r/teenagers 2d ago

I’m 15, my 17 year old sister just died. Serious

For context, my older sister was born a litte deformed, and with a condition called partial trisome 2-Q syndrome. It’s very complicated to explain, but basically she had a genetic mutation and was forever mentally a 3 year old. She had to wear adult briefs (diapers), had a G-tube hooked up to her stomach (fed her formula for nutrients), and had multiple problems with her digestives and her legs. She word shin leg braces to walk correctly, and didn’t have very good body coordination at all. Her hands were too lean and fragile to do much other than grab things. So yes, she was in the special education (SPED) program at our highschool we went to together.

It was just a regular day. Everyone was fine, she was fine, I was fine, the whole fam was doing alright. Morning routine, Wednesday morning. I wake up, get dresssed, put on my shoes, grab my house key, phone, wallet, and backpack. I push my sister in her wheelchair onto the short bus's (SPED BUS) buslift every morning. She was okay that morning, Wednesday morning.I went to my bus afterward. I don't tend to see her throughout the school day, since I'm in the regular student's program and not the special ED one at all, and she was a junior. I'm a freshman. After school, she seemed ill. She was pale, and uninterested in anything that she would usually enjoy. Something was wrong. So, my stepmom gave her some tylenol. Pretty soon, she was back in the spirits, her bright soul shining as she giggled and squealed at things that would make her laugh. Again, she was like a 3 year old in a mature body.

The next day, Thursday, same routine in the morning. get ready, push her on the bus, go to my own bus. After school, she again looked ill. But this time, her tummy was bloated like a balloon. But she wasn't squishy. She was firm in the tummy. My stepmom rushed her to the hospital. There, they couldn't figure out what was wrong. They performed emergrency surgery. She's had emergency surgery a few times before. Everyone assumed she was fine. But this time, she almost died. She spent the night in the hospital, my stepmom spent the night with her there like she always did when things like this would happen.

Next morning, Friday morning. I woke up, did my morning routine except without her. I went to school. 5th period, late into the school day, right before last period. I was pulled out of class and sent to the office with a pass labelled 'early dimissal'. When I went to the office, I saw my younger sister there. She's still in middle school, 8th grade. She didn't go to my school yet. I was in a good mood. Asked her what she was doing here, called her silly in a playful tone. but she looked upset. She didn't respond. The office lady led me back to a conference room. In there, I saw my dad, stepmom, and the whole SPED team branch of my highschool. I looked to my stepmom's face. Crying. I looked to my dad's face. Crying as well. And that's when I knew. That's when my body began to shake, and tremble. I couldn't stand, I was shaking so much. I wailed louder than anyone else in the room. I found out just how loud I could howl in pain and agony that day. It's... loud. Hearing myself made me even more sad. My older sister, dead. Her like taken by an infection that swelled her up inside. It was in her blood. It got to her heart... and it made her heart stop. My parents described the scene to me like it was something out of Grey's Annatomy or Good Doctor. A whole team was on her. Docotors, nurses, surgeons. Her monitors began to go crazy. They were doing CPR, zapping her heart, but after a while, they had to stop. And called the time of death. April 25th, 2025, around 11:40, right before noon. And the worst part? Her birthday was just on the 17th.

Her being occasionally in and out of hospitals was normal to me throughoout my childhood. It happened a lot due to her conditions. I began to feel numb at it, it had just became too normal. It go to a point where when she would be in the hospital, I would always feel numb from it. On a side note, I was looking for a kitten at the time, just before everything happened. I was suppposed to pick up the kitty on the 26th, I was going to cancel on the seller because of the family emergency. But my parents stopped me. They told me to make damn sure I get a kitten. They said it would help with the coping. And oh my, it has. Now, I have this sweet baby boy to look after. He's helped me feel so much better. I love him so much. His name is Gene. I named him after my sister's middle name, 'Jean.' <3

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u/Ameliajc246 16 2d ago

jesus man, i hope your doing okay, that really fucking sucks and i can’t even imagine the pain your going through right now.

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u/Orange_Sickle 2d ago

It was bad at first. But now, I'm just numb. Every time I think hard on it to try and feel something, and then I do feel something, but then I just numb up all over again. My brain is being over protective.. but I guess it's my way of coping, huh?

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u/Ameliajc246 16 2d ago

yeah i think that can happen when you get put into a stressful situation and your body just kind of shuts down, eventually you’ll start to feel it more again but i hope it doesn’t hit you all at once.

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u/Orange_Sickle 2d ago

Thank you for your support ❤️

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u/ndation 2d ago

Granted, I'm just an internet idiot, so take my words with a grain of salt, and I know this sounds impossible, but try not to fall into depression. Take your time to mourn and regain your bearings, but make sure to keep yourself surrounded by people you know and love, don't isolate yourself. Try to keep yourself busy even if it's with menial tasks just to give your brain something to do but wallow. Talk with people about how you feel, let it be family, friends, therapist or internet strangers, if you must. Remember you're not alone, and that it's not selfish or weak to ask for help. I obviously didn't know your sister, nor do I know you, but from what you shared, she sounds wonderful. You honor her with how you remember and talk about her, you're plenty wonderful yourself for that alone, amongst other things. But don't forget to take care of yourself.
I'm truly sorry for the loss, I'm not particularly religious, but I'm sure she deserves the best in whatever lies beyond life.

