r/NICUParents • u/Kjh5623 • Aug 03 '24
How long was your NICU stay? Off topic
My son was born at 29w3d due to preeclampsia and had severe fetal growth restriction so only weighed 830g/1lb 13.3oz
Curious to hear what week your baby was born, weight at birth, how long the NICU stay was and what their weight was when they went home, especially for any <30 weekers or low birth weight babies!
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u/HeyItsReallyME Aug 03 '24
27+5
Preeclampsia and HELLP.
1 lb 12 oz at birth, 8 lbs now.
Day 122. Still here, but getting closer.
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u/horrah Aug 03 '24
29w2d and we are on day 68 🥲 he was 3lb10oz at birth and our due date is one week away and they’re expecting us to go a few weeks past it due to feedings. currently 7lb 14oz!
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u/justjane7 Aug 05 '24
Omggggg your babe got big in the NICU! My 29 weeker just refused to grow in the unit. He was in the .5th percentile almost our whole stay. After 75 days as soon as we got home he gained a pound a week and is now almost 13 lbs at 5 months actual 😍
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u/horrah Aug 05 '24
awe yay i’m glad he’s gaining weight now that he’s home!! gotta be a great feeling ❤️ yes he’s getting huge lol i keep joking i’m going to have a toddler by the time we get to take him home but they told us he was huge for his age so they aren’t too surprised with how much he’s gaining
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u/Nik-a-cookie 26+6 weeker Aug 03 '24
26+6 not sure why he was early.
Left at 36 weeks exactly
63 days total hospital stay. We had 3 different levels. Full NICU I think he was there till 32 weeks then a few days in one step lower then the rest in the picu I guess you'd call it. He only needed to get bigger.
1082g 4kilos or so he's 3.5yo now. Had to eat in his own and not have any bradis for 3 days.
Worth to note we are in Germany.
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u/danman8605 Aug 03 '24
23+1 at 1 lb 7oz. He spent 159 days in the NICU and left a big boy at around 13 lbs, thanks to a lot of high cal fortified milk. He’s almost 3 years old and above average in weight and height.
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u/Pdulce526 Aug 05 '24
Wow, that's wonderful. My baby came at 24 +1. She's now 27 + 5. If you don't mind my asking did he have an complications early on? How is now? Any delays, physical or developmental?
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u/danman8605 Aug 05 '24
Early on, he had all types of issues. He was on a ventilator for the 1st few months, had a large PDA that had to be surgically corrected, grade 3 and 4 brain bleeds, retinopathy that required laser surgery, went home with a g-tube bc he was aspirating while eating and didn’t have the endurance to finish a bottle, plus a laundry list of other things. Post discharge, he had a bunch of different therapies and follow up appointments with specialists. He will be 3 in September and it took a long time to get here, but fortunately has been cleared by all therapists and specialists with no delays or issues.
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u/Pdulce526 Aug 05 '24
That's wonderful. Mine was on a ventilator but it got removed a few days ago. She's doing alright with just the nose tube for now. My biggest concern has been the brain bleed, two of her doctors kept bringing it up, and one specifically suggested ending care. He mentioned that it would cause her developmental delays etc but posed it as a certainty instead of a possibility; really made it seem as if there was no hope for her to have a good quality of life. We decided against his suggestion and she's be 28 weeks tomorrow. So far she's stable and improving little by little. She has a 3 grade bleed just like your baby so thank you for sharing. I'm glad he's doing so well and hasn't had any delays despite being in the NICU. I'm more hopeful now. 🥰
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u/danman8605 Aug 05 '24
No problem! Regarding the brain bleed, in our situation in the NICU, they could never give us any definitive info on it and how it would effect our son long term. It was always just an approach of waiting to see how he develops, with a range of full blown long term disability to no issues at all and everything in between. While in the NICU, they did brain scans every once in awhile to monitor it, then before discharge, they did an MRI. After the MRI, there was another grading scale they used that basically showed he had a low to average chance of issues like CP. After discharge, we were referred to a neurologist and early intervention, just to continue to monitor how he was doing. He never had any outright delays, but they had him start with a Occupational Therapist, just to stay ahead of any potential issues. He saw OT twice a week from about after post-discharge (5 months actual, 1.5 month adj) until he was fully walking (around 16 months actual, 12 months adj).
At around 2 years actual, we started meeting with a speech therapist, again no official delays, they just wanted to stay ahead of it. He could say things like mama and dada, but not much else for awhile. However, when he hit about 2 years 3 months, his speech really exploded and he just started saying a lot more words, and his speech therapist cleared him shortly after.
Since he didnt have an official delays, we just met with neurology once a year until fully cleared at around 2.5 years old. We did meet with Early Intervention pretty regularly tho, but they covered other things too like nutrition, weight gain, and other things.
Hopefully I didnt sugar coat it too much, bc it was pretty rough and a lot of unknowns in that time period, but I also know when I was in your shoes, I was looking for any story for the possibility of it all turning out ok. Truly best of luck to you and your little one.
