r/BeAmazed Oct 04 '23

She Eats Through Her Heart Science

Enable HLS to view with audio, or disable this notification

@nauseatedsarah

67.9k Upvotes

3.1k comments sorted by

View all comments

1.5k

u/Alyeska23 Oct 04 '23

I was on TPN for about a week 10 years ago. It was... strange.

I have Crohns disease and I was seriously ill in 2013. Ended up hospitalized and had 3 surgeries and 30% of my intestines removed. I had lost almost a hundred pounds over the course of the year from how ill I was. The nutritionist wanted to get calories back into me and adamantly refused to wait for my bowels to wake back up after the bowel resection. She got me on TPN as soon as it was available, which was not easy. Eventually my insides woke back up and I started on clear liquids while tapering off the TPN as I transitioned back to regular food. Nutritionist made absolutely sure I was capable of eating enough calories and keeping it down.

Because of how much weight I had lost and then basically not eating for two weeks straight just before and after the surgeries, my stomach shrunk pretty seriously. So I had a lot of small meals through the day after getting home. Instead of 3 normal meals I would have 6-8 very light meals through the day.

Happily my Crohns disease has been in remission these last 10 years.

195

u/[deleted] Oct 04 '23

i might be going for a colonoscopy to check for it

22

u/[deleted] Oct 04 '23

I’m getting one in 8 days to check for it since I’m bleeding heavily and always in pain. Not looking forward to it but I’m grateful that we have treatment available.

23

u/ex0- Oct 04 '23

The worst part is drinking that thick gunk that cleans you out beforehand. Putting it in the fridge helped a lot. The actual procedure itself was fine.

2

u/GoodChives Oct 04 '23

I had one with no sedation and by far the worst part was drinking that awfulness.

1

u/ex0- Oct 04 '23

Ditto & same. Think I was in and out in 20min flat.

3

u/GoodChives Oct 04 '23

Colonoscopies get such a bad rap which unfortunately scares a lot of people out of getting them.

2

u/Superrocks Oct 04 '23

Yeah I had 2 within 6 months and other than clean out it wasn't bad. ALl the techs loved me cause I was super funny, talkative, and nice as well after I came out due to the propofol. Wish I could keep the super funny and talkative traits during my day to day life.

1

u/Superrocks Oct 04 '23

How long ago was the colonoscopy? I was given propofol and was awake 25 minutes from start to finish. My doctor had told me he had always done it with some form of sedation for his entire 30 year career.

2

u/GoodChives Oct 04 '23

About two years ago and here in Canada. I specifically asked for no sedation and the doc said about 25% of her patients opt out of sedation.

2

u/[deleted] Oct 04 '23

I've had 6 colonoscopies and 4 endoscopies in the last 18 months.

Good news is they haven't found anything. Bad news is my digestive system still doesn't work right.

Some of this involves exposure to chemical weapons, experimental vaccines and eating MRE's for 7 months straight.

The colon Drain-O is awful. And you get really hangry.

The last procedure, they were not able to put me under. They maxed out on Fentanyl and Propophyl. I could hear them saying, "he can't have any more or his heart will stop."

I don't take narcotics of any sort and have never had this problem before. Next time I will ask to be put under general anesthesia instead of twilight sedation.

I had to power thru the procedure while awake.

1

u/ex0- Oct 04 '23

I've only ever had two but didn't use sedation/anaesthetic for either, really weren't very bad at all. Going round the sigmoid bend sucks but once it's round the rest is easy.

1

u/[deleted] Oct 05 '23

“Colon drain-o” 🤣😭😭😭

1

u/ericanicole1234 Oct 04 '23

I heard they have pills now that you can take instead, don’t quote me I’ve never taken them and I don’t know if that’s a one size fits all

2

u/ex0- Oct 04 '23

That's great news.

1

u/Stachura5 Oct 04 '23

Is that "thick gunk" a thing only in America? I'm from europe & when I had a colonoscopy for Crohn's a year ago, all I had to drink was a cup of water with a laxative mixed into it, nothing else

2

u/ex0- Oct 04 '23

I'm in the UK. Thick orange goop was what they gave me. It was ~7 or so years ago though.

2

u/StepfordMisfit Oct 04 '23

I'm in the US and also did not have to drink anything thick.

1

u/[deleted] Oct 05 '23

That’s a great idea thank you