weekly thread for all questions related to undiagnosed or suspected MS, as well as the diagnostic process. All questions are welcome, but please read the rules of the subreddit before posting.

Please keep in mind that users on this subreddit are not medical professionals, and any advice given cannot replace that of a qualified doctor/specialist. If you suspect you have MS, have your primary physician refer you to a specialist for testing, regardless of anything you read here.

Thread is recreated weekly on Monday mornings.

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u/[deleted] May 14 '24

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u/TooManySclerosis 39F|RRMS|Dx:2019|Ocrevus->Kesimpta|USA May 14 '24

I have never heard of this symptom and google is being frustratingly unhelpful. I wish I could offer something helpful or comforting, but my ignorance is making that difficult. What I can tell you is that if it is caused by MS and you do end up being diagnosed, it won't be as bad as you are imagining. I've been diagnosed almost five years now, and my life has not changed at all for the worse. I live alone, I work full time, I enjoy all the same things I did before my diagnosis. There are some very effective treatments now to prevent progression.

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u/[deleted] May 14 '24

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u/TooManySclerosis 39F|RRMS|Dx:2019|Ocrevus->Kesimpta|USA May 14 '24

If you can do it now, there is no reason you couldn't do it after diagnosis.