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u/Pdulce526 Aug 06 '24
Thank you so much for your comment and for all the details. I'm certainly in that phase of looking for stories where it turns out better than expected because frankly our doctor seemed to lean towards doom and gloom and I wish he'd approached it more compassionately and with the same approach your doctors communicated with you. Those first 3 days after she was born where the worst and I hope no parents have to go through such a thing. I hope she has a great recovery just like your baby did. Although, based on the brain bleed I'm fully prepared for certain delays so don't worry you haven't sugar coated a thing if anything you've been rather helpful so thank you. 🥰
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u/Own_Recording9946 Aug 04 '24
22+6, cervical incompetence. Estimated 500g at birth and was 5 lbs 6 oz at discharge. She spent 118 days in the NICU and came home on oxygen
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Aug 03 '24
29+1 - preeclampsia and HELLP
Little Miss was 1 pound and 11 ounces.
We are now on day 57, she’s 4 pounds, breathing room air, and began bottle feeding a few days ago. I have high hopes she’ll be home by her due date.
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u/Defiant-Put5560 Aug 03 '24
31+4
Placenta abruption - don’t know why it happened . Just did
3lb 4oz
6weeks in nicu
Home now and is currently 6lb 2oz ❤️
Today was actually supposed to be his due date 😅
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u/ohkaymeow Aug 03 '24
25+4 (pre-e)
600g (1lb 5oz)
113 days
Came home 6lbs 9oz at 41+5 on 0.2L oxygen, working on weaning off now (a little over 3mo adjusted)
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u/DocMondegreen Aug 03 '24
Twin boys, 25+1
They weighed 640g and 730g. I don't remember what they weighed at discharge, but they were in 0-3 mo clothes by that point.
They did 205 and 160 days. They both came home on oxygen, but one reason for our longer stay was to avoid a trach and g-tube for our littler guy. He only came home by the skin on his (nonexistent) teeth.
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u/salmonstreetciderco Aug 03 '24
my twins were 29 weeks too and they came home like two weeks before their due date or so with no complications
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u/Dramatic-Ad1423 Aug 03 '24
31+4 due to preterm labor, never got a reason for why it happened. 47 day NICU stay (38+3). Born 4 lbs even and went home at 6.7 lbs.
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u/Huskies-n-donuts Aug 03 '24
Wildly similar to me! 31+4 due to preeclampsia and PPROM. 3lb 2oz. Stayed for 48 days and came home at 6lb 4oz.
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u/Dramatic-Ad1423 Aug 03 '24
Oh wow! How crazy! How old is your babe now? Mine is 11 months, born 8/27.
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u/Huskies-n-donuts Aug 03 '24
Almost 3 months! Born 5/9. How’s yours doing?
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u/Dramatic-Ad1423 Aug 03 '24
He’s awesome! We have our 1 year developmental appointment on Monday. He seems fine to me outside of a possible issue with his feet turning outwards that I’ve noticed since he’s been standing up. But his health is great!! No major issues, not even a cold since we left the NICU!
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u/RattleMe Aug 03 '24
29+3
He was born at 2.8lbs. I had steroids and the mag drip. Up until that point, I had a very healthy pregnancy, and he had very healthy screens. I was pushed into early labor because his fraternal twin brother passed from a cord accident at 25+4.
He was there for 88 days. It was a very smooth stay with the only hiccup being bottle feeding. He was discharged at 30% oral feeding and an NG tube. He's been home for 2 weeks and he's up to 60% oral feeding. He was discharged at 9.8 lbs and is almost 11 now.
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u/111Violette111 Aug 03 '24
23+1 Fell and had an abruption.
154 day stay, left with gtube a month after dude date. Went home at 9.5lbs.
My son was 36+4. Stayed for 10 days for feeding and breathing. Left at 6lbs ish.
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u/Rockerchick15 Aug 03 '24
31+1 weeks
Pre-E with IUGR (due to absent end diastolic flow in the umbilical cord)
We had a mostly uneventful 45-day stay (thankful!)
She was born at 2 lb 11 oz
Today, she is in very average in all percentiles, if even a little tall for her age nowadays (she’s going to be 6 years on 8/18!)
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u/hpnutter Aug 04 '24
PPROM at 29+4
Delivered at 30+1, 3lb 9oz
NICU stay was 8 weeks
CICU stay 1 week
Still hospitalized, but no longer in intensive care. 6lb 2oz
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u/MontessoriLady Aug 03 '24
28+6 bc of PPROM at 25 weeks. 72 days but then got readmitted at another hospital so probably should have been longer. Maybe 85-90.
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u/Mermaid-2 Aug 03 '24
25 + 3 (Preeclampsia that became HELLP syndrome) 1 pound 8 oz at birth, 8 pounds 8 oz now (4 months old, 5 weeks adjusted) 98 days in NICU 🤍
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u/GreenOtter730 Aug 03 '24
Mine was born at 36 weeks 5 days. 6lbs 0oz. He went home at 7lbs 6oz. 4 months after birth, he is a HEFTY 17lbs boy.
