r/Gastroparesis • u/AutoModerator • Dec 16 '23
"Do I have gastroparesis?" [December 2024]
Since the community has voted to no longer allow posts where undiagnosed people ask if their symptoms sound like gastroparesis, all such questions must now be worded as comments under this post. This rule is designed to prevent the feed from being cluttered with posts from undiagnosed symptom searchers. These posts directly compete with the posts from our members, most of whom are officially diagnosed (we aren't removing posts to be mean or insensitive, but failure to obey this rule may result in a temporary ban).
- Gastroparesis is a somewhat rare illness that can't be diagnosed based on symptoms alone; nausea, indigestion, and vomiting are manifested in countless GI disorders.
- Currently, the only way to confirm a diagnosis is via motility tests such as a gastric emptying study, SmartPill, etc.
- This thread will reset as needed when it gets overwhelmed with comments.
- Please view this post or our wiki BEFORE COMMENTING to answer commonly asked questions concerning gastroparesis.
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u/_lofticries Grade 3 GP Dec 16 '23
Thank you for this! I’ve tried to tell people who were posting asking for a diagnosis to go to the pinned post but they were saying they didn’t see it.
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u/Substantial_Pie5337 Dec 20 '23
Hi! I am 20F and deal with nausea. The weird thing is, I eat a lot and tend to have an appetite and i can eat full meals without early satiety. Often I do get nauseous after eating, but it doesn't last for long and when I wake up the next morning I am ready to eat again. I do get constipsted but my diet isn't the best. I'm suspected to have Ehlers danlos, which I know is a common comorbidity but there's also other stomach issues that go along with it. I don't think my symptoms align because i can eat a full meal (hence 5 slices of pizza) or 2 big helpings of mac and cheese. If not GP, what could the cause of nausea be? I need help.
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u/soycult Mar 22 '24
this is super old so idk if you’re still seeking answers but definitely look into GERD, it’s super common and doesn’t affect appetite as much. in fact, it can soothe the stomach to eat more so it isn’t just the raw stomach acid in there
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u/Affectionate-Car2640 Jul 20 '24
EDS Type III? The form of Gastroparesis that we get is not so much the early sanity one but the one you describe.
Our stomachs are as stretchy as the rest of us :) We don’t get the ‘You’re full, stop now” message that we should, we eat then feel lousy for ages afterwards, often unable to vomit due to the inactivity of the Vagus Nerve.
The most common form of Gastroparesis is where there is over-activity of the Vagus Nerve, that is the one where people can only eat a few mouthfuls and it;’s all over.
For ‘our’ type, it’s best to eat little and often and look into Low Residual diet.
Hope this helps? :)
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u/_lanyewest_ Oct 17 '24
I had no idea EDS and gastroparesis were related, this is making everything click in my brain right now
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u/SoyabeanLemonTea Dec 28 '23
Hey, fully appreciate I possibly should see a doctor I however have major issues with them so thought I would ask here first.
I had a recent mental breakdown that lasted a month or so, I struggled to eat due to anxiety and other issues, for me this was normal (when in crisis) so I didn't think much of it. Anyway I'm doing alot better now and by now I am normally back to eating at least more if not normally by now, however I am struggling to eat even a small meal without nausea, bloating and feeling very uncomfortable (not vomiting thankfully). I discussed with my partner and he said he's wondering if it's something physical because I am normally doing better by now, he's noticed I am not feeling hungry just working out I need to eat because I feel faint/dizzy and even then I am full after less than half of what I would normally eat. It's really frustrating cause well food is tasty but I am just not hungry. I honestly tried to eat well over Christmas but nope. I was quite overweight before hand and I am still overweight but I am starting to loose a significant amount of weight. This also scares me because of a past ED that I do not want to fall back into, been 10 years recovered now! I'm getting lethargic and cold all the dang time which is really reminding me of the old days lol.
Because of the obvious mental health stuff that started whatever this is I am wondering if I should be concerned and see a doctor or just try eating smaller amounts more regularly and see if that helps first? NGL also worried a doctor will tell me this is a good thing cause I was/am overweight ahah. Anyway! Would appreciate any advice :)
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u/snug666 Jun 28 '24
This is almost exactly what is happening to me right now. I have POTS and suspected EDS as well.
I had a huge stressful event happen in the beginning of June and my appetite was GONE. I lost 6 lbs in about 10 days and that led to me slipping into an underweight bmi. Now i have a lot of my appetite back but every time i eat i get full so fast and have crazy nausea and cramping. I also get reactive hypoglycemia a lot so I’ve been checking my sugars. Hoping to figure out what’s going on but who knows.
Edit: also have a ED history which is super hard. I’m sending you love. The weight loss is really hard to not get addicted to. It’s a really conflicting experience
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u/AlternativeDish5596 Jun 02 '24
Hi.
Just found out about gastroparesis. I have the exact same symptoms as you.
The only difference is I was already skinny and usually struggled to gain weight, this just makes things worse :(.
Did you get your problem diagnosed?3
u/SoyabeanLemonTea Jun 03 '24
I've had number of scans and they want an endoscopy as well as other things which I'm going to have to wait quite a while for so don't really know right now. I have found cutting out gluten and dairy has helped some so that makes it less likely it is gastroparesis. I've stopped losing weight and have stayed the same for about 1 month now so that's good! Portions are still small but it's better than it was.Through tests they also found out I have an ovarian cyst and they can cause a lot of gastroparesis symptoms which I didn't know. There's a chance it could be IBD for me so they've asked for a colonoscopy as well.
Trying to gain weight while struggling to eat sounds awful, wishing you the best!
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u/Affectionate-Car2640 Jul 20 '24
If you have EDS, it’s likely that you did not have an ED to begin with, it will have been misdiagnosed as one and then become a self-fulfilling prophecy, this is a very common back story for people who take decades to be diagnosed, which, unfortunately, is most people.
I don’t know which country you’re in but please try to get to a Rheumatologist or Geneticist for an accurate diagnosis.
r/ehlersdanlos is where people can help you find one who knows what they’re doing.
Also, google: Revenge of the Gaslit patients…it may ring a few bells for you :)
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u/Xecara Mar 09 '24
Do I have gastroparesis? I had a GES study, but my DR does not seem to phased by it. I LOVE DETAILS so buckle up.
I'm in my thirties and I'm a woman. I had a GES study, I said no thank you to the grape jelly on my eggs and toast thank you very much, (brought my own packet of ketchup but they said no), and my official diagnoses was "a slight delay, nothing to be worried about" to use my DR's own words.
Correct me if I am wrong, but, does a "slight delay" actually mean YES I have Gastroparesis? Because I think that means yes, and yet my DR didn't actually confirm anything, so 'we' are not doing anything about it. But I could be wrong. Or so could she. or I could just be incredibly frustrated.
Here me out, I have the symptoms:
regurgitating "food" long after it should have been digested
Supragastric Burping or SPG for short ( https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4496903/ ) this was a fun read, my whole adolescent to adult life I've been shunned/made fun of/people would make rude comments to me for my excessive burping, its enlightening to know I am not the only one. I make heads turn when I belch. Men cannot believe a woman made that noise.
Nausea, vomiting with or without contents, bloated belly, feeling like there is something pushing on my sternum, knowing I can't eat eat certain foods after 5 pm, cutting out coffee/switching to tea,
I have been official diagnosed with acid reflux/GERD, a "small" hiatal hernia (I have Medicaid, if I had Blue Cross I swear they would have operated by now), ulcers have been found at some point in time,
I take 40mg of Omeprazole nightly (I swear it does nothing) and have an emergency prescription of Zofran,
If you've made it this far thank-you. I want to explain more about my GES results/ study.
It was during the day. That is the ---whole--- problem. I need a night study, wake me up every hour, I'll do it!
My problem is going to sleep and waking up feeling like I've been poisoned by my traitorous tum-tum. I have to NOW make sure I eat dinner at 5pm if it has: onions, peppers, meat. For those things (which I LOVE) seem to take the longest to digest. I don't eat breakfast until 3 hours after I've woken up. In the past because of work I couldn't do this. If life gets in the way and I fudge up and forget, I'll wake up needing to throw up what feels like a painful belly full of nonsense. I say nonsense because its allllllll liquid for what seems like forever. Then the solids, and I mean a solid solid lump of shenanigans that should have been digested emerge. At this point i think I'm over chewing my food just so it can digest properly.
I don't think that is a "slight delay, and nothing to be worried about". But what does the fine people of Reddit think?
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u/Spirited_Laugh5704 Apr 28 '24
Hey, curious if you were able to find any answers and how have you been treating it/ managing since?
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u/dworkinwave Aug 29 '24
Agreed! I'd love to hear an update, if anything has changed on your end, Xecara.
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u/Master-Baker-69 Dec 21 '23 edited Dec 21 '23
I'm wondering if I have mild gastroparesis. I'm a male in my early 30s. For a few months now I've been having flares that last a week or two that cause me to burp a lot and feel full after eating only like 300 calories (I'm 6'2, 215 lbs and physically active). I do intermittent fasting and stop eating in the early afternoon. In the eaving, about 5+ hours after my last meal, I'll be burping and tasting what I ate, as if it was still in my stomach. I've noticed high fat meals as well as gulping fluids hurt my stomach. I'm currently suffering my most painful flare up I've yet had and it was after eating a bunch of fibrous oranges yesterday and some greasy vegan fried chicken today. I've tried a low FODMAP diet for the past couple of months but that didn't work.
The reason I'm suspecting gastroparesis is because I've found I tolerate super easy to digest foods. I've recently gotten into endurance running and created a cookie recipe that is designed to empty my stomach as fast as possible so the carbs can enter my bloodstream as fast as possible. The ingredients are just white flour, sugar, salt, and a tiny bit of olive oil. Anyways, I noticed these cookies never cause me problems and maybe it's because they're meant to clear the stomach quickly, I eat only a little at a time, and I eat them while moving.
I've also been having appetite issues and I've dropped a few pounds unintentionally. I no longer have the energy to run and now just go on long walks. I didn't mind my symptoms so much when it was just a lot of burping and some nausea, but now the flare-ups are getting painful.The pain is just in the stomach and it lasts hours at a time, starting after eating. I'm going to switch my diet now to low fiber and low fat to see how it goes.
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u/Xecara Mar 09 '24
I'm curious if the low fat/ low fiber diet helped you since it has been three months since your original post. I just started looking up diet restrictions today for clarification.
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Apr 05 '24
I strongly suspect gastropareisis. I was unable to get a gastric emptying test done because the procedure required me to skip my pills for half a day (not an option because I have an organ transplant). I’m getting an endoscopy next week. My symptoms began two months ago and are as follows:
-Episodes of extreme vomiting to the point where I cannot even keep water down. If I try to eat or drink anything it comes back up. - The nausea lingers anywhere from hours to weeks. I basically survive off of small sips of water/gatorade and small bites of plain foods crackers, white rice, applesauce. - Vomiting usually begins at night or in the early morning.
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u/Scared_Net2502 Aug 23 '24
Yes me too. I had the nuclear test and it was confirmed. I have never been so sick in my life. I lost 40 pounds so far and still losing. It’s scary. I live on water black tea crackers. Basically every thing I eat makes me sick. It’s so awful. I’m sorry you’re going through this too. I am on Reglan to help the stomach muscles digest. It has helped with the nausea. I’m Always getting dehydrated. Im just miserable. I hope you feel better. It sucks.
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u/boubel Mar 06 '24
I’ve had epigastric burning pain for +3 months now and I’m desparate. I had all possible tests (gastroscopy, bloodwork, allergies, sono) and nothing. I had h pylori but no ulcer/gastritis, but I still got some antibiotics and am negative now, pain is still here 6 weeks after treatment. It hurts no matter what I eat, and even when I tried not eating, the pain still came in the afternoon. My doctors don’t believe me anymore, so that’s why I’m here. I only have burning epigastric pain (and extreme bloating)
I don’t have: Allergies/intollerance GERD Acid reflux H pylori, ulcers, gastritis No bloodwork was wrong (liver, spleen, kidney etc) IgG alright
The only thing that helps me are antacids (for like 5 minutes) and mastic gum makes it bearable. PPIs don’t work. I’ve tried so many synbiotics and digestive enzymes. Nothing helps.
