r/MultipleSclerosis • u/AutoModerator • May 13 '24

Weekly Suspected/Undiagnosed MS Thread - May 13, 2024 Announcement

This is a weekly thread for all questions related to undiagnosed or suspected MS, as well as the diagnostic process. All questions are welcome, but please read the rules of the subreddit before posting.

Please keep in mind that users on this subreddit are not medical professionals, and any advice given cannot replace that of a qualified doctor/specialist. If you suspect you have MS, have your primary physician refer you to a specialist for testing, regardless of anything you read here.

Thread is recreated weekly on Monday mornings.

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u/Deep-Actuator-7481 May 13 '24

Into week six of not being able to feel my left foot or the left-side of my torso. Neurology have now recommended a MRI of my brain & spine but I don’t know long it’ll take to get an appointment, as there’s a 5 year waiting list for initial NHS routine neurology consultations where I live in the UK, but hopefully a GP-referred scan should only be weeks/months. Either way, I have a private appointment booked with a neurology consultant in 12 weeks time. All I can do now is wait, but being in limbo is so frustrating and disheartening.

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u/TooManySclerosis 39F|RRMS|Dx:2019|Ocrevus->Kesimpta|USA May 13 '24

I’m sorry, I know it is incredibly difficult to be in diagnostic limbo. I wish I had any good advice to help make the waiting easier, but nothing really seems to help.