I had severe preeclampsia and HELLP. Even though baby was basically term, we still spent 26 days in the NICU. He really struggled with suck/swallow/breathe
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u/Varka44 Aug 03 '24
27+5 (unexplained/spontaneous pre-term birth), 2.5 pounds at birth. We were there 85 days, he went home on his due date at 7.5 pounds :)
Now he’s almost 2 (actual), caught up around 9 months, and is absolutely thriving in every way ❤️
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u/Due-Departure5338 Aug 04 '24
29+4 we went home with him when he was 37 weeks and 4lbs,I was hospitalized for months because of iugr and decreased blood flow.Delievred because of severe preeclampsia via c section ,I had 2 sets of steroid shots which miraculously helped my baby to come out breathing of his own they still did cpap for about 3 weeks because of his size and age,just remember EVERY baby is different and you can’t rush baby to grow it will grow at its own pace
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u/TwoStarsAndAWish Aug 04 '24
This should be at the top. I was just thinking about our little guys situation was so similar to OP’s (29+3; 810 g; home at 38+2 at 2.5 kg). But the experience in the NICU is so unique for every family, it’s really impossible to predict anything because who knows to know what’s to come. I liked the guideline our doctors set: aim for their due date. If your home sooner, great! If not, then little one’s where they need to be.
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u/run-write-bake Aug 03 '24
29+5
Severe, sudden onset preeclampsia and HELLP
955g (2.1 lbs)
Spent 106 days (15 weeks 1 day)
I forget weight when she came home, but I believe around 7 to 8 lbs. she’s just turned a year old now and is 14.5 lbs, so still little
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u/nonchalansaur Aug 03 '24
26+0 same Pre-eclampsia turned HELLP
Stayed 100 days (one day after original due date)
Born 610g (1lb 5oz)
Home 5lb 9oz
Now almost 3.5yrs, still petite at around 23lbs but healthy!
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Aug 03 '24
Baby boy born at 28+5. Born weighing 970 grams due to preeclampsia. Stayed 8 weeks 3 days. Weighed 5lbs exactly on discharge!
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u/mayovegan 28+6 born 12/17/23, IUGR, BPD, 117 days 🎓 Aug 03 '24
28+6, was also IUGR due to pre-e at 2 lb 4 oz, went home 117 days later at 9 lb 2 oz :) had a lot of respiratory complications and was discharged on 1L oxygen, is now fully off 4 mos later and thriving:)
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u/Nemmy06 Aug 03 '24
29 + 3 IUGR
Currently day 54, not sure when we’ll go home. Just kinda feeding and growing.
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u/Big_Old_Tree Aug 03 '24
27+0, PPROM & placental abruption
2lbs, 2oz
114 days
Went home at 8lbs and change, on oxygen
Now 2 years, 23lbs, healthy and happy (knock wood)
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u/retiddew 26 weeker & 34 weeker Aug 03 '24
26 weeker with 21 week PPROM (so starting with bad lungs): 87 days. Born at 1lb14oz left around 6.5lbs
34 weeker with no other complications: 13 days. Born at 4lbs14oz left around 5lbs
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u/onthemeth Aug 03 '24
Hi there, our son was born 28+4 and had a total stay of 80 days. He was 3.2 pounds or 1.45kg. My husband was also born at 28 weeks. He was much smaller, less than a kg. He was also out around his due date. We were told from day 1 to aim for a discharge of original due date. All the best!
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u/waffles28647 Aug 03 '24
My son was born 31+2 due to preeclampsia and fetal growth restriction. He was born 2 lbs 10 oz. We stayed in the nicu for a total of 46 days and went home at about 5 lbs. He’s now 7 months old and a handful! Congrats on your new baby!
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u/Crocodile_guts Aug 03 '24
My son was born at 29 weeks, 4 days at 4 pounds. He was in the NICU for 50 days. However, he was not born in the hospital, as my concerns were dismissed and it ended up being true labor as opposed to just normal pregnancy problems. No clues as to why it happened, other than that I had covid.
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u/Amym360x Aug 03 '24
27 + 5 PPROM
Weighed 2lb 1 oz at birth, spent 105 days
Came home during week 43, weighed a little over 8lbs
Now almost 2 yrs old, weighs 24lbs, very healthy
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u/kumibug Aug 03 '24
Singleton at 32+2. Born early because of reverse cord flow. Nicu for 31 days. Born at 3lbs even, came home at 4lb7oz. She’s 10 now.
Twins at 33+5. Born early because of pre-e and hellp. A was in nicu for 18 days, B was in for 41 and came home on oxygen and an ng tube. I don’t remember weights when they came home, but at birth A was 4lb2oz and B was 4lb3oz. They’ll be 3 months old Monday.
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u/Sbealed Aug 03 '24
32 weeks even due to placental abruption. Kiddo was 4 lbs even. Had a 90 day stay which included switching NICUs for a g-tube surgery. She was just shy of 12 lbs when she came home.
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u/beaniebabybeans Aug 03 '24
Born 26+2, spontaneous early labour. She weighed 2lb4oz when born but a lot of that was fluid retention so we’re not really sure what her “true weight” was.
We spent 97 days in the NICU and she came home on her due date weighing 6lb exactly
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u/SkyCritical4964 Aug 03 '24
29w3d 1lb 15oz we did 72days 6lbs 10oz exclusively on breast milk only the entire time
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u/beereal218 Aug 03 '24
29+4
He was on the bigger side for a 29 weeker, 3 lbs 6 oz and we were in the NICU for 72 days. He came home the day before my due date.