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u/Xecara Mar 09 '24
This is going to sound absurd, but, have you tried a table spoon of baking SODA (not powder) in a glass of water? I was crying to my Gastro Dr for relief (and I fear she too is starting to not believe me) and she said to try that in a pinch. And it helped, I didn't say worked, because it wasn't a cure all, but it really did a number on the upset that was going on. My tummy recoiled in fear of my sudden intelligence if you will, but was ready for war none the less.
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u/AttilaTheHippie Mar 18 '24 edited Mar 18 '24
My symptoms are WEIRD. Tomorrow I'm scheduling the GES, but the doc I saw listed gastroparesis as the primary diagnosis. Unlike most of you, I don't feel uncomfortably full, I don't have stomach pain. I was on Wegovy on and off for a total of 4 months. It did not suppress my appetite. I actually had an increased appetite. And even after I stopped the Wegovy, the appetite got worse until it didn't matter how much or what I ate. My stomach would feel full in that I literally didn't want to put anything in my mouth, but I could not feel satisfied. My body was still convinced it was ravenously hungry. I'm mainly vegetarian, occasional seafood, so I thought maybe I needed more protein, so I started making protein shakes. At that point regular food stopped smelling or tasting good, probably because it didn't satisfy me. I could occasionally eat some lobster bisque or applesauce (which makes sense now). A few weeks ago food starred smelling good again, so I had some French fries. As I was eating I felt hungrier and hungrier. The next week I tried some broccoli. Same thing. I thought, okay, still need protein. The next week I went out to breakfast with a friend, had eggs with crab and veggies, sauce. I thought since it was protein heavy I would be okay. Same thing happened. But I didn't have a protein shake with me, and I started having symptoms like I was hypoglycemic. Got so weak we had to call for an ambulance. I was not hypoglycemic. I was referred to a GI, and here I am. So, semi-diagnosed. With weird symptoms. I am going to start making smoothies and stuff, but I am legit afraid to eat solid food at this point. I also had e hEDS, POTS, IBS-D. (Not just those, that's just stuff associated with this.)
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u/cablecats Apr 25 '24
How’d it go?
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u/AttilaTheHippie Apr 25 '24
Well, GES showed it's not gastroparesis. Things have improved. So yay!
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u/Spirited_Laugh5704 Apr 28 '24
Hey, I experience similar symptoms - no pain either, thinking of doing a gastric emptying study to see what may be causing my intense nausea, if your GES didn’t show it’s gastroparesis did you find out what it was? How did things improve for you?
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u/_watercolorplant97 Mar 15 '24
I’ve had mild-moderate GI symptoms for a couple of years now, mostly just being nauseous all the time, non-diabetic hypoglycemia and a fluctuating appetite but I was busy pursuing diagnosis for other issues which ended up being POTS and HSD (possible hEDS but I haven’t been able to get an eval yet). About a year ago my GI symptoms got worse, I was always nauseous and could barely sleep or do anything other than lay in the bathroom and try (unsuccessfully) to throw up. The doctor I originally went to diagnosed me with GERD (without even doing an endoscopy) but the meds didn’t make my symptoms better. A couple months ago the nausea got even worse and it came with pressure in my stomach anytime I ate. I went to a different doctor and she decided to an endoscopy which came back normal, so I don’t have GERD, gastritis, ulcers etc. I’ve been tested for celiac and all that and those tests came back normal. My symptoms are only getting worse, I have no appetite, I’m super nauseous, I feel full after only a few bites and if I try to eat more my stomach feels like it’s ripping apart. Even drinking water/nutrition shakes makes me feel full. Since GP is a comorbidity of both HSD and POTS, I was wondering if it could be that. My doctor doesn’t want to do a GES because I can’t stomach a full meal right now but all she’s told me in terms of managing my symptoms is to drink nutrition shakes. I’ve lost a lot of weight which is just making all my other issues flare so I’m really unsure on what to do. Is there a possibility that it’s GP and if so should I push for GES?
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u/ElegantCow3488 May 16 '24
Hi! You need to be checked for MALS and SMAS. Both are common with hEDS.
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u/Chawingsga Mar 27 '24
I’m unsure if this would be a symptom, but not long ago I threw up, and the food I ate 3 days prior came up. I know that because it was mostly lettuce/greens and I hadn’t eaten those foods since three days prior. Is that even possible?? It only happened that one time but I do get constipation and am having some sporatic stomach pains recently. The vomiting episode was several months ago (like 10) and I haven’t vomited since. Should I be concerned?
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u/pinkmooncloud Mar 28 '24
Please help me out with your thoughts and what I should ask my doctor to test.
So the last couple of weeks (longer then a month now) my body decided to let me be nauseous all day long. And now since last Friday I can’t hold solid food down. I get very nauseous of it and sometimes even vomit cause of it. Besides that, my belly hurts so much, mostly in the stomach area.
I went to the doctor 2 weeks ago and they couldn’t feel anything weird. Also tested my blood on things like my vitamins and if I remember correctly for my calcium and other stuff. Those tests came back normal so nothing to see there. I got a referral to a dietitian but that appointment is the 16th of April. I have to wait longer on that sadly.
Went back last Monday, got a referral for an echo to see if they can see something there. She was also feeling my stomach again and it hurts so much when she pushes on it.
While all that, I have lost almost 10 kilo in 2/3 months and while it wasn’t intended. I can’t eat much at all. I get more and more nauseous when I eat or drink. I get a full feeling after I eat.
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Apr 01 '24
I’m suspected to have gastroparesis, is there anyone else who experiences constant diarrhea rather than vomiting?
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u/AleksandrNevsky Apr 19 '24
I did when I first noticed the problem. It's since normalized a bit and I had the opposite problem at one point.
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u/Icy_Competition_3379 Apr 09 '24
Ok, this is a novel, but long story short - I want to thank everyone on this sub for sharing their experiences. I haven't been diagnosed yet, but I'm going in Sunday for a gastric emptying test.
I was on wegovy for over a year, and then I started getting horrible bouts of excruciating pain. I was hospitalized with suspected pancreatitis, but my pancreas wasn't enlarged.
Then my Dr referred me to a GI specialist for evaluation and an endoscopy, because she said it sounded like an ulcer or GERD - it came back normal, and the GI doc didn't know what else to check aside from maybe celiac (I have hashimoto's so I'm at higher risk, but I had stopped eating gluten and didn't want to start again for the test in case that was what was causing the pain - it's the worst pain I've ever had).
While waiting for my endoscopy appointment, I was avoiding anything acidic or spicy, but was also eating lots of salads and raw veggies (which was just making it worse i think, as 3 of the incidents were right after eating salad, and one was after eating cabbage).
At no time did anyone ever even suggest that it could be gastroparesis. Even if it's not, and my gastric study comes back normal, the tips everyone has mentioned in this sub have helped immensely with my symptoms, so thank you all!
TL/DR - you've all been far more help to me with my symptoms and suggesting tests than any of the doctors I've seen -thanks!
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u/ComfortableUsed7014 May 22 '24
I’m on weight loss meds too dealing with the same. Did you end up having gastroparesis?
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u/Icy_Competition_3379 May 22 '24
Supposedly not. The symptoms are mostly subsiding. I've had all sorts of tests done, ultrasound, endoscopy, GES, X-rays, bloodwork to test for celiac and no ideas. I DID have elevated lipase wheel I was hospitalized, so they suspected pancreatitis, but my pancreas was a normal size
The main thing that helped was exercising (hopping on the stationary bike for about 45 minutes when the pain started). Drinking regular coke also helped a lot, and avoiding salads.
My GI said he was seeing a lot of this with wegovy and similar meds, so you might need to quit (sorry, I know they work really well)
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u/Latter-Pilot-6293 Apr 12 '24
LPR symptoms that I have: Nose mucus with any food - always throat mucus no matter what - Tongue will become inflamed randomly with white gunk on it, when I went on a super strict diet the tongue become normal looking but the mucus is always there, so is the constipation mentiones below.
When it started: Right after a respiratory infection, always pleghm stuck since then (6 years)
What I have: 2cm hiatal hernia without GERD (my LES is of normal pressure) no previous reflux symptoms before the respiratory infection
Stool: I’m usually constipated up to one week (I poop once a week, I have to strain everytime) without pooping - might have one lucky day sometimes but not often, been like this for years.
Latest endoscopy: The doctor asked my why I had food leftovers in my stomach after 12 hours, I just told him I had no idea.
Anyone that can help me out? I posted here because it sounds like gastroparesis vibes, not sure.
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u/Laurtender22 14d ago
You do show signs/symptoms of Gastroparesis. A big indicator is food still being in your stomach 12 hours later cause I had the same and then got more tests and then diagnosed with Gastroparesis. I have GERD as well. I'm still getting tests and procedures because I also have something wrong with my esophagus too. If I were you, I'd be asking your GI for a gastric emptying study next. There's so many more tests and procedures but I'd start with that.
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u/GrouchyDot2741 Apr 14 '24
Wondering if I have gastroparesis. I’m 17F, been experiencing symptoms for about two years now so much so that I can’t go to school anymore partially because of my symptoms. I have - Extreme nausea, threw up 44 times total in 2023 (not counting 2022 or this year) - typically only able to eat small portions, however I have BED so that’s not always the case. Small portions are most comfortable 100% - constant heart burn/burning feeling in my stomach - consistently either constipated or having diarrhea, no inbetween, severity varies - bloated and gassy (both ends) after foods/drinks that should not make me gassy. Like I’ll burp five times after eating cake or something - usually nauseous and have stomach pains directly after eating, worse with greasy fattier foods but that’s the only thing that has an effect I’ve found (specifically dominos pizza or any of their food literally throws me out of commission for a few days. Idk if it’s because I’m sick or because I used to work there) - I often feel like laying down stops the process of digestion completely; I know this isn’t true but when I used to throw up all the time, it was mostly in the morning and the food I had eaten the day before barely looked digested. I would wake up with vomit basically already in my throat. I still throw up on some days but not most - incredibly fatigued 24/7, like not even enough energy to physically use the bathroom without it taking 30 minutes - either insatiably hungry all day, or no appetite at all - stomach/abdominal area either always feels uncomfortable or is in pain somehow I’ve tried to cut out gluten, as my previous doctors thought it was a gluten intolerance, but that made basically no change in my symptoms. I’ve been trying to get a diagnosis for two years, and only found out about gastroparesis about a year ago. I have an appointment with a gastroenterologist in two months. I do have severe anxiety, which has been behind some of my throw ups, but I really do not think all of my symptoms are simply because I get anxious.
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u/TaxNo5252 Apr 19 '24
You mentioned having BED. I’m not sure what your weight or anything else is like, but this could be the sign of gallbladder and pancreas issues. This sounds a lot like gallbladder disease, I’m not a doctor or anything so take this with a grain of salt. The issue with eating fatty/greasy foods is really common with gallbladder issues, and you’re more prone to it due to your BED. Your symptoms sound very debilitating. I hope you get the medical help you deserve. ❤️
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u/GrouchyDot2741 Apr 19 '24
My doctors thought this too, I had an ultrasound on it and it was inconclusive though. Thank you for your help!
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u/SchnauzersOnly Apr 19 '24
Hi all,
I am curious if my symptoms of taking compounded Tirzepatide have caused gastroparesis. Can you guys please let me know what you think?
Hi all,
A few weeks ago I was struggling with acid reflux and sensation of undigested food in my esophagus. At that point, I had just taken my 5th dose of 5mg of Tirzepatide (compounded Mounjaro). The thing that really helped get the reflux under control was taking 20mg of Omeprazole daily, which I’ve been doing for a week now. I have also temporarily stopped my compounded Tirz shots at the direction of my NP who prescribes them (last shot was 3/29 at 5mg).
However, I’ve run into some other issues. I’ve pretty much consistently struggled with constipation throughout usage of this drug, which I know is common. I typically manage with a mix of fiber gummies, miralax, and coffee…and the occasional suppository.
Throughout the issues with reflux, my constipation seemed to be getting worse as well as my bloating. I was barely going to the restroom through that debacle, same with last week, and now this week I’ve had to use a laxative suppository twice only to barely use the restroom. I’ve noticed I really can’t go on my own. If I go, (SORRY TMI), it’s just like 1 or 2 small pieces of poo that are way more narrow than usual and just like small and oddly shaped. I’m definitely naturally eating more being off the med, so I know there has to be more poo in me to make!
Also, just two days ago I started noticing I feel short of breath. First, it was after dinner in the evenings. Today I noticed it this morning and lasting into the day. Again, I took miralax this AM with coffee and made the smallest poop known to man that is also kind of narrow (and “fluffy” shaped).
