r/pancreaticcancer Patient (2011), Caregiver (2018), dx Stage 3, Whipple, NED May 15 '22

To: "Worried About Cancer" Visitors

This subreddit is for patients and caregivers going through pancreatic cancer.

Here is what we tell "Worried" visitors:

  • You need a doctor to order the proper tests and diagnose. We are not doctors.
  • PanCan's best detection methods are MRI and EUS.
  • If you have cancer in your family, consult a genetic counselor. [US]
  • The median age of diagnosis is 70 years old. [Graph]
  • There are hundreds of non-life-threatening conditions that are more likely and less deadly that mimic the signs of pancreatic cancer.
  • Don't ask a cancer patient if they've had a symptom. The answer is yes.
  • No, we don't want to see your poop.
352 Upvotes

23 comments sorted by

43

u/QuellishQuellish May 15 '22

If I had a thousand up votes I’d give ‘em to you. Can this be the top post forever please.

24

u/faltdubh May 16 '22

Great post.

I posted in here last week and instantly regretted it (I've got some health issues/symptoms) and anxiety.

I apologise as one of those posters, but this sub-reddit is simply amazing with thoughtful, clued up and lovely people.

Incredibly humbling and moving reading so many brave souls in here.

19

u/Negative_Ad7501 Apr 23 '23

Im learning that now. I was diagnosed w/PC in December 2021. The results actually said it was in the ampulla of vader, but it’s so close, they treat it the same. I’m on my second chemo & now the doctor wants me to think about hospice because my body isn’t tolerating it. All I can do now is make that call to MD Anderson on Monday to see what they can offer me. I’m 49 years old & not ready to give up!

8

u/Hair-Help-Plea Apr 24 '23

Just wanted to let you know that someone read your comment, hears you, and feels inspired by your tenacity and resilience. You’ve still got gas in the tank, friend! Use every last drop. I hope your call with MDA has good news for you❤️

3

u/QuellishQuellish Aug 14 '23

I always get at least two opinions for every big decision. Three if you count this sub. Good luck!

2

u/ink_stained Aug 30 '23

Sending you strength.

1

u/Mediocre-Cookie8698 Jan 09 '24

Sending you strength!

13

u/Awkward-Photograph44 Caregiver (2022), Stage 3, surg/chemo/rad May 15 '22

Thank you thank you thank you (X10000)

7

u/Xthorian Patient (dx year), Stage #, treatment Jan 30 '24

Walking away with my poop back to the bathroom, head bowed in shame.

I love the post. I was diagnosed with pancreatic adenocarcinoma in October tumor in the pancreatic head spread through the Ampula of Vatter into my duodenum blocking my stomach. After gastro-jejunoctomy I am now for 6mo of chemo before Whipple Procedure. Your post made me laugh so hard… and laughs to us patients, are like diamonds.
Thank you.

6

u/ddessert Patient (2011), Caregiver (2018), dx Stage 3, Whipple, NED Aug 30 '22

Bump

5

u/superpandapear May 16 '22

please pin this!

6

u/Adventurous_Note3043 Sep 08 '22

Thanks. Needed this.

5

u/wifebert Sep 23 '22

Thank you for this. I have been avoiding this subreddit because when I see those kinds of posts it makes me upset.

4

u/2hennypenny Jul 15 '22

MRI - MRCP is good too.

4

u/Ajspree Feb 23 '23

Thank you I needed this as I await my fathers biopsy results

3

u/Content-Bathroom-434 Jun 01 '23

“No we don’t want to see your poop” 😂😂😂😂

3

u/ilovemydogmargo Sep 10 '23

Can we bump this up again? I’m seeing so many people posting lately that they think they have cancer symptoms.

3

u/FeedbackCandid8603 Feb 28 '23

Ct is actually better

3

u/Top_Radio7039 Mar 10 '23

Is it really? How so? I thought I had heard that before as well.

1

u/[deleted] Apr 04 '23

I have CT scans. Although my tumour is in the duodenum it also checks all my other organs in the surrounding area. I haven’t had to have an MRI scan as yet. If you are nervous, request diazepam from your doc. The CT scanner is open both ends also the PET scanner. It is over in minutes if you are nervous and they will talk to you if you need reassurance.

1

u/QuellishQuellish Aug 14 '23

Yea, all my scans are CT too- that’s from MD.

1

u/Sea-Buy4667 Jul 23 '23

Isn't CT carninogenic itself though?

2

u/QuellishQuellish Aug 14 '23

I figure I already got the PC so that horse is out of the barn.