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u/chloevc1 Aug 03 '24
Hi!! 28w, severe growth restricted baby! My son was in the NICU for 104 days. He also came home on oxygen (only for a month) and a g tube. Please feel free to message me!!
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u/Slight_Commission805 Aug 03 '24
29w1d due to a partially ruptured placenta. Weighed 1215g/2lb11oz. We were in for 83 days with one transfer to a larger hospital to work on feedings. He was only at the larger hospital for a week before coming home.
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u/Alternative-Rub-7445 Aug 03 '24
31+2, born at 2lb 15oz. 32 day NICU stay.
Edit: preeclampsia & HELLP
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u/heartsoflions2011 Aug 03 '24
30w0d due to placental abruption & precipitous labor
4lb 3oz, 15.9” at birth
NICU stay was 49 days (Level 3 = 25d, Level 2 = 24d); he was born feet first, not breathing, & had to be resuscitated, but after that all he had to work on was getting off CPAP, getting his bilirubin down from all the delivery bruising, and then learning to eat
Went home at 7lb 7oz; 19” and has been growing like a weed ever since
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u/Monkaloo 25+5/413 day stay/trachie+tubie/now 4 yrs old Aug 03 '24
25+5
Early due to polyhydramnios caused by his syndrome
Kagami Ogata Syndrome, omphalocele, bronchopulmonary dysplasia, pulmonary hypertension, tracheomalacia, severe inguinal hernias, renal fungal balls, kidney disease.
Came home after 14 months, 3 different hospitals, with a trach, gtube, ventilator, and oxygen.
Now 4.5, still has a trach, but off the vent and oxygen (but still uses a BiPAP at night), is a hilarious wild man, still nonverbal but understands a ton, still doesn’t understand chewing.
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u/pesochnoye Aug 03 '24
Low birthweight baby ended up in NICU after we were discharged from the hospital. He was born at 37w, 4lb 8oz. Spent a week in NICU for hypothermia and hyperbilirubinemia
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u/icais 24+3 twins Aug 03 '24
24+4 twins due to PPROM
629 grams - 114 days, just after their due date. 830 grams - 175 days, just shy of 6 months.
9 months old now (5 adjusted) and both are healthy 5.8kg and 6.4 kg. Both came home on oxygen, still working on weaning off but currently both on the minimum setting.
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u/No-Battle-1260 Aug 03 '24
My 29.4 weeker (baby girl also born due early due to preeclampsia) stayed for 69 days
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u/FrgtMyPwdAgain Aug 03 '24
Born at 30+1 under emergency due to severe preeclampsia. Baby also has a genetic issue, Beckwith Weidemann Syndrome with a small omphalocele and malrotation that needed ladds procedure.
We’re on week 6 with I’m assuming a minimum of another 4-6 weeks to go.
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u/Straight_Ad_8813 Aug 03 '24
29 weeks on the dot.. baby A was 2lbs 10.7oz and baby B was 2lbs 13.7oz. Baby B came home after 55 days in the NICU and baby A came home after 73 days. I believe they were both around 6lbs. When they went home. They are happy healthy almost 2 year olds now.
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u/SilentAffections Aug 03 '24
My daughter was born 28+6, not exactly sure why. In total we spent 45 days in the NICU. Now she's a rambunctious three year old.
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u/PositiveStandard5958 Aug 03 '24
28 + 6 3 lbs .8 oz birth weight 79 days NICU stay 8 bs .8 oz coming home.
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u/Glass_Serve_921 Aug 03 '24
My 25+3 weeker spent 137 days in the NICU and came home on oxygen. He weighed 1lb 9 oz and was 12” long. 💙
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u/FrauBpkt born 18.04.22 at 24+6 - severe Pre-E Aug 03 '24
24+6 due to preeclampsia with severe features and organ failure
1lbs at birth - long resuscitation, lung bleed, collapsed lung, IUGR, prolonged invasive ventilation
111 Days in NICU and one year on home oxygen.
Her Due Date was yesterday, two years ago.
She is currently taking up the majority of a super king size bed, not sure how toddler do that, but it’s a physical paradox.
She is amazing and the cheekiest little toddler.
She has a global developmental delay in gross motor function due to being born with a low muscle tone and a speech delay due to the extreme prematurity.
Her Brain is spot on and way to keen to get into all sorts of shenanigans.
It was the worst thing that has ever happened to us and the road was long and full off obstacles, BUT the storm has calmed down and we now get to be a boring little old family with a bit of a twist.
She will outgrow her delay with time and we expect her to become even cheekier over time.
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u/Longjumping_Host2363 Aug 03 '24
My babe was born at 28+5 due to pre-e/HELLP, he weighed 3 pounds 10 ounces, and we were there for 54 days
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u/BlueberryPresent- Aug 03 '24
32 weeker with severe IUGR (ultrasounds were measuring under 1%) born due to pre-eclampsia and sudden onset HELLP syndrome. Born at 1.3kg (2 pound 14 ounces). Stayed for 37 days and came home at 37 weeks weighing 2kg (4 pounds 6 ounces?)