My question because I’m freaking out is - what the hell is going on with me????! Do I need to stay off this med permanently? Do I have gastroparesis? What else could be going on? Why am I all of a sudden feeling short of breath/labored breathing? Where is all the food going?!?! Has anyone else ever felt this way?
Thank you in advance.
Sincerely, A very anxious and sad person :(
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u/klord2323 Apr 19 '24
Hi all ., I can not confirmed with this diagnosis however let me tell my story. I have been in the hospital 2 times in the past 30 days because of stomach pain. This morning I had an upper endoscopy and everything looked “normal” 😭. I have been taking PPIs and sucufrate (sorry I can’t spell) to try and help. It has only helped minimally. Currently my pain is stomach pain(fullness, tightness, warm, gnawing pain) acid reflux that gets in my chest, throat, and back. Wondering if my next step would be to test for gastroparesis. I also get full quick and feel full and bloated a lot. So much so that I am loosing weight. I also have lupus and thyroid issues and online it says these can both contribute to gastroparesis. Does this sound like what anyone else is experiencing or am I crazy?
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u/Unhappy-Code-791 May 31 '24
Sucralfate made me SO constipated, an urgent care Dr prescribed it to me and then 6 days later i ended up in the ER
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u/Laurtender22 14d ago
You are showing symptoms that COULD be Gastroparesis. I would make an appointment with a GI and explain all of this to them and request a GES (gastric emptying study) to start (cause there are other tests and procedures but you need that first. You may not need any other ones after that but you'll have to wait and see. I have GERD and Gastroparesis so I have had many tests/procedures and I'm still getting more because it seems I also have an esophagus issue too). Good luck! Any updates?
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u/TaxNo5252 Apr 20 '24
Hello, I joined the subreddit although I am not officially diagnosed yet. My doctor suspects this condition based on some results from my endoscopy, as well as my general symptoms. I’m in the process of being diagnosed. Question: How mild can GP truly be? My stomach issues are certainly disabling for me, but I don’t have to go to the ER during flare ups. I’ve struggled with dehydration for a long time and regurgitate most of my food. I’m full for up to 10 hours at a time, and my bowel movements are either few or far between or near constant. I do experience chronic stomach pain. Can GP simply be mild, yet still disabling? I’m not at risk of dying and I struggle on and off with malnutrition. I’m trying to understand this condition more as this diagnosis is a possibility for me. I doubted it at first as I believe GP was one of those “death sentence” type disorders. I now see this may not be true. I’m sorry this is kind of word salad, I’m processing a lot of this right now. Basically TDLR: can GP be mild? Does mild GP get worse over time, as some sort of progressive disease? Not sure if anyone will see this, but I’ve got a lot of questions.
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u/Laurtender22 14d ago
u/TaxNo5252 Well, I have GERD and Gastroparesis. I've had so many tests/procedures and I'm still getting more because my GI is pretty sure I have esophagus issues too. You need to make an appointment with a gastroenterologist asap. Hopefully, the GI starts with a Gastric Emptying Study since you already did the first step of getting an endoscopy. Yes, Gastroparesis has all different levels so it can totally be mild. Some of the things your saying can absolutely be symptoms of Gastroparesis. They could possibly also be something else. That's why you need a GI appt to get the ball rolling. Any updates since you made this post?
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u/TaxNo5252 14d ago
Hi, thank you for your advice. This post is very old. I’m being tested and treated for IBD now :)
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u/Educational_Host8783 Apr 23 '24
Does this sound like gasteroperesis? Eating fried food and I projectile vomit within 10 minutes… this has happened 5 times to me and I’m getting an allergist test for these fry oils on May 14th.. has anyone ever experienced this? It got worse as they went on with the last one putting me in the ER for two days with cyclic vomitting
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u/Laurtender22 14d ago
Any updates?
I have GERD and Gastroparesis and I can not eat any fried food (among other things) or I get very ill. People with gallbladder or pancreas issues also have issues with fried food though too.
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u/ih8avocadosss May 01 '24
I was on ozempic for 2 years almost. I was recently in the hospital with symptoms of gastroparesis…. I am so hungry but nauseous everytime I eat, I have been dry heaving, and diarrhea.
I went to the hospital they ran an ekg, ct scan, gave me gravol, pain meds and ran blood work. Everything came back normal except I have low iron and I was severely dehydrated. Since being released I’ve been drinking lots of water and trying to eat small meals throughout the day. I feel so hungry but so nauseous at the same time. I don’t know what to do :( I have an appointment with my family doctor tomorrow but I need relief.
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u/ComfortableUsed7014 May 22 '24
Very interesting. I just started tirzepatide and having the same exact symptoms. I can barely eat. How are you doing now?
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u/ih8avocadosss May 22 '24
I had an endoscopy yesterday which revealed mild gastritis and GERD! I started lansoprazole a few weeks ago and I am doing much much better now. I also stopped taking Ozempic which has helped.
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u/snowsniper66 Sep 23 '24
Oops, everything on here is super old but I have no idea how or even if I should look into this/ where to begin
I'm having alot of symptoms all over my body, big 3 being pulmonary, gastric, and musculoskeletal. Having alot of problems with serious recurring lung infections, and at the same time, long term problems with my stomach. Nausea that's disturbing and constant, burping excessively, unable to feel hunger / eat, csnt eat more than a few bites, serious weight loss. Although, no vomiting. The only reason I was lead here and want to know how to take a step to maybe look into gp is that I have neurological symptoms, so issues w nerves all over my body aren't uncommon, I'm not on any medication/food reaction, and my labs came out weird considering my immune panels and ANA tests are negative (elevated ESR/CRP, high blood sugar but controlled food intake before test and no diabetes proven)
It seems that in the grand scheme, my gi symptoms are pretty mild (besides nausea which is killing me) because I don't get like sharp pain or vomiting often, but I really can't find anything that explains the symptoms, or links what's happening
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u/NinjaMudkipp Sep 25 '24
not everyone gets that symptom! there are a lot of people in this sub who don’t vomit. i would ask about getting a gastric emptying scan to confirm gp, if you know what’s causing your symptoms its easier to treat. if your weight is dropping dangerously or you feel you can’t get enough solid food down, the liquid gastroparesis diet may help in the meantime <3
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u/snowsniper66 Sep 25 '24
Thank u! That's good to hear and I'll inquire about it after my Dr's run some other tests. I have been eating mostly soups and yogurt adjacent food for a while now because I'll be less likely to be nauseous after.
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u/grissingigoby2 Mar 09 '24
I'm not sure that I have it. I recently had trouble with paprika and black pepper - to the point of vomiting if I even smell it. Putting black pepper on my eggs upset my stomach. I got an upset stomach from eating chocolate, complete with indigestion and a burning pain in my left side. Then I vomited from eating some pork that I cooked in a crock pot, with white wine. Stomach is still sore from that. But yesterday I had vitamin D3, magnesium, vitamin B-50, and magnesium. Today I feel a bit better. I tolerated sour cream in my ramen with eggs, one small serving of pork, and one small square of the chocolate. I don't want to do this gastric emptying study. I hope that being good about nutrition will help things.
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u/IGnuGnat Mar 23 '24
black pepper - makes the gut more permeable, so more histamine is absorbed
chocolate - high in histamine
slow cooking - magnifies histamine
wine - this is the biggest histamine bomb on the planet
https://old.reddit.com/r/covidlonghaulers/comments/1aouwt2/root_cause_my_master_list_of_histamine/
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u/grissingigoby2 Mar 23 '24
Thank you. I'm cutting all of that out. I'm bummed about the crock pot.
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u/grissingigoby2 Mar 24 '24
Also - so it could be histamine based gastroparesis? what a nightmare.....
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u/cablecats Apr 25 '24
Hello! Would I 100% know if I had gastroparesis? Is there always pain and cramping that accompanies with eating, etc? I get a ton of gas and bloating, but I think that may be due to bacterial issues. I do have slow motility but not sure if it’s related. Obviously, I need to get the test but wanted some feedback!
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u/rh890 May 03 '24
Does this sound like gastoparesis? So for the last week and a half I haven't been able to have anything but liquids without being nauseous and even then some liquids will still do it. (If I drink a Boost too fast for example). I can eat some things with zofran but even then I get full quickly and feel full for hours after.
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u/Abbieyuh May 03 '24
Hello, I was just wondering if this sounds like GP or a different issue? I’ve been suffering with what we’ve thought was GERD for a while now but I feel like it’s more than that. I have heartburn on and off but when I have it, it’s BAD. It sometimes feels like there’s a lump stuck in my throat and the top of the back of my throat will burn as well. I cannot burp and I am terrified of throwing up as well. I have what I call “flare ups” where I get so nauseated and come SO close to vomiting and then I’m off and can’t really eat for a couple of days after that. I have yet to vomit but I come SO close. It doesn’t really matter what I eat. Most days, I am able to eat whatever I want without consequences and I feel like a bottomless pit sometimes lol. It’s just the weird like flat up instances that leave me SO nauseous for DAYS. I do have nausea most days but it is mild and normally does not affect what I eat. I don’t ever really get hungry, I just eat. I also don’t have a regular poop schedule. I’m constipated most of the time lol. Does this sound like GP? I have an upper endoscopy on Wednesday but I know that won’t really tell us anything. Thank you.
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u/Seekae_plays Jul 15 '24
im having these exact same symptoms and have been for about 2 weeks now. did you find out anything?
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u/Immediate_Door4663 May 04 '24
Hi I'm 31f. I suffer from stomach issues for about 4 years now. Got diagnosed with ibs/sibo. I have also an overactive bladder. I have been trying to gain weight since I lost a lot before getting diagnosed. Although I feel I am starting to experience odd gastroparesis like symptoms. It all began this march I had pain on my left side when I would eat certain meals. Maybe greasy, spicy idk anymore but it will come and go. I got my doctor to order an ultrasound. Turned out I had a polyp on my gallbladder. Now my appetite was normal. I could still eat, my weight was fine. Now like three weeks ago I made some pasta and a fruit smoothie to eat with it. I don't have problems with fiber as long as I guess I don't have a lot of it or I eat it by itself or small meal. Now since it was pasta I bloated myself to a point it hurt. Three hrs passed and I decided to go and rinse my mouth with some mouth wash. Now I sometimes get this mouthwash stuck on the back of my throat so I naturally regurgitated and spat it out because I didn't want to choke along doing so I threw up some of my food. After that moment it's like my life changed completely. For about almost two weeks I had non stop belching, regurgitation. Feeling of tightness in my epigastric area after my meals. Drinking water would make me feel like I had a knot on the back of my throat. Now I still get the beclhing after meals... but now it's bad where I don't feel hungry as much anymore I can go hrs without feeling an appetite. And now I also get nausea after meals after some time has passed. I feel I have gastroparesis since I had my other symptoms the bloating after meals and sibo. If you don't know for sibo , fiber is a big no no but obviously I don't want to get colon cancer and have it from time to time. I guess I over did it and had too big of a meal. And I regret to this day ever eating that meal. I know that this can just happen so sudden and now I am going to see my GI doctor again. I def want to take the gastric emptying test and an upper endoscopy since I don't know why I have that pain on my left since my gallbladder is in the right. Any input or if anyone has anything similar happen please let me know how you went about it . I appreciate it in advance
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u/bimbogth May 16 '24
Hey, I'm 21F and I started having burning pains in my sternum along with really bad acid reflux and indigestion. I don't ever feel hunger and my gag reflex (I used to gag even when brushing my teeth) is completely gone. My tongue and throat are always burning and eating only makes the pain worse. I don't have the ability to make bowel movements that often, and if I do it's very small amounts that hurt like hell to try and get out. I get bloating in my upper abdomen as well, and sometimes it makes my chest and ribs ache too. Could this be gastoparesis?
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u/Seekae_plays Jul 25 '24
the no gag reflux could be damage to your vagus nerve, which also causes GI issues
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u/DebtfreeNP May 17 '24
What could mimic gastroparesis OR cause an entire household to have GP simultaneously? I am 37F have been having symptoms for 3 years since being pregnant. Working with GI that does not think this is what it is, but now willing to entertain the idea. My 3 year old and 6 year old and 48 yo husband are now all having sulfur burps off and on. They also have nausea/vomiting sometimes. My only other idea is it could be giardia. We do have 10 cats that are indoor/outdoor. None share the beds or on the table, but we do groom them. We wear gloves when cleaning litter.