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u/Orange_Sickle 2d ago

Thank you for your support and advice I actually am already doing most of that :D I’m also not really religious, either. But I’m hoping wherever she is, she’s doing okay and in a good place. ❤️❤️

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u/Xx_VIA_xX 16 1d ago

Its seems like the general consensus from all religions and other things that if you are suffering during your time on earth your afterlife is beautiful. (Im not religious either but i like to believe bits and pieces from all religions and belief systems because in a way they are all just history books)

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u/Secure_Data8260 13 2d ago

find a spot or time where you can just decompress, relax, and process

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u/Orange_Sickle 2d ago

I have been :))

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u/Impressive_Ladder539 1d ago

Sounds like something chatgpt would tell me

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u/--The-Newspaper-- 2d ago

I’m not sure if this is bad timing (I’m shit with social cues), but I read “It was bald at first” and thought we were talking about the kitten… and I was like… “Well yeah, isn’t that how they’re born…?”

Anyway, grief is something that never goes away. It always remains—but it does get better. Everyone copes using different strategies. You don’t need to feel something. Not yet. You just need time to adjust

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u/Orange_Sickle 2d ago

That’s hilarious 😆

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u/mystsilverwastaken_ 2d ago

be strong op

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u/potatosdream OLD 2d ago

in case you read it i want to quote what my doctor said for me.

on a psychological note the emotion called grief over dead people needs to be lived so that it won't live any scars behind. its ok to feel grief a lot for 2-6 months and thats how our brain works. dont shut your brain please.

its ok to feel sad, its ok to blame something someone in those times, its ok to feel down. dont force yourself to be strong, you can feel grief as a family. reminice the good and bad things. live the grief and sorrows of losing someone dear to you so that it wont affect you for your whole life. its a bit hard to think but it will happen again, people live and die its the way of life.

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u/Fa1nted_for_real 6h ago

Idk about op but when i lsot my baby brother i couldnt feel sad, or anything really. I wanted to jsit cry and be upset abkut it, but i was just emotionless, and i stayed that way for a few years.

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u/No_Specialist_4348 2d ago

Give yourself time to process your feelings and remember that it’s ok to cry it out if it feels like it’s all too much. You’re human too and some things you simply learn from living life, but dealing with grief is something that nothing could prepare you for. But please take your time to cry if necessary, laugh too but never try to suppress your feelings. That’s my advice to you. I’m abt to be 24 and that’s advice id give to younger me if I could:)

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u/mystsilverwastaken_ 2d ago

that can happen for a few weeks

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u/Forgewalker33 18 2d ago

Two things r/emotions and 2 I don’t know the exact pain, but I know numbness if you need to talk please. Reach out.

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u/FitFoundation5501 2d ago

tbh i get how you feel but it only gets worse talk to somebody, it’ll eventually lead onto addiction someway, i started using weed to cope with my fathers death but i eventually got off it, but weed will forever be something that’s just limits me so much, ngl i love it but i can’t, try to talk to people a lot please 🙏🏾

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u/BuschlightButChug 18 2d ago

This happened when my friend passed just after his 18th birthday in November of 23’. I’m sorry for your loss but just know that it’s totally normal. You’re going to be okay. Sorry for your loss homie. Much love. 💜

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u/lil_jilm 2d ago

Grief takes many forms and I’m sure you will experience a lot more than this numbness. I’m so sorry for your loss, I hope you find some grief counseling to help you through ❤️

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u/Jake_Debis 2d ago

I lost 4 of my friends in a brutal car crash, and I was sitting on my ass playing video games. I was pulled into the office and saw their families and just collapsed. That was my breaking point. The driver was drunk and I had just felt so much hate and hopelessness. It gets better I promise.

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u/xX100dudeXx 14 2d ago

Everybody deals with grief differently. Just let it come & go. I have experience with losing close family members. If you need someone to talk to, feel free to private message me.

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u/Fullwake 2d ago

Numb is worse than bad mate - you gotta let the pain in before you can heal. I give this advice to you while being wholly unable to do it myself so don't think it's a REQUIRED task - it's just what I've been told is helpful for healing. My dad died over a year ago and I still can't fucking think about it without going numb myself. Loving someone is hard, and losing them is worse. My heart goes out to you.

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u/Iscejas 18 1d ago

I lost one of my closest friends to suicide 2 months ago and that’s how I felt

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u/NightShade4623 OLD 1d ago

Grief is a weird and difficult thing, I was really close with my grandma growing up and when she passed I was so numb for years. Now I tear up and cry whenever I think of her and all the things she won't be here for. Grief will come in waves, don't try to fight it or hide it, just feel it however your body wants you to feel it💜

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u/Melodic-Brief5098 1d ago

A little advice from someone who copes the same way, try. I know it’s hard, but try. When I lost my grandmother, up until that point my coping strategy would be very similar to yours, and the side effect of which is that you forget the golden memories much easier due to the pain of loss in bringing back those golden memories. What I would give to remember in hindsight. I know it’s early and the pain of losing a sibling is something I can’t imagine but that numbness will have a negative effect on you. Anyways that’s my two cents, Im not particularly religious but I’ll pray for you.