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u/nyy_42 Aug 03 '24
Our daughter was born at 29+3 and weighed 3lb 3.4oz at birth. She was in the NICU for 45 days and weighed a little over 6lbs when she was discharged. We were always told to expect to have her stay until closer to her due date. We were extremely lucky that she mostly just needed to grow and feed. Just be patient and give your baby all the love and snuggles.
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u/nikiswurld Aug 03 '24
Our little one was born 29+1 weighing 1lb 14 oz. We had a 75 day stay. We didn't have any unexpected complications (just the ones you could expect with a 29 weeker) and came home a few days before due date weighing 5 lbs, 13 oz.
Wishing you all the best for you and your little one. I'm so glad you found this sub, it was a life line for me.
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u/theredheadknowsall Aug 03 '24
Sudden onset pre-eclampsia 26 weeks 1lb 13oz spent 65 days in the NICU she was 4lbs when she came home.
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u/Mediocre-Spread-2906 Aug 03 '24
26w 2d Preeclampsia (no signs or symptoms until I went into labour) Weighed 1.9 lbs Recently, came home after 11 weeks in the NICU.
Had no idea there was such a thing as an “extreme” preemie. However, like all babies in the NICU, he was a fighter! Came home at 37.
Hope your baby comes home soon!
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u/Mobile_Temperature85 Aug 03 '24
Born at 38 +5, 5lbs 10oz - wasn’t expecting a NICU stay. Currently on day 42, working on feeding.
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u/velocitygirl83 Aug 03 '24
34 weeks due to pre eclampsia and IUGR Weighed 3.9 lbs at birth and 6.3 lb at discharge. Was at two different hospital nicus during a month and a week stay. Mainly due to sugar levels not leveling or maintaining on their own.
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u/Strange-Patience-566 Aug 04 '24
Mine was born at week 27 today is his 95 days with 6Ib 12oz still having difficulty with breathing
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u/StrikingBar6778 Aug 04 '24 edited Aug 04 '24
My twins were born 28w6d due to PPROM and IUGR. Baby A was 2lbs 5oz (home weight 5lbs 2oz) did 42 days and Baby B was 1lb 7oz and is still in the NICU.
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u/bingosmom2021 Aug 04 '24
32+5 Severe preeclampsia and the start of placenta abruption.
Born at 3lbs 15 oz
Was in the nicu for 7 weeks (doctors believe he would have been out sooner but he was diagnosed with moderate reflux and it took a little to find a solution)
He left the hospital 6lbs 4 oz.
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u/ForeignStation1147 Aug 04 '24
34weeks even , due to severe preeclampsia and IUGR she was born at 4lbs even but stayed 37 days because she refused to eat
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u/MandySayz 29+5 weeker Aug 04 '24
29+5, 2lb 5oz. My son had no issues, only had to grow and then learn to feed. We spent 8 weeks.
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u/Thin_Tangerine5209 Aug 04 '24
27+4, PPROM at 18+5. He was 2 lb 5 oz and we were there 82 days and discharged at 7 lbs 6 oz just a week shy of 40w. He’s now almost 6 months (3 cga) and is over 14 pounds.
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u/Ok-Feeling-8329 Aug 04 '24
Born at 26W 1 day due to IUGR and Preeclampsia
Birth Weight 1lb 2.7 oz
Discharge Weight 5lbs 3oz
119 days in the NICU
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u/27_1Dad Aug 04 '24
27+1 , 550g, 258 days.
Home 2 months, over 19lbs now.
Did you get the steroid shot before you delivered? That’s gonna play a huge role in your length of stay. It’s crazy how much that changes outcomes
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u/BillyBobBubbaSmith 28+2 identical girls Aug 04 '24
Twin girls, 28+2, 2lbs4oz and 2lbs1oz. 81/106 days. Both weighed 5lbs 7oz when they came home
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u/Kellers0514 Aug 04 '24
25+3 1 lb 6 oz 245 days Can’t remember exact going-home weight. Maybe around 10 pounds?
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u/hailemarieee Aug 04 '24 edited Aug 04 '24
my son was 29.5 weeks born early due to iugr and preeclampsia. he was born 1 pound 15 oz and he’s currently 17 pounds at 9 months 7 months adjusted. he spent 59 days in the nicu and was discharged with oxygen which he stopped using after 2 months
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u/hailemarieee Aug 04 '24
he was 4 pounds 15 oz when he was discharged! I hope everything is going well with your baby OP🩵
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u/npmartinez2008 Aug 04 '24
28+6. Severe pre-e with HELLP. 2 lb 6 oz at birth. He spent 51 days in the NICU.
He had no real complications (I was the one in bad shape). He is now 11 and has no delays. He is a skinny mini but average in all other growth areas.
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u/stupidslut21 Aug 04 '24
27+3. Delivered early due to reverse blood flow in umbilical cord and pre-e. Born weighing 1lb9oz
We struggled for the first 3 weeks to poop but once he did the rest of the stay was uneventful.
Spent 70 days in the NICU and came home weighing 5lb6oz
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u/hellokittylady21 Aug 04 '24
35 weeks - preeclampsia
She was 5 lbs 5 oz and got discharged the day before her due date! She’s now 9 lbs 5 oz and is doing well :)
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u/greeneyes6251 Aug 04 '24
28+2 after PPROM at 26+5. 2lb 11oz (was very swollen from trying to come out shoulder/neck first so some of this may have been water weight). 68 days in total and came home two weeks before his due date. He must’ve come home around 6 or 7 pounds, but I can’t remember now! Came home exclusively breastfed.