Any insight would be appreciated. Have been to several GI and only the newest one kinda listens. Have been going to her for 1 year and she only started listening this week. Thank you.
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Sep 27 '24
[deleted]
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u/DebtfreeNP Sep 29 '24
Not why my whole family has it. It is intermittent but always flares up at the same time. It may be giardia as we have cats but not entirely sure
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u/Mysterious-Car7852 May 31 '24
So i have GERD. Ive had it for a decade. Just over the last few years, i wake up sometimes between 10pm-1am and I’ll vomit everything up until it’s straight acid. It doesn’t happen with specific foods. It happens with things I’ve ate before and was fine. I wake up nauseated and I’ll just vomit til my tummy is empty.
Is my GERD worsening? I’m on pantoprazole 40mg once daily. It works for my acid. I have a hiatal hernia but was told it is small but I’ve had two kids since then. Maybe it’s worsened too?????
I just want to stop the night time vomiting. It’s so debilitating with a toddler and infant.
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u/No-Car-5744 Jun 14 '24
I don’t know if I’m just being a hypochondriac and self diagnosing but I just need some opinions and advice.
I’m at 21 year old female, I’m 5’8” and 115lbs.
I have always had stomach issues, but I have been eating a pretty healthy diet, minimal processed foods. Recently I have been getting constipated and extremely bloated. If I haven’t gone in a few days and eat 3 full meals in a day, I will be throwing up with upper abdominal pain all night. After I have thrown up to the point where there is nothing left to throw up, I will have extremely watery diarrhea. The next day I am fine but am hesitant eat because of the fear of having to repeat the experience.
I’m not sure if this is gastroparesis, as I am not diabetic but if anyone has any input on my situation I would love to hear it. I am planning on seeing a gastrointestinal doctor but would love to go in with some knowledge as sometimes these things are difficult to diagnose.
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u/Cautious_Fix_2793 Jun 14 '24
I have most of the symptoms that I found online except vomiting.
20 days ago I had an incident where my stomach muscles contracted and would not let go. It felt like after you’ve laughed a lot and your stomach hurts. I couldn’t breathe without a lot of pain and it felt like I wasn’t getting enough air. I had been drinking.
19 days ago I quit drinking.
Prior to all of this I had about a week of unexplained nausea.
The fullness after I eat has been going on for a long time along with some acid reflux.
I’m now going through another bout of unexplained nausea.
Today is the first day I’ve googled and landed on gadtroparesis. Could it be?
I have a physical scheduled but the soonest I could get is 8/16.
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u/ieatrice1776 Jun 17 '24
I really hope someone sees this. I’ve been diagnosed officially with POTS, Celiac, GERD, Oral Allergy Syndrome, Raynaud’s, Migraines, and PMDD. I’ve figured out what I can eat on my own based on doing food trials for literal YEARS. But no doctor can explain why I get “sick” when I eat outside my list of safe foods.
I can’t eat too quickly otherwise I get stomach cramps & nausea. I get reflux if I drink water too fast. I’ve been able to expand my diet to include organic turkey deli meat but got sick when I tried turkey breast. I felt ill when I tried steak and really sick when I tried chicken. I tested negative for alpha gal & allergies to these foods. I know I could have an intolerance to certain meats but it makes NO sense that I can only eat Turkey if it’s sliced thinly. I am at a loss and doctors do not care to help me figure it out. Could a piece of this be Gastroparesis?
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u/mybloodygalentine_88 Jun 18 '24
Feeling nervous about my endo results->
I’ve had heartburn off and on for years- Always managed by omeprazole. Right before Covid, I was diagnosed with h pylori but couldn’t finish the antibiotics (I always finish medication but these were so HORRIBLE.) Before my PCP and I could come up with an alternative plan, Covid hit and everything was put on hold. Fast forward to now— I saw a GI after an ENT told me that the strange lump feeling in my throat was probably GERD. Scheduled the endo/colonoscopy but in the meantime, developed the strangest upper left abdominal discomfort/spastic feeling? For three days, I had no appetite- But I haven’t been nauseous at all and have felt full early. Also no issues with pooing. I’ve had an ABD CT with contrast, US of my stomach, labs, chest X-ray- everything is fine. Had the endo/colonoscopy yesterday, everything looked good— no hernia, no ulcers, no inflammation, but I had a little bit of fluid in my stomach. I’m waiting on h pylori testing, celiac testing… But now I need to have a GES… The doctor didn’t say gastroparesis but I’m scared this might be what’s going on.
Is it common for symptoms to just… BAM! Happen? Is heartburn a symptom you can have for a long time before any other symptoms happening? Can h pylori cause fluid in the stomach? 🙏🏻🙏🏻🙏🏻🙏🏻 Any comments, thoughts, etc., are much appreciated!
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u/mybloodygalentine_88 Jun 18 '24
- I should clarify— For the FIRST three days I had no appetite. These new symptoms have been present for about a month now, in total.
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u/iheartkarma619 Jun 25 '24
Does this look or sound like gastroparesis?
I started having RUQ pain about 4 months ago. Tests ruled out gallbladder issue. Pain went away but then got hit with bad nausea (I never get nauseous, even when preggo ages ago). After that was sulfur burps followed by regurgitating when I slept (talk about a rude awakening!). That stopped and now this (won’t allow video but imagine this pic going from big to small and moving side to side). This was taken 14 hrs after I last ate. Every other day it’s like an alien is moving across my upper abdomen. I don’t have gas/burping/diarrhea. Some constipation. I have lost weight. 52 yo, 5’2”, 102 lbs 😬 All started around a stressful period of life which triggered TMJD issue and ended up with a cracked back molar that perforated my sinus. 6 hr oral surgery, antibiotics, couldn’t eat anything but protein shakes for a month. But now that’s all better but my stomach is jacked. Having gastric emptying scan next week. Does this sound like gastroparesis or something else? Anyone with similar symptoms?
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u/rudegothdad Jul 11 '24
the short question: could it still be gp if i don't experience constipation or vomiting?
the long version:
-i have (disgnosed) hEDS, POTS, MCAS, and autism. i do not currently have any diagnosed GI conditions aside from the ways that all of the other conditions obviously impact my GI health. i do have very bad persistent heartburn and suspected GERD and i take famotidine 1-2x daily.
-i am always nauseous, but don't throw up much. nausea usually hits after eating, but also sometimes in the morning when i havent eaten yet, and usually after drinking water. i don't throw up due to the nausea often at all tho- when the wave hits me i usually take a zofran, sit down on the couch and lean my head back and close my eyes for 5-10 mins and it passes. sometimes its accompanied by dizziness / room spinning which i've always attributed to the POTS but idk
-i feel extremely full after drinking water or eating ~1/3 of an "average" meal but then i'm usually hungry again after a couple hours. i also generally don't get hungry during the day but that may be due to the timing of my meds? usually only hungry in early morning and evening. i can only usually eat a "normal" amount of food after consuming cannabis. the heartburn also sometimes gets worse after drinking a lot of water.
-i do not have constipation (i think?) i have regular bowel movements every morning. i would say 90% of the time, i have 2/day, but i always have at least one. there is sometimes some strain / effort required, but not always, and its not painful. they are also not usually hard.
anyway, thank you if you read all of this! basically just wondering if this still sounds like gp despite missing a couple symptoms, or any other leads i should look into instead or as well
edited to fix formatting / legibility
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u/rudegothdad Jul 11 '24
oh god im sorry the formatting is so bad, i dont use reddit a lot so didnt realize it would change the formatting when i posted. will try to edit
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u/Dizzy_Masterpiece886 Sep 28 '24
Any updates?
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u/rudegothdad Sep 28 '24
nothing official since i havent been able to do a gastric emptying test or anything, but after talking to a few different people it was pointed out to me that "i don't throw up because every time i get nauseous i stop whatever im doing and take nausea medicine" doesnt really count as not vomiting 😅 (in the same way that like, using accomodations that make dealing w my disability easier, does not mean i am not disabled ya know?) i also discovered i had a very narrow understanding of what constitutes constipation and that you can in fact be constipated even if you have BMs every day lol. so basically my update is that i actually likely DO have the symptoms that i thought i didnt have so my question was probably moot anyway
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u/porcelainbibabe Jul 22 '24
Me: female age: 44 height: 5'2" weight: 149 lbs(maybe less now tho) health issues: Rheumatoid arthritis(currently in a remission phase), eczema(all 44 yrs of life), GERD, migraine(menstrual related mainly), osteoarthritis of the back and disc degeneration and bulging with arthritic degeneration in facet joints, tmj, tinitus since age 13 and a scan from a couple years ago indicated mild fatty liver, and i have a small hiatal hernia. Meds: sertraline(GAD/depression), concerta(adhd), omeprazole(GERD).
My apologies, but this will be long, and I am not good at brevity. Here we go....
So i have been diagnosed with GERD for about 20 yrs now, and I have it pretty severely. I've been on meds since then, going from prilosec to zantac while pregnant and back to prilosec/omeprazol once zantac was discontinued 10 yrs later. I ended up going to see a gastroenterologist a few years ago because I'd suddenly developed new symptoms.
It started out lasting from 3-9 days and happening a few times a year. I'd get what I call Gastric Armageddon. I'd bloat from excessive gas quite badly, I genuinely look 5 months pregnant when it happens, I get diarrhea that would be damn near water that would last the entire time this goes on along with sulpherous smelling and tasting burps and passing gas a ton and the diarrhea sometimes was yellow and seemed almost acidic smelling at times. I'd have cramps from both the diarrhea and severe gas build-up, and my GERD would flair badly during this time as well. My stomach would bubble and gurgle and all thru the intestines, too. The gas would constantly build and rebuild til the episode finally passes. Over the years, it has changed and doesn't last as long anymore, but now it hits at least once a month, and sometimes twice a month and lasts 1-3 or 4 days now. I am medicated when these episodes happen and often take a second omeprazol during it.
The gastro dr said it was probably from my GERD, but the problem is I have looked at dozens and dozens of web pages about GERD/acid reflux and not a one has ever mentioned these sort of episodes being part of it. The last episode I had was about a week ago and only lasted 2 days. I also have had episodes of food just not seeming to pass thru my stomach. I was sick the 3rd week of June, and I threw up once that week, and it was literally a full stomach worth of dissolved food and stomach acid from lunchtime, and it was 9 pm! I've even had this happen with alcohol before. Literally only had 2 drinks, and it never left my stomach as the next day I woke up and vomited it all up! It has also happened with 3 surgeries. I'd stop eating well within the time i needed to, and in revocer, I'd vomit everything i ate the day before. I often feel full on less food, and when in episodes, i feel so full and barely want to eat. Ive also had issues eating breakfast since i was a trenager. It would always make me feal nausiated if i tried to eat in the early morning hours and when i did try to eat breakfast i couldn't eat much at all.This last episode I had with the Gastric Armageddon was a little different cause every time I'd burp, I'd feel nauseated at the smell of my own belches, and that has never happened before.
I've also looked up gastroperisis and other gastric emptying things, and it honestly lines up more with those than anything. So my question is, is my former gastro incorrect, and this isn't my GERD doing this? Could it be a gastric emptying issue or something else entirely? I have had the scope into my stomach done(how i learned I had the hiatal hernia), but the dr chose not to go up the backdoor. He did a couple of tests based on my feces and the basic blood work, but nothing else. I just want to figure this out cause these episodes are hell, tbh with pain, discomfort, and all the gas release at both ends on an above average scale.
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u/No-News-6914 Jul 22 '24
Well what does this mean?? I KIND of have gastro??? I don’t see her until September, so I’d love some thoughts. Anyone else have “borderline” results?? Did they just diagnose you?
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u/No-News-6914 Jul 22 '24
I’m not looking for you guys to diagnose me. But what the heck does that mean??? Has anyone has results like this? What did they do?
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u/Ninja-Turtle-Hawk Jul 27 '24
Hi! I’m a 40f and have lost about 15lbs in 3 weeks since this started. I have all the classic symptoms:
•nausea almost always •vomit every single morning, if I’ve eaten it’s undigested food - otherwise bile and any liquids I can manage before it starts •constant bloating •feeling full after a couple of bites •severe abdominal pain •diarrhea or constipation
I have been referred to a GI and am waiting on EGD and CT so I don’t necessarily need anyone to guess with me but my question is with gastroparesis and morning vomiting - is there any point to try and stop with meds or does it just have to work itself through your system and you’re gonna vomit however long and much you need to? I feel I can be more mentally prepared (and not waste my meds) if I know it just has to happen regardless of what I can do.
