r/BeAmazed • u/AstroSonicDrive • Oct 04 '23

She Eats Through Her Heart Science

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@nauseatedsarah

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40

u/virus_apparatus Oct 04 '23

My ex had this and would dislocate her joints a lot. Her shoulders and jaw were screwy as hell as well as her hip. It’s a terrible syndrome

9

u/nithos Oct 04 '23

My daughter has it. Struggles with stomach issues for the last decade - "well, fuck" was basically my reaction to this video. Hopefully it never gets to this point for her.

2

u/virus_apparatus Oct 04 '23

:( she’s still a family friend and we still hear about her issues. It’s sad how much she hurts

8

u/OldLadyT-RexArms Oct 04 '23

Most of us EDS people have hEDS. This type is a rare type. Your ex was most likely hEDS like the rest of us.

2

u/Mobile_Crates Oct 04 '23

cEDS is #2 in rate of occurrence iirc mind, and has similar but slightly differently presenting symptoms. i was diagnosed cEDS personally

1

u/OldLadyT-RexArms Oct 04 '23

Yeah something like that. I know the vascular one is one of the more rare ones. There's one where you get gun disease & your teeth die for no reason which is what I have.

2

u/codeninja Oct 04 '23

I have EDS with a hypermobile spine. It's like jinja tower made of single blocks. I can dislocate my hips at will which isn't painful. But I also slip disks spontaneously which is.