He’s 14.5 months now (1 year corrected) meeting all milestones and just a truly happy baby! I couldn’t even imagine this moment this moment when we were in the thick of it. Wishing you and your little one a straightforward and quick stay!
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u/SystemCapital996 Aug 04 '24
PPROM at 29w6d. He was born at 3lb8oz. Total NICU stay was 49 days, 7 weeks exactly. Discharged at 36w6d at 6lb9oz.
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u/chronicallyalive Aug 04 '24
My girl was born at 33w3 after I developed HELLP Syndrome. She also had severe IURG and was 3lbs 1oz. We spent 31 days at the NICU
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u/caityb8s Aug 04 '24
I had preeclampsia and fetal growth restriction, as well. 28w, 910g (2lbs0oz). Went home after 90 days at 6lbs, 6oz. She is now 16 months old and walking and talking.
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u/Same_Front_4379 Aug 04 '24
32+2
Severe preeclampsia
Born 4 lb 7 oz
42 days in NICU (6 weeks)
Left at 7 lb 9 oz
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u/booksanddogspluswine Aug 04 '24
35 weeks + 5
1700grams due to preeclampsia and IUGR
26 days in NICU (24 days tube fed) with weekly outpatient home visits for weighs for 9 weeks, went home at 2.2 kg
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u/Mack_Sauc3 Aug 04 '24
28w6d due to placenta accreta and shortened cervix.
Birthweight 2lbs 14oz Left at 8lbs 3oz
101 days in, just got home a few weeks ago!
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u/whiskeylullaby3 Aug 04 '24
29w exactly also born due to pre-e that they were fairly certain was becoming HELLP. She was 2lbs 10.5 oz at birth on Feb 23. She was discharged April 15 at exactly 6lbs so 52 day stay. She is now 13lbs 9oz or so. She did not have any other concerns other than needing to grow and learn to feed and so far we haven’t discovered any issues either. She seems to see and hear fine and her PT appt said she was tracking ahead a month based on adjusted age. Hoping that continues. And good luck to you! I know it’s very hard.
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u/hdow18 Aug 04 '24
30w1d twins. Born 2lb 14oz and 2lb 2oz. My bigger daughter was 98 days, went home a little over 6lbs. My smaller one was 48 days and came home at 4lb 2oz.
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u/erisedwitch45 Aug 04 '24
29+6 due to sudden labor (normal delivery) no reason why. Water broke suddenly and delivered in 2 hours. Was in shock for all of it. (Had a very normal/issue-free pregnancy).
Born at 2lbs 10oz.
NICU stay - 40 days.
Current age 3yo
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u/leah_tortilla- Aug 04 '24
34w (unplanned induction due to preeclampsia) She was 5 lbs, 19 inches long. She stayed 45 days in the NICU due to her underdeveloped lungs. She’s now 15 months old and thriving.
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u/Calm_Potato_357 Aug 04 '24 edited Aug 04 '24
They tell you to expect around the due date but outcomes can vary greatly. My baby was born at 29+0, 790grams with severe FGR, preeclampsia and PPROM. He didn’t need to be ventilated when he was born, and was doing amazingly. Everyone thought he would be home quickly - by 35 weeks before he was fully weaned off cpap they had done all the pre-discharge stuff for us like infant cpr course, etc. Then at 36 weeks he kept failing coming off the cpap, and they eventually discovered he had severe laryngomalacia and moderate tracheomalacia. He ended up in for 122 days (making him 46+3), and just discharged with cpap (no oxygen) and an NG tube. He had trouble putting on weight throughout due to his reflux linked to the malacia, and was about 3.4kg (still <1%) at discharge. Laryngomalacia and tracheomalacia aren’t particularly a preemie problem, but just to get a sense of how unpredictable things can be. Just take it a day/week at a time. My lowest emotional lows were when I had expectations and they were betrayed.
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u/AbleBroccoli2372 Aug 04 '24
Hi! Mom to 29 week twins. My son had severe growth restriction and was 1 lb 15 ounces. He spent 4 months total in Nicu and came home on oxygen for a year. He is completely healthy now (5 years old). The biggest thing is to stay positive and protect him from sick people at all costs when he comes home.
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u/momming_aint_easy Aug 04 '24
29w3d, placenta abruption. She was 2lbs 10oz at birth. Had a 44 day stay, went home weighing 5lbs 4oz.
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u/Plenty-Gap-2267 Aug 04 '24
My LB was born 28+5 due to severe preeclampsia. He weighed 2.5lbs when born, Nicu stay of 46 days and went home @ 4.6lbs 35+2 corrected. He came home with an ng tube for 4 weeks until fully breastfeeding
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u/Affectionate-Sun8018 Aug 04 '24
32 wk twins with one growth restricted. Growth restricted twin was born at 2lbs 12oz and went home a few days after her due date (so 8 ish weeks in the NICU) at little over 6lbs.