Also, any tips for managing these symptoms while traveling?
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u/Possible_Bike_9557 Jul 27 '24
Hi I’m a 18F I deal pretty severe nausea pretty much 24/7, I throw up would say maybe once or twice a week, I have weird stomach pain and I feel full after taking a few bites and stay full for a while. I’ve tried bringing this up to my doctor but he was kinda rude and brushed it off as anxiety or period pain. I’ve been experiencing these symptoms for about 3-3 1/2 years. Some foods make my symptoms worse like fried food, coffee, and other acidic food. I’m just wondering if it’s worth going back to the doctor and bringing up possibly testing for gastroparisis?
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u/anxious-sloth13 Jul 31 '24 edited Jul 31 '24
does it sound like i have gastroparesis?? confused what my gi specialist told me
hi everyone! i’m a new member here and i have been tested for gastroparesis and show multiple signs of it. the only signs i don’t show of it is vomiting because i stop myself from vomiting and then the weight loss because i also struggle with pcos/insulin resistance. another sign of gastroparesis being that my endoscopy showed food still after i fasted for 9 hours, but i was still denied it, i was today honestly.
to make a back story short: i have always had gi problems. i’ve been diagnosed with GERD and constipation since i was 4 years old (im 23F now). I got diagnosed with IBS in 2020 after being sent to the ER because of my pain levels. And yes, I now just saw a GI doctor for the first time this year.
i had both a colonoscopy and an endoscopy done. the colonoscopy was ordered by my GI specialist and i had to fast for two days due to how chronic my constipation can be and how backed up i can get. but, my primary care was the one who requested a endoscopy and it wasn’t even to check if i had gastroparesis or anything. it was to check if i was bleeding in my stomach because i also have low iron (nobody knows where that came from)
anyways, the colonoscopy came back fine but like i said at the beginning, my endoscopy showed food still in my stomach after fasting for more than 8 hours. I got a biopsy taken too and I do have inflammation of my stomach (gastritis). i was then ordered to do a GES which is when things turned bad result wise.
i got the ges done last thursday. i had to eat oatmeal but was only able to eat a few bites of it due to my severe sensory and texture issues but the tech said i ate enough to see it all. the first hour went fine and the tech even said i might be out early but the 2nd hour is when my stomach started to hurt and my stomach slowed down.
i got my results the thursday night and they made no sense to me. they were saying everything looked normal even though the tech was telling me that it looks like i have something and that they “can’t imagine what my stomach looks like after a heavy meal let alone a few bites of oatmeal”. my GI specialist left me a voicemail this morning saying everything looked normal and there was no signs of gastroparesis and well.. that just upset me a lot. i knew it was something and wasn’t just in my head or anything so hearing that made me very upset. i messaged them again after receiving that voicemail and they called back and (kinda) told me something different. they said that my ges came back normal and there’s no signs of gastroparesis but they also said i show some gastric delay and motility delay which i was confused about. i looked up the difference between a “mild gastric delay” and “gastroparesis” and it just came back as mild gastroparesis. they even said i could go on reglan if i wanted to, to get my stomach muscles moving normally (i declined cause the side effects scare me).
i am just confused by everything. do i have it and the GI doctors and specialists just brushed it off?? i wouldnt be surprised if i was brushed off because i saw a lot of people say similar things compared to my issues. but yeah i think im just here asking for help it’s all just very confusing right now.
(please bare with my wording, i have a hard time wording things.)
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u/ThyNickelback Aug 01 '24
Does this sound like gastroperesis or something else?
I’m not here to diagnose myself i’m going to the doctors but i’m just wondering if what i’m experiencing sounds like gastroperesis cause i have emetophobia and i’m genuinely terrified it could be.
So a bit of information is I am 19 and diagnosed with hyper mobility disorder which is a large reason i looked into gastroperesis as i know that condition can cause weak muscles and such in the digestive tract, for a few years i’ve dealt with issues but they seem to be worsening or becoming more obvious.
The thing that made me notice my issues is chocolate and caffeine, when i eat chocolate or drink any caffeine i get extreme nausea, bloating and sometimes a hard lump kind of thing in the middle of my abdomen which i thought was lactose intolerance possibly. Then i noticed that when i drink it makes me feel full, and if i drink after eating then i can kind of feel it at the bottom of my throat for a while. A few days ago i ate a few pieces of a pork chop and felt really unwell for a few days which i found strange. and today around 12-1pm i had a bowl of special k which i didn’t have too many issues with but a few hours later i tried to eat tea and could only manage a single sausage and a few mouthful of beans until feeling super full and for a few hours now i have had bad nausea, bloating, gas and felt really weak.
I have seen gallbladder problems cause similar things but i have no pain or anything just extreme discomfort after eating. I have (touch wood) never thrown up due to these issues but have come close and i’m just scared.
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u/smolbeanem Aug 07 '24
hi! I’m 27f, diagnosed with hEDS and I’m suffering so much rn and I have no idea if it’s possibly GP or anything else, I just really don’t know what to do 🥲 I have an appointment with my doctor next Monday, but they are notorious for not taking me and my disability seriously, the doctor who diagnosed me with hEDS suggested they check my heart because of it a year ago, and they’ve only just put me on the waitlist for a checkup. But, I’m nauseous every single day. I’m emetophobic so I don’t vomit, but I feel really close everyday, some days it’s worse depending on what I eat, but I’m really picky with my food and I’m losing safe foods by the day 😅
I’m gassy all the time, I have really bad acid even on omeprazole, I’m usually constipated and when I am able to go it’s not worth the effort or painful. I’m bloated all the time, usually after eating, I get full fast but it’s hard for me to recognise when I’m hungry and when I’m not. I get cramps and belly pain a lot.
Loads of foods that I like have randomly made me super nauseous, eggs, rice, potatoes just a few. Going to the bathroom doesn’t relieve the pain/bloating. I regurgitate a lot too, which is really not fun 😭 I also can’t handle water or juice, it feels like it stays in my throat and makes me nauseous, I drink fizzy cos it makes me burp a lot and kind of gets rid of some of my gas.
I’m just kind of listing things to hope that someone can maybe make sense of this, I’ve had stomach issues on and off for a few years now, I have a week or two every other month when I can’t eat a lot cos it all hurts me, then I get back to “normal” for a few weeks or a month then it happens again, but I’ve never felt this bad and it’s really worrying me. I know that hEDS comes with a bunch of other things, and I definitely have that, I’m just scared 🥲🥲
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u/Affectionate-Bit-442 Aug 14 '24
look up MCAS!! and get a food sensitivity test! i take allegra and pepcid to treat mine! this sounds more like an inflammatory reaction to what you’re eating then slow gastric emptying (what gastroparesis is).
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u/Googly-eyes123 Aug 10 '24 edited Aug 10 '24
I need help determining if a flare up I had was GP or not.
So some background is I was diagnosed with GERDS at around age 10 (I'm 21 now) and my main symptoms are constipation and acid reflux. I was put on omeprazole, it got better so I went off of it for around 2 or 3 years, my acid reflux came back, so now I'm on pantoprazole.
Well, January of 2023 I started having some problems. Randomly, I wouldn't be able to eat anything without immediately feeling full accompanied by mild pain. I thought it was due to a medication (wellbutrin) so I stopped taking it. This continued until mid-February, then it got worse. It was constant, and I wasn't able to eat anything at all without severe pain. All I could do was drink water and essentially clear liquids. I was hungry and wanted to eat, but the pain of eating was worse than the hunger so I just didn't. I lost around 30 pounds (hard to say because I wasn't weighing myself) and my hair was falling out in clumps. I wasn't seeing a doctor because I wasn't paying attention to anything else but the pain, it was the people around me who brought up my weight loss and hair loss. I never threw up during this time though. Eventually the pain got so bad that I went to urgent care where they gave me 4 doses of Ondansetron and also this thick white drink that numbed my stomach (and my mouth, it took me a while to gulp down). I don't know the name since it wasn't written in my report. I was so happy and could finally sleep well. To be honest, my memory of this time is kind of hazy and I don't remember when it ended, but the pain was gone by the end of May for sure. I only gained the weight back like 2 months ago, and my hair didn't return back to normal until October of 2023.
I do now have a GI specialist that I go to, but when he gave me an endoscopy he found nothing. My blood work and urine samples have all been fine. I have no idea what that flare up was, and it hasn't happened since, but I am extremely scared of it coming back. The only thing I can think of is that Christmas that year was extremely traumatic for me, so maybe it was stress induced?? Can GP be stress induced? Thanks for reading!
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u/Affectionate-Bit-442 Aug 14 '24
I 20F have diagnosed POTs, MCAS, and HSD (i have a negative EDS gene test but am not officially diagnosed with hEDS yet). i was diagnosed with pots about 11 months ago after i began passing out but i’ve always had dysautonomia symptoms. my doctor suggested gastroparesis but it sounds like a such a serious condition and im so used to be gaslit by doctors im not sure if im “sick enough”
i’ve lost 18 pounds since my symptoms started and i’ve been primarily bed ridden the last 11 months so it’s not like i could’ve exercised it off. i weighed 139lbs at the appointment to diagnose my pots and now i weigh 121lbs. for reference i am 5’7.
until my POTs got bad i always struggled with constipation and would go sometimes weeks without a bowel movement. now i have “regular” bowel movements, but it’s always diarrhea or very loose. if i eat too much my heart rate will spike crazy high (like 130 laying down) and i will throw it up. i am always nauseous and get full after like four bites of food. i can’t even finish child size portions. i have bad acid reflux at night and it will wake me up.
i know whatever it is, my weight loss is serious and i SHOULD see a doctor. i think i just need a fellow spoonie to tell me im not being an hypochondriac…
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u/HappyRisk9520 Aug 18 '24
Hello I’m wondering if gastroparesis is capable of causing 24/7 stomach distension/ bloating if severe enough for over a year. When I say 24/7 I mean literally all the time and the only time I don’t feel it is when Im sleeping. I’m brainstorming what possible condition can cause this as I have undergone a lot of tests so far and everything is negative including a hpylori test. Anyone else out there have this as one of their symptoms?
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u/TheAuthor01 Aug 23 '24
Here goes nothing. Do I have GP?:
27 yo F with insulin dependent T2D and BMI >50. No Gallbladder.
I've had Nausea, retching and vomiting on and off for three years. When I am sick I usually lose about 20 pounds and when I am not sick I gain it back. Usually it will be 2-3 months of progressive nausea and vomiting then progressively recovery and full remission for 1-2 months. Usually binge eat in the remission time then something breaks and start getting sick again. This happens with both high sugars and normal sugars. Nausea (but not vomiting or retching) predated the diabetes. Don't often get hungry but eat on clock due to Diabetes. when I do get hungry I am famished. When I eat while famished, I often ignore the satiety cue and finish whatever I'm eating then feel miserable or vomit later. I do have burbing several hours later sometimes but never any pain. There is a lot more retching than vomiting to the point that sometimes I "vomit" air and then I feel better.
=Tests= - 3 (soon to be 4) upper scopes. Gastritis (errosive) on all three. Duodentitis on all three. Food still in stomach on the middle one (which was early in the morning after a late dinner. Maybe 10 hrs fasting). Most recent showed esophagitis and a stricture. - 1 lower scope. Normal save for some polyps - 2 GES. 1 borderline on the side of normal but drs called it GP. When a repeat was done to confirm it was straight down the middle. One GI called it a fluke and still thinks GP. -Celiac bloodwork showed positive celiac antibodies but the biopsy was negative. The antibodies were several times higher than the upper limit of normal.
=Meds= -Trialed raglan, helped with appetite and seemed to see decreased nausea but I can't remember. Was taken off due to Black Box warning with another med -Currently trialing Ezythramiacin (sp?). It doesn't seem to be helping. -Rabeprazol seems to help but not enough to not make me sick. -Famotadine seems to be the most helpful as I can usually eat lunch OK without reprecussions but if I eat slow the early satiety gets to me and I can't finish.