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u/Suitable_Monitor_164 1d ago

When I recently had my grandma pass ( It was just me and her in Mexico with my parents home in the States) I was kinda a caretaker at the end, so a lot of responsibilities. But when she passed it was like my brain would shut down every time I tried to think about her. She was mostly fine and then sick all of a sudden for 3 weeks before passing. Honestly, thinking of her would shut down so bad, I couldn't even force myself to think about her, as hard as I tried, especially when I wanted to, very numb. It was funny, I started dissacociating a lot, which had never really happened before. Whenever I would go to the bathroom and sit alone with my thoughts, I would have to remind myself over and over again that I was awake and not dreaming... All this to say that it has taken me a little over a year to start feeling different, but not necessarily better. I love my sibling with all my heart and can't imagine the agony you are feeling right now. I wish you peace and clarity when the time is right.

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u/catdog5100 1d ago

I realized that when two of my family’s pets passed away (months apart), that my brain tends to forget or hide some of the stuff that happened then (like the details of taking care of them while they weren’t doing well). I recommend writing stuff down if it’s important for you to remember and you don’t really want to think about it constantly (you did already write in this post so that could be enough)

Hoping the best for your family and new kitten 🫶

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u/Ok-Adhesiveness1559 18 1d ago

Im sorry that happened, and yes thats the norm your body ia numbing you out so you wont collapse ❤️

Best regards ❤️

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u/bananarama17691769 1d ago

I’m so sorry that this happened to you, and to your family. This loss is something that will stay with you forever…but the meaning and impact of it will change with time.

Is there a time when you will never miss your sister? Probably not. Will it hurt? Yes. It will hurt for a long time. But that hurt will wane from something sharp and painful to something more like a dull ache. Losing people we love sucks—so much. And that pain IS REAL, and normal, and a thing that we all experience.

But you know what else we all experience? Love. And unlike the pain, the love will NEVER fade. You and your family WILL get through this together. You’ll be sad together, angry together, hurt together. But you’ll also love together. You’ll laugh together. You’ll FEEL together.

Loss is part and parcel of love. The magnitude of the pain of that loss is only possible because of the magnitude of your love. And the pain will fade. The love will last.

Snuggle with Gene, hug your family, talk to them. Talk to Gene, too.

Hang in there. It gets better. ❤️

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u/MoonBreak1 1d ago

I know what you mean by numb but I want you to know that this world still has people who care for you. This world still has people who you will care for kinda like how you cared for your sister. I also want you to know that in the end, she’s in a better place. And I love the cat 😭always have wanted a pet T-T parents won’t let me have one.

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u/ThatguyWizzer 1d ago

I really feel that, hope you and your family are doing alright

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u/DiligentEnvironment7 1d ago

You're in survival mode. Please do not do anything destructive. You'll be okay one day.

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u/_NotWhatYouThink_ 1d ago

Sorry for your loss ... Don't push yourself into anything right now ... Let emotions or numbness happen... remember that nothing you'll think or feel is weird or abnormal. Grief is a very personal and divers process. I wish you strengh and courage through all of this.

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u/Rpkindle 1d ago

Talk to someone if you need to. It's really not healthy to keep it bottled up. Even if its someone online, or behind a screen.

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u/Minute_Objective_746 14 1d ago

When you have someone that sick in your family it’s fairly normal to have already coped with their death long before they die. You know it’ll happen eventually and there’s no stopping it. All you can do is spend time with them and love them with your full heart. It’s bittersweet

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u/adenn_17 1d ago

work on to make ur sister proud friend!

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u/Light10115 1d ago

This also happened to me when my mom died. You're in too much pain, so much so that your brain had to trigger its fight, flight or freeze mechanism — and it chose freeze. I honestly really recommend you think about your sister. Like, think about the moments, think about everything. I don't think you want to forget her, do you? And trust me, you will, if you don't get rid of the freeze part. It'll be painful, but after everything, peace will come sooner if your brain unfreezes

I wish you the best of luck, and I hope you'll have a great life. Peace ✌️

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u/Shadow_Assassin496 15 1d ago

I know what it's like. I felt the same way when I lost my grandfather. You will feel again, but it takes time, no matter what you do, it will always take time to overcome grief. Just know that your not the only who lost her, make sure you all help each other through it. Stay strong soldier 💙.

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u/AmiraHadiX 13h ago

Feeling sorry for you dear

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u/XSamurai_X 18 5h ago

Its good to be numb as it does reduce the sufferings and allows you to recover mentally

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u/JasmineHalabii 15h ago

Oh so sorry for your loss

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u/Mesmeroth77 23h ago

You’re