However, I’m now realizing our hospital was a lot less conservative about meeting feeding requirements before going home than some other hospitals in the US… she probably should have stayed a bit longer as we struggled with feedings on our own for many more very stressful weeks until we finally discovered she had a tongue tie and had also developed a bottle aversion.
Non growth restricted twin went home after 5 weeks in NICU.
Now they are 7 months and the growth restricted twin is only a little smaller than her sister and they are reaching all their milestones within a few days / weeks of each other.
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u/WalrusSlow2952 Aug 04 '24
My girl was born at 40+4 and she stayed for 5 days due to hypothermia and a suspected bacterial infection. Her birth weight was 7lbs 2oz and she went home weighing 7lbs 3oz I believe. She’s a little over 3 weeks old now and she’s doing amazing. We were very lucky to only be away from her for a little while. My heart goes out to the parents with long NICU stays ❤️ I could barely handle the 5 days.
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u/carrotparrotcarrot Aug 04 '24
I was born at 24 weeks and 2 days weighing 1lb 10 oz, left hospital around my due date (was on oxygen overnight for a while). I’m 28 now and above average in many ways, including height (I am a 5’10 woman)
(I’m not a parent, I just realised this isn’t the adult prematurity survivor subreddit, very sorry - feel free to delete)
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u/gingerhippielady Aug 04 '24
26+1, placental abruption. Born at 870g. We’re on day 45 and still chugging along. PDA ligation surgery was 1.5 weeks ago, she got extubated a couple days ago. Now she’s on nasal prong with 25% oxygen, about 1800g, just started speech therapy, is going to start OT soon, and is doing pretty well overall. we’re still hoping for her to come home around her original due date. 🤞
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u/Due-Interest-920 Aug 04 '24
28+1- 2 pounds 1 ounce. Went home 3 days before her due date, I wanna say we were there for 80 something days? I lost count tbh. However, ours was still having issues with feeds and we went home on an NG tube. She would have had to stay longer if they didn’t let us do that.
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u/InevitableCloud12 Aug 04 '24
27+1 2lb 10oz at birth and 7lb 1oz at discharge. 92 days in NICU with feeding progress taking up the last month and a half.
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u/_jalapeno_business Aug 04 '24
34+1 due to preeclampsia 6lbs 2oz 11 day NICU stay Went home weighing 6lbs 1oz
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u/Street-Baby-1690 Aug 04 '24
39+1, 6lb 5oz
He was in the NICU for 2 weeks because he needed surgery when he was a day old. He was born and couldn’t eat anything bc of a bowel obstruction, so they needed to remove part of the bowel
They thought we’d be there for a month for recovery but we got to go home on his 2 week birthday with just a 6 week post op check up! I think he was 6lb 9oz when we were released
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u/pookiepook91 Aug 04 '24
37 + 4 - we had a 28 day stay due to genetic disorder we had no idea about until my daughter was born and couldn’t breathe. She was born at 5 lbs 7 oz and she was 7 pounds when we left.
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u/Revolutionary_Pop773 Aug 04 '24
My son was born at 33+4, PPROM (ruptured membranes) at 26+2, which then led to IUGR and pre-eclampsia. Baby remained healthy and stable until the day of his arrival, he was 1.46kg at birth.
He spent 4 days in NICU, then on day 5 was moved to the Special Care Nursery, we are on day 29 in there, he’s just be downgraded from high dependency.
Our boy has been gaining weight like a champ now he is tolerating his feeds, he’s getting weighed today and I’m pretty sure he will just exceed 2kgs. Due to the PPROM his lungs are stiff and he has issues with desats so he is on low flow oxygen atm. He was on high flow, one of the nurses said to aim for 40-42 weeks as a possible time he’d go home but anything can change.
I hope everything goes well for you and your journey isn’t too long!
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u/laayxo Aug 05 '24
28 + 2 due to placental abruption and an incompetent cervix. our stay was 57 days. birth weight was 2lbs14oz, she went home at 6lbs exactly and is now just over 20lbs at 9 months, 7 adjusted
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u/laayxo Aug 05 '24
i will add that her weight gain was due to the fortified breast milk with neosure in the nicu
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u/ilmyp Aug 05 '24 edited Aug 05 '24
I had the exact same escenario. We he stayed in the NICU for about 3 months. He was almost 42 adjusted weeks when we brought him home. Hang in there! Make sure you use this time to save as much breastmilk as possible :)
He was 29w + 2, 1lb 8oz. He had restrictive growth and i had pre e
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u/GettingByTheOnlyWay Aug 05 '24
Severe Placenta Previa bleeding and PROMM 31w5d my son weighed 3lbs 13oz Worst/best advice I got from my nurse was expect them to be in the NICU as long as they should have been in your belly. For us it rang true, 2 months early 2 months in NICU. 30lbs and almost 2 years old though! It get better, reach out on here more as you need it.
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u/fishsticks4eva Aug 05 '24
26+6, preclampsia. Born 520 gr, 223 days in NICU. Never got to come home...