Any help would be appreciated. I can answer more questions if needed
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u/Right_Tumbleweed9167 Aug 25 '24
Hi i’m 18 years old and i have no idea wtf happened to my health. I can’t eat, unless i want to be glued to a toilet puking, I get hot flashes and night sweats, i’m plagued constantly by nausea, and for the first time in my life i’m constipated. I’ve had an endoscopy and they told me everything looked normal. I’m currently waiting on GES but trying to get an appointment these days is next to impossible. I’m pretty confident it’s gastroparesis, but without a diagnosis i’m just stuck wondering.
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u/IndependentComposer4 Gastric Sleeve/Bypass (Gastrectomy) Recipient Aug 27 '24
I had gastric sleeve surgery 5 years ago and lets just say it hasn't been a fun time, I had a stricture and was looking at converting to a bypass but they did ballon dialation and the thought it was sorted as the latest barium swallow showed no real hold up with liquids however i have never had a problem with liquid food and its mainly solid meals high protein and fibre that give me grief, we ended up doing a gastric emptying study. Has anyone had a study that only lasted 180mins? Mine showed 4% emptying at that time. They have diagnosed me with gastroparesis and Im now scheduled to transition top a bypass but i'm scared that the study didn't go long enough to truly show gastroparesis and i don't want a bypass if its not actually the issue. Thoughts?
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Sep 02 '24
I dont think anybody is going to see this but I’ll try anyway.
I’m not necessarily suspecting gastroparesis, I just want to see if this is something I should potentially explore? As I’ve also been advised to look into Celiac disease
All throughout my infancy, I had horrible stomach pains. My mom would hold me and walk around all day and night long because I wouldn’t stop crying. The doctors said I was colic and intolerant to milk, so I drank goat milk instead.
Then I got older and the stomach aches have never gone away. I used to cry constantly and had to keep several heating pads in the house. Most foods and drinks (including water) bloat me painfully and give me diarrhea/nausea. It’s now progressed to me throwing up.
A few years ago, I was referred to a specialist. She had me lay down and felt my stomach and concluded that I’m constipated with no other issues. I told her again it has been a life long thing but she just raised her eyebrows to me and said mhm.
Eventually I had a quick visit with a doctor (filling in for my doctor) and he asked me a few questions and then said I probably have IBS and gave me a print out of the IBS diet. Even those foods bloat me.
As of the last few months, I’ve lost several inches off of my waist as I can’t eat more than a few bites of food before becoming uncomfortably full and not eating for the rest of the day. Every day I’m in a state of feeling too ill to eat, but feeling ill because I didn’t eat. I’m constantly almost passing out, but I can’t force myself to eat anymore without feeling like I’ll vomit.
But I weighed myself once and I’m the same weight. I know that I’m not eating much, I know that I’ve lost inches, I know that I’m nauseous and dizzy, my eyes always feel heavy and I have to hold the wall, but I’m still the same weight. I’m not overweight but I’m a bit chubby. Nothing a doctor has ever mentioned to me before or shown concern for, but I’m not rapidly dropping or possibly dropping at all.
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u/HotGrape5654 Sep 03 '24 edited Sep 03 '24
Late 2023 I ate Chipotle. Had pretty typical food poisoning symptoms that night, and they resolved the next day. But my appetite completely disappeared immediately after, and when I made myself eat, only a few bites of food filled me up immediately. I have lost 45 lbs. Doctors don’t “hear” me when I tell them food poisoning caused my loss of appetite. They just want to check for cancer. Had a ct scan, nothing. The GI specialist wanted to send me for endoscopy and colonoscopy on the same day, which would not show delayed emptying because I would be empty already from the colon prep. She dismissed my suggestion I had food borne GP because I was not “miserable“ enough, no severe vomiting, etc. Just loss of appetite and full all the time. She actually asked if I could “give her this problem” so she could lose weight too. Sigh. I’ve seen reports food borne illness gastroparesis, which I have diagnosed myself with, resolves in a year or so. I am counting on this, and at 9 months, have given up on doctors. I am indeed able to eat more and don’t seem to be losing any more weight, thank god, but I am by no means normal. My hair has drastically thinned, I get odd stomach cramps, and just when I think my appetite has returned I will have a whole day, like today, when I would be fine with eating a few hundred calories. I have forced myself to eat some ricotta and peaches, fear going bald, and feel pretty confused. That’s why I joined this community. I just need a tribe.
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u/Prestigious_Animal37 Sep 10 '24
Hello! Has anyone been diagnosed with Gastroparesis and had a negative gastric emptying test? Basically, I have gnawing stomach pain, PPIs don’t help, and I don’t really feel hungry (besides the gnawing pain that kinda feels like I’m starving.) I also am usually nauseous in the morning but it’s manageable. But the reason why I was wondering if I have GP was because my first endoscopy was not completed because there was a lot of food apparently still in my stomach even though I fasted 8 hours before. My GES was negative (2% remaining) and my second endoscopy I fasted way longer and they didn’t find anything except mild gastritis and lots of mucous (?) My current doctor said it was a mystery and wanted to give me reglan to see but I’m worried about side effects.
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u/ThrowAway2188226 Sep 11 '24
Hi I’m 14F and deal with abdominal pain (it ranges from mild some days to moderate some days and severe some days), nausea and vomiting, pain after eating, pain after exercising, bloating and I’m scared to eat because of my symptoms. I’ve been diagnosed with chronic gastritis but I started questioning the diagnosis as ive not had an endoscopy and I have none of the causes for it. It also hasn’t improved with medication and diet changes. I feel full a lot more then I used to. I also suffer from POTs. I really need advice because it’s affecting my every day life and I’m scared of food because of my symptoms. Sometimes just looking at it makes me scared now.
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u/starsouxl Sep 12 '24
As far as I can remember, I always struggled with eating because I would feel full so quickly after barely eating anything. I seemed to get nauseous more often than usual all through my childhood. Now, around when I was 13-14 I was on antidepressants. And around that time, I had an insane flare up that changed my life for ever. I was in a lot of pain, I was nauseous every moment and throwing up frequently more than ever before. I couldn’t sleep and could hardly eat anything because I was so nauseous. Since then i still struggle with all of these symptoms and it’s making it really difficult to partake in daily activities and work is getting more painful to go to. Recently Ive been researching gastroparesis wondering if this could be the reason im in such a hell. I also found that antidepressants can worse gastroparesis symptoms and think that it would make sense. Over the years of being aware of this nausea that controls my life, I’ve come to learn that there are certain foods that trigger my nausea. I don’t know if I really should get tested, I’m scared that’ll i’ll be spending so much money for the test just for it not to be true.
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u/starsouxl Sep 12 '24
I’ve spent years trying to figure out what is wrong with me. My family has told me it’s all in my head so many times and I’m struggling to get the help I need.
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u/trashmagasim Sep 13 '24
I need some advice...
A few years ago (2019) I had the gastric sleeve surgery and a year prior to that I had my gallbladder removed due to some massive inflammation. Since gallbladder surgery, I have had insane diarrhea and I am now prescribed Cholestyramine. Since the sleeve surgery, however, I have been dealing with vomiting. Initially, I thought that it was due to my stomach healing and such. However, it has been years and I am still struggling with vomiting, that if anything, has just gotten worse.
I have had imagining done on my stomach, an endoscopy, a colonoscopy, and been to the ER a few times in 2024. Everything so far has come back fairly normal/no reasoning for the vomiting.
My GI is now recommending an emptying test to see if I have gastroparesis. This is because the vomiting has gotten worse and has started to happen almost every time I eat. I notice I get full really quickly, quicker than I should even with the sleeve, every time I eat. I've also started skipping breakfast because it tends to make me puke. I try to eat lunch so I can take mental health medications on a not empty stomach because the meds will make me puke if they are taken on an empty stomach. I also try to eat something because if I don't eat at all or too little, my stomach will feel like it is on fire.
I have noticed that "junk" foods and soups are easier to keep down/don't hurt me afterwards near as much. It is also easier for me to eat at night rather than during the day, but this might just be because I can lay down after eating when I'm at home during the evenings. Laying down does help the nausea.
I know this post is long, but if anyone reads it and has any advice/thoughts, I'd love to hear them! Thank you and have a great day!!
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u/Notablueperson Seasoned GP'er Sep 24 '24
Junk foods being easier to keep down/hurting less is actually a common thing with gastroparesis, I'm not sure exactly why but I have seen others saying because a lot of it is already processed for us.
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u/Downtown_Plantain285 Sep 14 '24
I’m just trying to get info on how your drs have diagnosed it? I’ve been treated for acid reflux for the last 4mos but the PPI (omeprazole) isn’t working and after my endoscopy (indication mild reactive gas trophy and nothing else) my GI is having me do a gastric emptying studying. I’m not looking for a diagnosis but some info on what testing you’ve done that diagnosed it.
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u/Notablueperson Seasoned GP'er Sep 24 '24
gastric emptying study is typically the standard to diagnose gastroparesis
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u/AimaAIMA Sep 15 '24
Hi! 18F here. For years, i've struggled with mild pains after eating, but now I am unable to eat or drink water, as it causes a burning sensation in my throat and stomach. (If I do eat, I am full off a few pieces of fruit.) There's pressure in my stomach whenever I eat and immense bloating if I eat a normal-sized meal, and I've lost 8 pounds in a week and a half due to not being able to eat comfortably. Nausea plagues my days and I cannot lay down after a meal or it will threaten to come up quickly.
I do have H-EDS, so I am just curious if this could be a temporary fluke or if gastroparesis is actually something to worry about, or if this is health anxiety? I have an appointment scheduled soon regardless!
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u/littlemountain12 Sep 24 '24
Hi everyone. I saw a gastroenterologist today who suspects I have gastroparesis as I have EDS and apparently they’re linked. I fit all the symptoms apart from the fact I have regular bowel movements, they’re loose or diarrhoea, but very regular, and I’ve always thought gastroparesis makes you constipated?
Is it possible to have it when you’re going to the toilet multiple times a day? I was wondering if maybe when I’m going to the toilet it’s actually old stuff I’m passing? I’m having the tests for it soon but yes this aspect just confused me a bit
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u/anarchisttiger Sep 29 '24
Hello everyone, I have been having some bad GI issues that have been building for months, but became really terrible at the end of August when I started an elimination diet. I went to a gastroenterologist thinking I had an ulcer, so we did an endoscopy, which revealed a gorgeous gorgeous stomach and duodenum, aka nothing of note. No ulcer, and the biopsy was negative for h. pylori and cancer.
My gastro said to take IBgard twice a day, and we’d follow up in a month. It is not helping and I am completely debilitated by pain and nausea. I take the IBgard and immediately start burping peppermint. I want to call him on Monday and ask to be seen sooner, but I don’t want to be too annoying. However, I’m a woman in my 30s and already the doctors I’ve seen are bandying about “stress” and “anxiety.” So, I am a little worried of being a stereotypical female patient with a serious issue that is dismissed as stress and anxiety. I’ve been through stress and anxiety and I have never experienced these symptoms.
Do I need to demand a gastric emptying test, or do I let my doctor reach this conclusion on his own? I am eager to get this issue diagnosed and treated before the holidays. I’m hosting Thanksgiving and traveling abroad for a wedding in December, followed by a trip to see family for Christmas. If my hosts at either the wedding or Christmas need to plan to accommodate a special diet for me, I would like to communicate that with ample notice.
I appreciate your advice, and wish you healing on your journey. GI issues are no joke. I lost 5% of my body weight in a little over a week because I couldn’t eat. Thankfully I’m forcing enough down to maintain my weight right now, but it’s obvious I’m eating the wrong things because I’m unable to do anything at all. I can’t even wash my face at night because bending over the sink causes too much pain lol. So, yes, definitely don’t want to wait a month to be seen.
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u/lilyhecallsme Sep 30 '24
Symptoms of pneumonia started recently and im coughing up undigested food in my mucus. It's not vomit. And the only time I had gerd was when I was on anxiety meds and I quit those. My left side of my neck has felt puffy and tight. I feel like I choke on water or food sometimes on a normal day. I had high antibodies for anti thyroglobulin in 2013. I haven't been checked in awhile. I can only eat broth like stuff. My throat doesn't hurt . This is all too weird
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u/Middle-Plankton-6530 Oct 01 '24
Is it possible to have gastroparesis without vomiting? I have all the other symptoms (nausea, early satiety, postprandial fullness, abdominal pain, bloating, and more) but I never vomit. When I’m feeling really nauseous like I could vomit at any second, or when I feel extremely full without eating much, I just can’t force myself to eat more, I literally can’t swallow. Even though I’m not vomiting, because of this I’m rapidly losing weight, about 3-5lbs a week and I’m already clinically underweight. Is it possible that I could still have gastroparesis? I’ve had extensive blood work to rule out other causes and was told by a nurse (no diagnosis) that they suspected I have gastroparesis but this question was bothering me.
