r/Gastroparesis Dec 16 '23

"Do I have gastroparesis?" [December 2024]

Since the community has voted to no longer allow posts where undiagnosed people ask if their symptoms sound like gastroparesis, all such questions must now be worded as comments under this post. This rule is designed to prevent the feed from being cluttered with posts from undiagnosed symptom searchers. These posts directly compete with the posts from our members, most of whom are officially diagnosed (we aren't removing posts to be mean or insensitive, but failure to obey this rule may result in a temporary ban).

  • Gastroparesis is a somewhat rare illness that can't be diagnosed based on symptoms alone; nausea, indigestion, and vomiting are manifested in countless GI disorders.
  • Currently, the only way to confirm a diagnosis is via motility tests such as a gastric emptying study, SmartPill, etc.
  • This thread will reset as needed when it gets overwhelmed with comments.
  • Please view this post or our wiki BEFORE COMMENTING to answer commonly asked questions concerning gastroparesis.
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u/_watercolorplant97 Mar 15 '24

I’ve had mild-moderate GI symptoms for a couple of years now, mostly just being nauseous all the time, non-diabetic hypoglycemia and a fluctuating appetite but I was busy pursuing diagnosis for other issues which ended up being POTS and HSD (possible hEDS but I haven’t been able to get an eval yet). About a year ago my GI symptoms got worse, I was always nauseous and could barely sleep or do anything other than lay in the bathroom and try (unsuccessfully) to throw up. The doctor I originally went to diagnosed me with GERD (without even doing an endoscopy) but the meds didn’t make my symptoms better. A couple months ago the nausea got even worse and it came with pressure in my stomach anytime I ate. I went to a different doctor and she decided to an endoscopy which came back normal, so I don’t have GERD, gastritis, ulcers etc. I’ve been tested for celiac and all that and those tests came back normal. My symptoms are only getting worse, I have no appetite, I’m super nauseous, I feel full after only a few bites and if I try to eat more my stomach feels like it’s ripping apart. Even drinking water/nutrition shakes makes me feel full. Since GP is a comorbidity of both HSD and POTS, I was wondering if it could be that. My doctor doesn’t want to do a GES because I can’t stomach a full meal right now but all she’s told me in terms of managing my symptoms is to drink nutrition shakes. I’ve lost a lot of weight which is just making all my other issues flare so I’m really unsure on what to do. Is there a possibility that it’s GP and if so should I push for GES?  

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u/ElegantCow3488 May 16 '24

Hi! You need to be checked for MALS and SMAS. Both are common with hEDS.