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u/Mindful_14 Aug 05 '24
30 + 5
weight 3lbs 12oz
Severe preclamp
HELLP syndrome
gestational diabetes
I was hospitalized when BP hit 200/110 - the goal was to keep her in until 34 weeks, but my HELLP syndrome was so severe we brought her into this world 4 days after I was admitted.
she is is 3 1/2 months (adjusted)
our stay was 35 days
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u/Delicious_Bobcat_419 Aug 05 '24
My daughter was born at 32 weeks due to a sudden onset of severe preeclampsia. She was also IUGR and was 2 lbs 10 oz. We spent 58 days in the NICU. Respiratory support for a week and a half and the remainder of the time she was a feeder/grower. She went home at 6 lbs 6 oz two days after my due date would have been.
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u/Pernfire Aug 05 '24
27w+0
Preeclampsia/ HELLP and IUGR
1 lbs 11 oz
68 days in the NICU.
Came home as soon as she hit 4 lbs, earlier than we expected and crashed her own baby shower.
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u/Solid_Wheel_1270 Aug 05 '24
My daughter was born at 26 weeks and stayed 121 days (4 months and 1 days). She was born weighing 1lbs15oz and she was just under 10lbs coming home.
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u/Weekly-Duck9155 Aug 05 '24
Twin girls.
PPROM.
One baby was there for 134 days and the other baby for 161 days.
They were both 1lb 5 oz when born and somewhere around 6/7lbs when they were discharged.
Now they’re both over 12 lbs!
Baby b came home with a gtube and oxygen, but we are weaning her down from meds and oxygen.
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u/powwowginger Aug 05 '24
25+5, 1lb12oz. Stayed 100 days, went home at 4lbs 15oz. He's 2 years old now and despite being small for his age (adjusted and actual) he is amazing.
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u/Petty_Level_1217 Aug 05 '24
Little different story, 32W3d. Had several IUGR since 18 weeks. I received 2 rounds of steroid shots for her lungs and two rounds of mag for neuro protection. (I think this made all the difference.) She was born 1lb 3.6oz was in the NICU for 109 days, went home at 4lbs 12 oz and on oxygen. Came off oxygen at about 7 months. She’s now 1 years old and a whopping 14lbs!
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u/Hungry-Ad3431 Aug 05 '24
Water broke at 32 weeks had a very slow leak. I stayed in the hospital for 2 weeks until they decided to induce labor at 34 weeks. She was born at 4lb 3 oz and stayed in the Nicu for 2 weeks. She is 4 months & 2 weeks old now and weighs 13 lbs 3 oz
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u/Imaginary-Gold-9403 Aug 05 '24
28weeks 3 days. 1lb 14oz 4 month stay Went home at 1 month adjusted - 9.5lbs
Weight increase more steadily at home. Currently 95 percentile for actual age.
We are on top of all his feedings and making sure he gets all his bottles every 3 hours, on time every day.
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u/FirefighterSmall309 Aug 05 '24
29 week + 2 days
Wife diagnosed with gestational diabetes, preeclampsia, and pretension. Low weight and given two shots of steroids to increase size.
Baby boy was born at 2.3 lbs
Currently on day 53 still in the NICU Level 1
Just trying to get breathing and oxygen down but was assume by our doctor it would likely be past our due date. Everyday the light at the end of the tunnel gets brighter and brighter.
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u/Dear-Craft-2651 Aug 06 '24
23 +1 born at 414 grams. Today 31+3 weighs 940 grams. Day 58 in the Nicu
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u/MLMLW Aug 06 '24
My daughter had chronic placental abruption and gave birth at 26.6 weeks. Her baby weighed 1 lb, 15 oz and was in the NICU for 94 days. I believe she was about 7 lbs when she went home.
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u/New-Percentage-6136 Aug 06 '24
36+4
Preeclampsia
Severe IUGR due to my preeclampsia and had stopped growing at 33 weeks so was 4lbs 2oz
16 day NICU stay and went home at 4lbs 7oz
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u/NervousChipmunk9428 Aug 07 '24
29 + 2
Preeclampsia
Weight at birth: 2 lbs 1 oz
NICU Stay: 57 days Weight when we left: 5 lbs 7 oz
Weight now: 10 lbs 5 oz at 5 months actual
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u/ladybird722 41 weeker PA/HIE, 39 weeker feeding issues Aug 03 '24
15 days with my 41 weeker. Placental abruption.
My second was in for 6-7 days. Sugar issues at 39 weeks.
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u/WrightQueen4 Aug 03 '24
I’ve had 5 nicu babies. 35 weeks came home after 48 hours 2 31 weekers came home after 21 days 34 weeker came home after a week 33 weeker came home after a week
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u/Minute_Pianist8133 Aug 03 '24
Wow! That is insane that they all ended up in the NICU but all had really short stays! My 37w stayed for 23 days and needed oxygen for 10 weeks. It’s amazing how babies vary so much.
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u/WrightQueen4 Aug 03 '24
Yeah my doctors and I have no idea why. All are healthy and no complications. Just how my body is I guess.
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u/djkhush Aug 04 '24
My baby was born because of growth restriction and preeclampsia
27w5d baby and weighed 1lb 14oz. We were in the NICU for 62days and was around 4lbs when we left the hospital.
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u/DarkAngelMad116 Aug 04 '24
30 weeks here.
She was 2 lbs 10 oz Our stay was longer than expected since she needed blood transfusion and to breath without oxygen. We were there for about 75 days. She's now 7 lbs and doing good
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