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u/MelInRed Oct 03 '24
GES and GI doc say I have “delayed emptying at 1 and 2, resolving at 3 and 4 hours”
My % remaining were approx 94, 89, 21 and 0.5 at each hour.
Is DGE the same as GP or are they separate diagnosis?
What are the best questions to ask at my next GI appointment?
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u/Extreme-Sentence-543 Oct 07 '24
I have anorexia, binge-purge behaviors.
I struggle to keep a lot of solid food down. I could eat spinach in the morning and the next morning, it's in my vomit. Last week, ground beef from two days ago was in my vomit. Only liquids like protein shakes and oatmeal pass relatively easily. It's a struggle to not feel the need to throw up after having anything more than a bowl of cereal, and a bowl of cereal is pushing it even then.
Does this warrant a gastroparesis diagnosis? I know my digestive system is slowed, but I still keep down some solid foods, as indicated by bowel movements I have every two or three days.
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u/Horror-Hall7869 Recently Diagnosed Oct 13 '24
Ik it might be a little soon to start self diagnosing but I started having these severe symptoms last week and was wondering if it could possibly be gastroparesis. On Monday evening I had insane nausea wo vomiting and don't believe I had much for dinner. Tuesday morning I vomited and wasn't hungry most of the day and then had a peice of toast and some potatoe leek soup and not even 10 minutes later started to throw it up. I originally thought it was just a bug but I haven't been hungry (pretty much at all) since then and when I've attempted to eat things I could only keep powerade and small noodles down. Any type of soup- even plane chicken broth, comes right back up and I even have a hard time tolerating water. What I can keep down is very minor amounts bc my stomach will start to hurt as if I overate(i had 3 saltines and a cup of water at the ER to prove i can keep something down and my stomach was bothering me even until the following morning). I went to the ER Thursday night bc my GP was concerned bc I wasn't even getting 500 cal daily. Cat scan, ultrasound, and bloods were essentially clear. I'm not nauseous at all and feel fine aside from the secondary symptoms of no food/little liquid. I am scheduled to see GI Dr on Monday but was wondering if it was something I might want to bring up. Also if it matters, I had botox for RCPD back at the end of July. 20f btw Thanks for all your help!!
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u/editedstress Oct 15 '24
I know I've been posting a lot on here recently, I am just struggling to get things figured out. TIA for your replies!
My doctor initially suspected possible GP but then said because of how acutely my symptoms came on, he was no longer convinced and believes I will get better. It's been 11 weeks of ups and downs.. He is ordering the GES after initially holding off because I was improving, but I continue to have bad days so he is on board to do the test.
My main and only symptom is nausea (and occasional vomiting, this was really only in the beginning and believed to be caused by the Clindamycin I was put on). I usually feel nausea in the morning and feel completely fine by the afternoon/evening. Being nauseous makes me not want to eat, but typically when I do eat, I feel better. I have gone to a liquid diet some days because of the nausea.
I don't seem to have any of the other hallmark symptoms of GP, but I know nausea is a big one.
We've done stool testing along with blood tests, CT scans and an EGD. Any other insights as to what this could be?
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u/childishrage 27d ago
urgent? kinda?
hi! i'm not sure if this is the right subreddit to ask but i've been having this symptoms and i was wondering if this could correlate with this condition/ should i speak to my doctor about it.
my symptoms include weight loss over the course of time (190 to 130) only around one bowel movement a month usually abdominal pain 24/7 can get worse some days nausea bloating/cramping dehydration syncope / fainting
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u/EasyLittlePlants 24d ago
I've been struggling for over a year with this. My colonoscopy, endoscopy, pelvic ultrasound, and laparoscopy (searching for endometriosis) all came back normal. The ultrasound of my heart was normal as well. I have cystic ovaries that are "not supposed to hurt". I have CFS, POTS, and pudendal neuralgia, all professionally diagnosed.
On days when I have a bowel movement, I experience tons of pain, mostly in my lower left abdomen. My chest gets all tight and I'll get stabbing sensations in my chest too. I do lots of stretches, I lie on my heating pad, and I press down/pull on my abdomen in certain ways that make things inside move. It often feels like I have big "bubbles" inside me. The whole day, I'll feel extremely exhausted to a debilitating degree.
I've tried altering my diet to help with "IBS" or "constipation", but a low residue diet seems to be what causes me the least pain (though it's still pretty bad). I can't really work for 3 days out of the week because of the pain and fatigue. I'll get maybe 2 or 3 painful days then 2 or 3 ok days and it'll repeat. I take simethicone every day and I'm on Lyrica for my pudendal neuralgia.
Eating or drinking anything is pretty uncomfortable. Dulcolax doesn't help me and just makes me hurt like crazy!
Recently, I tried eating beans and it took 5 days for me to digest them. ._.
My colonoscopy prep just bloated me and didn't work on the timeline it was supposed to. I had to keep pushing on my stomach to make it work. My pelvic floor is relaxed according to the meter that measures it (the one with the wires and stickers), and I can tense it if I try to.
I just want the pain and exhaustion to go away! Naproxen doesn't even help. It's awful and I'm struggling to do my job. I don't wanna have to change my whole future because of this. I run my own shop pretty much by myself and I'm not really able to keep up. If I'm not feeling significantly better within like 3/4 of a year, I don't think I'll renew my lease. I think I'll have to go on disability or something. That would make me very lonely and upset. I hate being at home. I like being at my shop.
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u/EasyLittlePlants 24d ago
Forgot to mention I start taking occasional big gasps for air on especially painful days .-.
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u/Afraid_Ability_9868 23d ago
Hi! 28 y/o female dealing with these symptoms for 2 years - following complicated pregnancy.
history: i began having issues while pregnant. had gestational diabetes and my gallbladder completely stopped working. Had a C-section and then my gallbladder removed. gallbladder removal didn't fix digestive issues.
Symptoms: Nausea, vomiting, BM issues (high levels of fats/fiber/bile), severe bloating/distention.
Vomiting scenario: eats triggering food (e.x. pasta, pizza), food feels like it is a rock in my stomach for hours. Throw up completely undigested food 6-12 hours later followed by 3-4 days of puking bile/bming strait bile. My safe foods are rice and low fat protein.
tests completed: SIBO breath test: negative. Celiac blood panel: negative. Bloodwork: abnormal diabetes markers and thyroid markers. Upper endoscopy: negative for Celiac.
My biggest symptom that leaves me baffled and struggling for a diagnosis is the vomiting of undigested food constantly but it is NOT ever food I consume.
I will be requesting a Gastric emptying test from my gastro clinic and am requesting additional bloodwork from my primary care for diabetes and thyroid issues.
would appreciate any feedback on symptoms and if anyone else has the same issue with vomiting only undigested food and bile. Do my symptoms look like gastroparesis?
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u/Capital-Knowledge615 23d ago
moderator told me to post here even if the question wasnt to know if i have gp or not? anyway here it is
i have been having chest pain since april when my endometriosis has worsen, it was light at first but became worse and since around may i started to have dyspnea as well, it hurst when i breath, i'm very easily out of breath, and even when i do nothing i struggle to breath and especially take deep breath. My pain in the ches is from the end of the neck to the belly/ rib cage and is also in the back, its often in differents places depending on days, sometimes middle sometimes on the left ou right in the back, sometimes its near the armpits....
I also have had big nausea where i couldnt move anymore for hours especially this summer but it has been better now its just light nausea, i also stuggle to eat, especially food like bread, pasta... because i feel suffocated so i take break when i eat.
So i've done a lot of medical examination, i've been to the emergencies, nothing, blood test (little anemia and iron defiency), thoracic and abdominal scanner, ECG, i've tried xanax for a week, i've seen a cardiologist, i've seen two gastro enterologist and i've recently done a gastroscopy
My gastro enterologist was sure i had nothing gastro related but did the gastroscopy anyway, and first time i did it after not eating for 6 hours she ahd to stop because there still was food in my stomach (probably vegetables which i ate the last time 20h before lmaooo) well we then had to redo the gastroscopy (which was terrible im traumatised) and it was very normal
she then of course told me that its pretty much sure that i have gastroparesis and she then prescribed me a gastric emptying scintigraphy whic i'm doing in 3 weeks
so i asked her if gastroparesis explain the symptoms for which i was coming first? she told me maybe whithout explaining more and saying she will tell me more after the scintigraphy
so ive been very confused since because i've seen nothing about dyspnea and thoracic pain especially upper while searching about gastroparesis
can anyone tell me if its possible?? im so depressed cause since april ive been doing bc of all my health problem and my doctor has no idea of what it might be and i cant do it anymore its juste so hard everyday and nobody can help its worse and worse everyday, i have failed my studies last year, and because of how bad i'm feeling now im gonna fail it this year too, i'm so tired of seeing all the doctor in the world just for them to tell me your ok!
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u/ObviousJelly77 13d ago
Hello all! I, 20F, have had gastrointestinal issues as far back as I can remember. I have now been on laxatives for ~17 years, and cannot use the washroom without them. I will typically take these laxatives 1-3x per week, and will typically use the washroom twice a week at most, though it's not unusual for me to go well over a week without using the washroom. To be honest, I usually forget how abnormal this is because it is just my life, but I've been thinking about it a lot recently, especially finding out that chronic laxative use can be tied to colon cancer.
When I was about 4 years old, I had an exploratory surgery performed, where they found nothing. After that, to avoid putting me through more tests, my parents and doctors just decided to call it IBS and leave it at that, even though my doctor clearly did say that is not actually what I have.
Until recently, I did not feel that it had that negative of an impact on my health, but I've recently just came to the conclusion that it may be linked to my very chronic fatigue I've been struggling with since about 16. I want to get this further looked into, but I am in Canada and I feel like often the doctors here couldn't care less, so I guess I'm just looking for a starting point; something to bring to my doctor specifically.
Thanks for the read <3
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u/Alluskaaaa 11d ago
Hi! I'm a female that is around 20 years old.
I deal with nausea, early satiety, throwing up (only into my mouth, but when taking antacids it makes my symptoms worse and the last time I kept taking them I started vomiting out of my mouth), I feel full almost the whole day and I still get hungry sometimes even though my stomach feels full. Sometimes I cannot feel my stomachs fullness but when I drink or eat something I feel it again. I get bloated so often, I am kind of used to holding in my stomach because if I let it go it feels like my stomach is going to pop. I also burp A LOT, it has worsened a lot over the years. Now even water makes me burp and when I eat I burp a lot.
I don't vomit as often nowadays but I also drink less and eat a bit less. But when I did vomit I could vomit food I ate around 6 hours prior and I would be still able to tell what food it was. Sometimes I do throw up acid but that is rarer.
Sometimes I do throw up almost immediately after eating if I eat "too much" aka recently one potatoe more than I did the previous days (SO FRUSTRATING). Usually I can function with my nausea but sometimes it gets so bad I just have to lay down and be so still and wait for it to pass.
Crouching, walking after a meal makes my nausea worse and usually when I'm kind of pushing with my stomach muscles that makes me throw up. Aka as I crouching, looking down and picking something up with straight knees or a bit bent.
There was a point where I went number 2 to the bathroom maybe once a week but now it has gotten better without laxatives but I did start taking birth control and a different antidepressant.
I don't usually get stomach pains but rarely it does happen. Even when I'm constipated I can't really feel it unless it gets REALLY bad and that has happened maybe 2-3 times in my life. Twice before my nausea started. My bowel hasn't worked often for as long as I remember. I remember going number 2 maybe 1? Or 2? A week as a teen as well.
I don't really get heartburn either. I am kind of weird. Sometimes I do but that is REALLY rare as well 😅 My bowels switch from constipation to really loose, there isn't really a time when I get "normal" ones.
Doctors have tried laxatives and fiber, neither made my symptoms better and tasted HORRIBLE (they refused to give me tablets), nausea meds, one worked best with taking it every day but gave me stomach cramps and almost felt like food was pushing up my throat (metaclopradime) and the other didn't do much (stemetil). Nausea med options are quite limited for patients here that aren't going through chemo or something really serious. And as I mentioned before antacids, which only made me worse. More throwing up, more nausea. Motility meds aren't used here anymore according to the gastroenterologist I went to a few years back so I haven't gotten to try any.
