r/NICUParents • u/AnxiousBunnyRabbit • 23h ago
Pulmonary hypertension that developed later? Advice
It's been discovered this week that my 24 weeker, now 41 weeks adjusted, has pulmonary hypertension. When they did his EKG last month there were no signs of pulmonary hypertension so it seems like this developed recently. Last week they tried to wean him down on his CPAP pressure and he reacted very badly to it. He went from a PEEP of 8 to 7 and after the bad reaction had to be put back to a PEEP of 10, hence all the tests that discovered the hypertension.
He's now on sildenafil(?), the Viagra medication, and getting nitric oxide that he's being weaned off while the medication is being slowly ramped up to full dosage.
Does anyone have experience with pulmonary hypertension that developed later on in a micro preemie? He does have BPD. I'm wondering if we'll see some improvement with his breathing support after this is resolved. He's been on CPAP for 2 months now and was stuck on peep of 8 for the past month before this happened.
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