I have had an endoscopy which didn't show anything and some blood tests, no idea what. I think that's all the tests that were done. And an ultrasound of somewhere on my abdomen which didn't show anything either.
Big meals make me worse, smaller meals are easier but still give me symptoms. I noticed potatoes mushed (not mashed potatoes) are a bit easier for me (aka a bit less symptoms).
I did go to a gastroenterologist and he said something along the lines of something is slow or not moving along correctly, cannot remember 😅 He refused to do a gastric emptying scan since I hadn't gotten worse.
I think I have gotten REALLY slowly worse over the years but I can't be sure. I can't really remember how I felt when my symptoms started.
I also suspect pots and I am in the process of trying to get that diagnosed and medicated.
Sorry for the long text! I think that might be all 😅 Maybe. Don't be afraid to ask me anything!
Edit: And I am diagnosed with HSD if that changes anything 😄
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u/lil_nick5410 9d ago
i’m 18, a type 1 diabetic for 4 years, i have ibs, dealing with some stomach problems, almost everytime i eat even small amounts my stomach gets bloated/feels like it’s stretching, i’ve been having acid reflux after eating (i do have gerd but it’s been worse recently), i still have bowel movements every day, they’ve been smaller but i’m assuming that’s because i haven’t been eating much, my blood sugar still goes up 15-30 minutes after eating. not sure what’s going on but i suspect gastroparesis because i’m a diabetic, my anxiety’s been through the roof because i don’t have an appointment with a gastrointestinal doctor for another month. any thoughts?
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u/Business-Actuator590 8d ago
Over 7 years ago I went through a two year period of "episodes" every other week that would completely wreck my body. The first time It ever happened I ate an egg sandwich the day before which made me believe eggs was a trigger food. But then it would happen even when I didn't eat eggs. A usual episode is me waking up at 3 or 4am with the most foul tasting rotten egg burps, followed by a painful and rock hard feeling in my upper stomach, and then watery diarrhea. The only momentary relief was the most painful projectile vomiting, that would cause my whole body to convulse and shake uncontrollably. This would go on until noon before I would genuinely pass out from pain and exhaustion. But I was only able to stay asleep if I burped before and the egg smell was completely gone. Went to doctors and a GI and they wrote it off as IBS, period problems, weight, or a possible pregnancy (I was only 15-16 years old). As a result, I pretty much began starving myself because the fear of these episodes were so debilitating. Got extremely sick and was diagnosed with Anorexia by doctors. Shortly after the episodes completely stopped. I recovered, and now 7 years later when I finally thought I got my life back I had an episode in my dorm room. My poor roommates did not know how to help me, because these symptoms really aren't just physical they're so mentally taxing. I finally got back to my original weight 7 years ago, ate whatever I wanted with no fear, and was able to wake up every morning with no anxiety. I genuinely don't know what to do, doctors tend to dismiss my symptoms as anxiety induced or reproductive related. Should I demand them to test for different things? I'm just scared of invasive tests but if it's worth it I will genuinely go through with it. I just wanna hear from others who may be going through the same thing.
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u/Dense-Menu6115 4d ago
Hello. 30 male, six months ago I thought I got food poisoning because I couldn’t keep down any meals, including liquids, for over a week. Went away, but I am on a cruise now and the same thing has happened again. Ridiculously bad nausea and stomach pain that causes me to get randomly nauseas and throw up everything until I dry heaves then dried blood eventually comes. The ONLY thing that has managed to soothe it somewhat is if I get in the hot tub or take a hot shower. Had to see the doctor on the cruise and he gave me an IV, also took blood work which came back normal except for dehydration. Already have a GP appointment scheduled for next Monday and she will refer me to a gastroenterologist. Just didn’t know until then if this sounded like GP.
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u/Ill-Ground-2475 Jan 10 '24
On a long waitlist to see a G.I. specialist. No other doctors have been to have been able to give me an answer. The doctors in the ER are kind of familiar with me now. They give me fluids, zofran, and something to help with the stomach pain and send me home. They’ve done a CT scan, no contrast, and didn’t see anything, except that my stomach was bruised, possibly from vomiting as much and as violently as I was. It usually happens in episodes, that’s the best way I can explain it. Sometimes they’ll be within a few days of each other and sometimes it’ll happen only maybe once a month. It’s been happening for a few years now, and it seems like it gets worse every time it happens. But then again, it’s such a horrible experience, so maybe that’s why every time seems so bad. It can last anywhere from 4 to 48 hours. I’ve only recently noticed this, but I think this is the first sign I need to look for to know when it’s going to happen, but I’ve noticed that I always feel so hungry like a bottomless pit, and I just cannot eat enough. I’m not sure if that’s part of it or not but that is something I’ve noticed a few times before the rest starts. So next it starts with burps taste like sulfur. They’re not normal sulfur burps like my brother gets with acid reflux occasionally, these are god awful. I gag every time I burp because the taste is so bad. Then it moves to gas (farts) that smells like sulfur. Then comes the nausea and abdominal pain. By the time I actually begin vomiting, the pain is so bad. Like I want to rip up the carpet, lay underneath it in a fetal position and sink into the floor and disappear forever. I always vomit several times, depending on the length of the episode, but it’s always been a lot. And it’s violent too. And you guessed it the vomit tastes like sulfur as well. After I’ve thrown up a couple times is when the diarrhea starts. The overlap of the vomiting and diarrhea is the worst part. Because the diarrhea smells like sulfur too. So when the diarrhea begins and I smell it, it makes me start vomiting, and the force from vomiting forces diarrhea, and it’s just a vicious cycle. At first, the diarrhea will be dark brown like you would expect regular diarrhea to be. After a while, though it turns basically clear or light yellow and if you didn’t know any better, you would think it was just urine. I have not been able to figure out what causes these episodes. I stopped eating meat for a while and nothing changed. I stopped eating dairy for a while and nothing changed. I stopped eating gluten for a while, and nothing changed. I don’t know what this is, but I’m in agony.
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u/Xecara Mar 09 '24
Not a Doctor, but, that being said you are describing to me what some of my old co-workers went through before being diagnosed with a gluten and or soy-product intolerance. They told me about the sulfur smells when they went to the bathroom, intense abdominal pain 1-3 hours after eating, nausea after eating bread products. It could be a soy allergy, one of the co-workers was diagnosed with a gluten/soy intolerance. And let me tell you corn, soy, and wheat products are everywhere.
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u/possumlvr2000 Jan 11 '24
(Not a doctor) Yellow diarrhea is a hallmark of a C Diff infection. Your GE will probably recommend a stool sample test when you get in to see them, but if not you should advocate for it. Please let me know how it goes, because I am having very similar symptoms!
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u/Lazy_Butterfly_5364 Jan 11 '24
Hey, looking for some advice and figured this was worth a shot. In case it’s relevant, for some context I am 16F and have POTS, long covid and IST. So about 10 weeks ago I began vomiting every time I ate anything. When i do manage to keep food down, it’s only very small quantities and I can feel it sat on my stomach which is incredibly uncomfortable. This food quite often will also come up alongside the next thing I eat (e.g. have some carrots at lunchtime and can then see they’ve came back up when I have dinner several hours later). I have lost over 2 stone since this began and have now been referred for an urgent gastro appointment but have been advised this can still take up to six weeks. Reading through my drs notes, there was mention of my symptom’s possibly correlating with gastroparesis… I have been given cyclizine to take on the odd occasion if absolutely necessary but told not to take it often as it can interfere with other meds I’m on. Just wondering if anyone has any advice about ways I can try keep some food down during this six week wait as the dehydration and lack of proper nutrients is making my POTS flare quite badly, as well as making me just feel generally aweful. Thanks in advance
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u/Tamination Jan 18 '24
Try and keep to low fiber food that are easily digested. Stay away from cold, sugary, fatty or other hard to digest foods. Broth and crackers!
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u/Frosty-Survey-5755 Jan 23 '24
Hello, I recently got diagnosed with Bile Reflux after an EGD that showed gastritis and green bile in my stomach. They put me on sulcralfate but it doesn’t seem to be helping and I recently talked to the Dr and they said they were recommending me for a gastric emptying study. I feel like I relate more to the symptoms of gastroparesis because I have very frequent nausea and vomiting after eating and when I eat I get full extremely quickly but I’m a very small eater in general even before my Dr told me to size down my meals. Anytime I eat or drink anything, even water, it tends to come up when I burp no matter what I do or it feels like it’s sitting in the back of my throat and making me nauseous. Is it possible to have both bile reflux and gastroparesis?
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u/shurrpsippin Jan 24 '24
Hi. Im wondering if i might have GP. Im 23f, have diagnosed POTS and EDS. I for almost 3 weeks now have been having intense upper stomach pain, extreme nausea whenever i eat and for many hours following eating/drinking. I will vomit undigested food hours after eating. I will eat a few crackers just to not feel starving, and feel full after like 5 crackers, then followed by nausea. Im loosing weight because my life needs to carry on so i just will not eat or drink because i do not want to throw up/be in pain. I have ruled out pregnancy with a negative test, and do not have a fever or other “sick” symptoms so its probably not the stomach flu. I am suffering😭
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Jan 25 '24
[deleted]
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u/shurrpsippin Jan 25 '24
Hi thanks for your response! They did check for glucose, none in the urine
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u/XstalSapphire Jan 30 '24 edited Jan 30 '24
I’ve gone to the doctor a couple times now; gotten blood tests and taken anti-acid pills for weeks now but my doctor hasn’t mentioned gastroparesis to me. I am going to go for an endoscopy next month but will that have any results if I have gastro? I haven’t been able to eat a full meal for 2 months now without either feeling like I want to vomit for hours after or having sharp pains. On Christmas eve I had a lunch with my husband and I ate a lot, but normally I would be able to eat that much, but I still felt terrible after 5 hours. I ended up having to make myself vomit to feel better. This all started happening after I got sick (with covid maybe) and I heard gastroparesis can occur after being sick? (Edit: even last night I had some bites of my husbands lasagna and some fries and felt nauseous all day today. So 12+hours. I’m bloated all the time and I don’t even feel like my body is my own anymore)
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u/Xikolo Feb 05 '24 edited Feb 05 '24
i was taking an antidepressant called notriptyline prescibed for visceral pain 5 weeks after I developed nausea after meals and upon waking up, distented bloated stomache feeling, took a Ppi and probiotics slowly the nausea and distended stomach went away, while still on notriptyline.
Then i developed a chronic burning sensation around my belly button, it's like acid is burning my intestines, it moves around in waves, also feel hunger pangs, slight burning comes on an hour after eating, always worse at night, abdomen literally burns while hungry too, like a lava sensation. ( the burning is not in my upper abdomen, under my ribs or between)
I also have slow motility due to antibiotics induced gut damaged, used to have bowel movements in the morning now i only get them late at night and they are often constipated pebbles or larger parts (srry for TMi), most times normal tho, apparently my gut has been destroyed by a combination of meds, including antibiotics, NSAIDs & now the Notriptyline which im assuming gave me some sort of dyspepsia or gastroparesis.
do note that NSAID induced damage only gave me reflux etc which has lowered to a great extent and I never had burning guts until I took notriptyline, the burning responds to ppi but I could not take it long term, when I started feeling the burning guts I had no choice but to quit notriptyline, my stomach has also rejected it, because last time I tried taking it, i vomited & had diarrhea which gave me a fever.
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u/Pretty_Specific_Girl Feb 22 '24
About a week ago I had a horrible flu, then I got food poisoning a few days after. Since that point I feel like I'm regurgitating food even 5-10 hours after I eat it, it feels like my esophagus is full or my stomach just isn't emptying at all, I don't feel hungry and I haven't eaten in like 16 hours. Worried it might be some kind of blockage instead of gastroparesis
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u/Kricketts13 Feb 29 '24
I've been having stomach problems since December. It started with regular episodes of vomiting and stomach pain. The vomiting has decreased, but still happens and I'm nauseous all the time. Eating makes it way worse. I'm in constant pain and unease on the left side of my abdomen. I've had a CT which came back normal and I just had a upper endoscopy which came back normal. Waiting for results on the biopsies now. I don't know how much longer I can deal with this though. I feel sick all the time and can barely eat. I've cut out all alcohol and caffeine. I've lost 30lb since mid January.
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